Observational Study
Copyright ©The Author(s) 2022. Published by Baishideng Publishing Group Inc. All rights reserved.
World J Clin Cases. Aug 26, 2022; 10(24): 8578-8586
Published online Aug 26, 2022. doi: 10.12998/wjcc.v10.i24.8578
Psychological needs of parents of children with complicated congenital heart disease after admitting to pediatric intensive care unit: A questionnaire study
Ji-Hua Zhu, Chen-Di Jin, Xiao-Min Tang
Ji-Hua Zhu, Chen-Di Jin, Xiao-Min Tang, Department of Nursing, The Children’s Hospital, Zhejiang University School of Medicine, National Clinical Research Center for Child Health, Hangzhou 310053, Zhejiang Province, China
Author contributions: Zhu JH, Jin CD and Tang XM designed the research study; Jin CD performed the research; Zhu JH and Tang XM analyzed the data and wrote the manuscript; all authors have read and approved the final manuscript.
Institutional review board statement: The study was reviewed and approved by the Medical Ethics Committee of Children's Hospital Affiliated to Zhejiang University School of Medicine.
Informed consent statement: All study participants, or their legal guardian, provided informed written consent prior to study enrollment.
Conflict-of-interest statement: All the authors report no relevant conflicts of interest for this article.
Data sharing statement: No additional data are available.
STROBE statement: The authors have read the STROBE Statement-checklist of items, and the manuscript was prepared and revised according to the STROBE Statement-checklist of items.
Open-Access: This article is an open-access article that was selected by an in-house editor and fully peer-reviewed by external reviewers. It is distributed in accordance with the Creative Commons Attribution NonCommercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: https://creativecommons.org/Licenses/by-nc/4.0/
Corresponding author: Ji-Hua Zhu, RN, Chief Nurse, Department of Nursing, The Children’s Hospital, Zhejiang University School of Medicine, National Clinical Research Center for Child Health, No. 3333 Binsheng Road, Binjiang District, Hangzhou 310053, Zhejiang Province, China. jihuazhu@zju.edu.cn
Received: November 27, 2021
Peer-review started: November 27, 2021
First decision: April 8, 2022
Revised: April 22, 2022
Accepted: July 5, 2022
Article in press: July 5, 2022
Published online: August 26, 2022
Abstract
BACKGROUND

Parents of children with complicated congenital heart disease (CHD) have different needs after surgery. Little literature reports the impact factors for psychological needs of parents of children with complicated CHD.

AIM

To investigate the status quo of the needs of parents of children after surgery for complex CHD, and analyze the influencing factors, in order to provide a theoretical basis for formulating corresponding nursing countermeasures.

METHODS

A modified Chinese version of the Critical Care Family Needs Inventory (M-CCFNI) was used to select 200 parents of children with complex CHD after surgery within 72 h after admission to the intensive care unit in our hospital to conduct an online questionnaire survey. The aim was to understand the needs of parents in relation to the following five aspects: The support from medical staff, comfort of the parents themselves, the acquisition of information, their closeness to the children, and assurance of the child’s condition.

RESULTS

Parents of children with complex CHD had a higher degree of demand, especially in terms of condition assurance, acquisition of information, and closeness to the children. The age, education level, and residence of the parents were related to the five dimensions of the needs of parents of children with complex CHD who had undergone surgery.

CONCLUSION

In practice, nurses should formulate corresponding nursing strategies based on the different cultural and social backgrounds of parents of children after complex CHD surgery to meet their different needs, and improve satisfaction. These findings provide a theoretical basis for constructing a family participatory nursing model for children in the intensive care unit in the future.

Keywords: Congenital heart disease, Family participation, Psychological needs, Nursing model, Pediatric intensive care unit

Core Tip: In the treatment and nursing of children with complicated congenital heart surgery, nursing staff should also pay attention to the mood changes of the caregiver, relieve and guide the bad mood, and help the caregiver establish a correct attitude and confidence in overcoming the disease, which can reduce the burden of caregivers through a variety of ways.