Retrospective Study
Copyright ©The Author(s) 2022. Published by Baishideng Publishing Group Inc. All rights reserved.
World J Clin Pediatr. Jul 9, 2022; 11(4): 341-350
Published online Jul 9, 2022. doi: 10.5409/wjcp.v11.i4.341
Prevalence, phenotype and medication for the pediatric inflammatory bowel disease population of a state in Southeastern Brazil
Adalberta Lima Martins, Renata de Sá Brito Fróes, Maria da Penha Zago-Gomes
Adalberta Lima Martins, Pharmaceutical Assistance, Health Department of Espírito Santo, Vitoria 29052-210, Espírito Santo, Brazil
Renata de Sá Brito Fróes, Department of Gastroenterology, Gastromed, Rio de Janeiro 22640-100, Rio de Janeiro, Brazil
Maria da Penha Zago-Gomes, Departament of Medical Clinical, Hospital Universitário Cassiano Antonio Moraes, Vitoria 29042-755, Espírito Santo, Brazil
Author contributions: Martins AL contributed to concept, design of the research, collection of the data, analysis, interpretation, and writing; Fróes RSB contributed to interpretation, writing and review; Zago-Gomes MP contributed to analyses study, statistical analysis, interpretation, and writing.
Institutional review board statement: This study was approved by the Ethics and Research Committee of the Nossa Senhora da Gloria Children’s Hospital (CAAE 19602813.8.0000.5069) after obtaining authorization from the State Office for Pharmaceutical Assistance. The term of clarification and consent was waived because the data used is secondary data.
Informed consent statement: The terms of clarification and responsibility were not necessary because the information used were secondary data from Espírito Santo's State Health Department documents.
Conflict-of-interest statement: All the authors have no conflicts of interest to disclose related to the manuscript.
Data sharing statement: No additional data are available.
Open-Access: This article is an open-access article that was selected by an in-house editor and fully peer-reviewed by external reviewers. It is distributed in accordance with the Creative Commons Attribution NonCommercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: https://creativecommons.org/Licenses/by-nc/4.0/
Corresponding author: Adalberta Lima Martins, MSc, Doctor, Pharmaceutical Assistance, Health Department of Espírito Santo, Desembargador Ferreira Coelho 330/315 Praia do Suá, Ed. Eldorado, Vitoria 29052-210, Espírito Santo, Brazil. limambeta@uol.com.br
Received: January 7, 2022
Peer-review started: January 7, 2022
First decision: March 9, 2022
Revised: March 23, 2022
Accepted: June 3, 2022
Article in press: June 3, 2022
Published online: July 9, 2022
Processing time: 179 Days and 20.4 Hours
Abstract
BACKGROUND

Inflammatory bowel disease (IBD) can lead to social and economic impacts worldwide. In Brazil, where its adult prevalence is increasing, the epidemiology of the pediatric population is not well known, although there is a documented increase in pediatric IBD incidence worldwide. Brazil has continental dimensions, and Espírito Santo is a state of southeastern Brazil, the region with the highest demographic densities and is the economically most important in the country.

AIM

To assess the prevalence, incidence, phenotype and medications in a Southeastern Brazilian pediatric population.

METHODS

Data were retrieved from the Public Medication-Dispensing System of the Department of Health in Espírito Santo state from documentation required to have access to highly expensive medication from August 1, 2012 to July 31, 2014. There were 1048 registered patients with IBD of all ages, and of these patients, the cases ≤ 17 years were selected. The data were obtained through the analysis of administrative requests for these medications and included medical reports, endoscopy exams, histopathology and imaging tests, which followed the Clinical Protocols and Therapeutic Guidelines of the Brazilian Government. Only confirmed cases of IBD were included in the study.

RESULTS

There were 55 pediatric patients/1048 registered patients (5.34%), with Crohn's disease (CD) representing 30/55 (55%), ulcerative colitis (UC) 24/55 (43.6%) and 1 unclassified IBD, a significant difference from adult patients (P = 0.004). The prevalence of IBD in pediatric patients was 5.02 cases/100.000 inhabitants; the incidence in 2014 was 1.36 cases/100.000 inhabitants. The mean age at diagnosis was 12.2 years (± 4.2). There were 7 children diagnosed up to 6 years old, 7 between 7 to 10 years old and 41 between 11 and ≤ 17 years old. There was no difference in the distribution of UC and CD between these age categories (P = 0.743). There was no difference in gender distribution in relation to adults. Children and adolescents with UC had a predominance of pancolitis, unlike adults (P = 0.001), and used aminosalicylates and immunomodulators for their treatment. Pediatric patients with CD did not present a difference in disease location but had a higher frequency of fistulizing behavior (P = 0.03) and perianal disease phenotype (P = 0.007) than adult patients. Patients with CD used more immunomodulators and biological therapy. Treatment with biological therapy was more frequently used in pediatric patients than in adults (P < 0.001).

CONCLUSION

Although the data from this study demonstrate that incidence and prevalence rates are low in southeastern Brazil, these data demonstrate the severity of IBD in pediatric patients, with the need for early diagnosis and therapy, avoiding serious damage.

Keywords: Inflammatory bowel disease; Pediatric; Prevalence; Phenotype; Brazil

Core Tip: In Brazil, where the prevalence of inflammatory bowel disease (IBD) in adults is increasing, the epidemiology of the pediatric population is not well known, although there is a documented increase in pediatric IBD incidence worldwide. Espírito Santo is a state of southeastern Brazil, the region with the highest demographic densities and that is the economically most important in the country. Our epidemiological data, including behavior and medication, evaluate the comparison between the pediatric and adult age groups. Therefore, this study has the potential to reinforce the need for adequate care of pediatric patients with IBD, with the potential to influence public health policies.