Basic Study
Copyright ©The Author(s) 2023. Published by Baishideng Publishing Group Inc. All rights reserved.
World J Methodol. Sep 20, 2023; 13(4): 210-222
Published online Sep 20, 2023. doi: 10.5662/wjm.v13.i4.210
Utilization of online systems to promote youth participation in research: A methodological study
Marie Salem, Lance Pollack, Alex Zepeda, Kathleen P Tebb
Marie Salem, Institute for Health Policy Studies, University of California San Francisco, San Francisco, CA 94158, United States
Lance Pollack, Division of Prevention Science, University of California San Francisco, San Francisco, CA 94105, United States
Alex Zepeda, Research, Los Angeles Trust for Children's Health, Los Angeles, CA 90017, United States
Kathleen P Tebb, Department of Pediatrics, University of California San Francisco, San Francisco, CA 94143, United States
Author contributions: Salem M and Tebb KP performed the research; Tebb KP, and Pollack L designed the research study; Pollack L analyzed the data; Salem M, Tebb KP, and Zepeda A wrote the manuscript; all authors have read and approved the final manuscript.
Supported by a Patient-Centered Outcomes Research Institute (PCORI) Dissemination and Implementation Award, No. DI-2020C2-20372.
Institutional review board statement: This basic study was approved by the Institutional Review Board ethics committee at University of California San Francisco (Review Board Number: 10-02730).
Conflict-of-interest statement: All the authors have no conflicts of interest to disclose.
Data sharing statement: Technical appendix, statistical code, and dataset available from the corresponding author at marie.salem@ucsf.edu. Participant consent was not obtained for data sharing, but all data collected was anonymized and risk of identification is low.
ARRIVE guidelines statement: The authors have read the ARRIVE guidelines, and the manuscript was prepared and revised according to the ARRIVE guidelines.
Open-Access: This article is an open-access article that was selected by an in-house editor and fully peer-reviewed by external reviewers. It is distributed in accordance with the Creative Commons Attribution NonCommercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: https://creativecommons.org/Licenses/by-nc/4.0/
Corresponding author: Marie Salem, MPH, Research Scientist, Institute for Health Policy Studies, University of California San Francisco, 490 Illinois St, San Francisco, CA 94158, United States. mariesalemk@gmail.com
Received: January 27, 2023
Peer-review started: January 27, 2023
First decision: April 20, 2023
Revised: June 9, 2023
Accepted: July 6, 2023
Article in press: July 6, 2023
Published online: September 20, 2023
Processing time: 235 Days and 10.6 Hours
Abstract
BACKGROUND

Online surveys can align with youth’s increased use of the internet and can be a mechanism for expanding youth participation in research. This is particularly important during the coronavirus disease 2019 (COVID-19) pandemic, when in-person interactions are limited. However, the advantages and drawbacks of online systems used for research need to be carefully considered before utilizing such methodologies.

AIM

To describe and discuss the strengths and limitations of an online system developed to recruit adolescent girls for a sexual health research study and conduct a three-month follow up survey.

METHODS

This methodology paper examines the use of an online system to recruit and follow participants three months after their medical visit to evaluate a mobile sexual and reproductive health application, Health-E You/Salud iTuTM, for adolescent girls attending school-based health centers (SBHCs) across the United States. SBHC staff gave adolescent girls a web link to an online eligibility and consent survey. Participants were then asked to complete two online surveys (baseline and 3-month follow-up). Surveys, reminders, and incentives to complete them were distributed through short message service (SMS) text messages. Upon completing each survey, participants were also sent an email with a link to an electronic gift card as a thank-you for their participation. Barriers to implementing this system were discussed with clinicians and staff at each participating SBHC.

RESULTS

This online recruitment and retention system enabled participant recruitment at 26 different SBHCs in seven states across the United States. Between September 2021 and June 2022, 415 adolescent girls were screened using the Qualtrics online survey platform, and 182 were eligible to participate. Of those eligible, 78.0% (n = 142) completed the baseline survey. Participants were racially, geographically, and linguistically diverse. Most of the participants (89.4%) were non-White, and 40.8% spoke Spanish. A total of 62.0% (n = 88) completed the 3-month follow-up survey. Limitations of this system included reliance on internet access (via Wi-Fi or cell service), which was not universally available or reliable. In addition, an individual unrelated to the study obtained the survey link, filled out multiple surveys, and received multiple gift cards before the research team discovered and stopped this activity. As a result, additional security protocols were instituted.

CONCLUSION

Online systems for health research can increase the reach and diversity of study participants, reduce costs for research personnel time and travel, allow for continued study operation when in-person visits are limited (such as during the COVID-19 pandemic), and connect youth with research using technology. However, there are challenges and limitations to online systems, which include limited internet access, intermittent internet connection, data security concerns, and the potential for fraudulent users. These challenges should be considered prior to using online systems for research.

Keywords: Online recruitment, Adolescents, Sexual and reproductive health, Mobile data, Methodology paper, Data security

Core Tip: Online systems for health research have the potential to reach larger and more diverse audiences than traditional in-person recruitment methods. It can also decrease the cost and time necessary to recruit participants in person. This paper provides a case study of the online system developed and used to evaluate Health-E You/Salud iTuTM, an interactive mobile sexual and reproductive health application (app) for adolescent females used in conjunction with school-based health centers. This study demonstrates the strengths and limitations of online systems used for research.