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World J Gastroenterol. Mar 14, 2018; 24(10): 1063-1071
Published online Mar 14, 2018. doi: 10.3748/wjg.v24.i10.1063
Inflammatory bowel disease registries for collection of patient iron parameters in Europe
Jonas Halfvarson, Fraser Cummings, Olof Grip, Guillaume Savoye
Jonas Halfvarson, Department of Gastroenterology, Faculty of Medicine and Health, Örebro University, Örebro SE 70182, Sweden
Fraser Cummings, Department of Gastroenterology, Southampton University Hospital NHS Foundation Trust, Southampton, Hampshire SO16 6YD, United Kingdom
Olof Grip, Department of Gastroenterology, Skåne University Hospital, Malmö S-20502, Sweden
Guillaume Savoye, Service d'hépato-gastroentérologie, CHU de Rouen-Hôpital Charles Nicolle, Rouen 76031, France
Author contributions: All authors contributed equally to the conception and topics for this review and to revising the article critically for intellectual content; all authors approved the final version of the manuscript for submission.
Conflict-of-interest statement: Halfvarson J has received honoraria/grants from Abbvie, Celgene, Hospira, Janssen, Medivir, MSD, Pfizer, Sandoz, Takeda, Tillotts Pharma, and Vifor Pharma; Cummings F has received honoraria/grants from Biogen, Abbvie, Ferring, Hospira, Janssen, Pfizer, MSD, Napp, Pharmacosmos, Shield Therapeutics, Takeda, and Vifor Pharma; Grip O has received honoraria from Abbvie, Ferring, Janssen, Takeda, and Vifor Pharma; and Savoye G has received honoraria from HAC Pharma France, Pharmacosmos, and Vifor Pharma.
Open-Access: This article is an open-access article which was selected by an in-house editor and fully peer-reviewed by external reviewers. It is distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/
Correspondence to: Jonas Halfvarson, MD, PhD, Associate Professor, Department of Gastroenterology, Faculty of Medicine and Health, Örebro University, Örebro SE 70182, Sweden. jonas.halfvarson@regionorebrolan.se
Telephone: +46-19-303000 Fax: +46-19-6021774
Received: December 14, 2017
Peer-review started: December 15, 2017
First decision: December 27, 2017
Revised: February 2, 2018
Accepted: February 9, 2018
Article in press: February 9, 2018
Published online: March 14, 2018
Processing time: 88 Days and 15 Hours
Core Tip

Core tip: Despite its prevalence, iron deficiency is often overlooked in inflammatory bowel disease (IBD). More data are required to fully understand the epidemiology, treatment, and quality of care around iron deficiency in IBD. We suggest that IBD registries are ideally positioned to collect these data from routine clinical practice. We discuss the laboratory, clinical, and patient-reported data that could be collected, and review how best to incorporate collection of these data into existing registries.