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Al-Beltagi M, Saeed NK, Bediwy AS, Elbeltagi R. Breaking the cycle: Psychological and social dimensions of pediatric functional gastrointestinal disorders. World J Clin Pediatr 2025; 14:103323. [DOI: 10.5409/wjcp.v14.i2.103323] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 11/14/2024] [Revised: 12/14/2024] [Accepted: 01/02/2025] [Indexed: 03/18/2025] Open
Abstract
BACKGROUND Functional gastrointestinal disorders (FGIDs) in children present with chronic symptoms like abdominal pain, diarrhea, and constipation without identifiable structural abnormalities. These disorders are closely linked to gut-brain axis dysfunction, altered gut microbiota, and psychosocial stress, leading to psychiatric comorbidities such as anxiety, depression, and behavioral issues. Understanding this bidirectional relationship is crucial for developing effective, holistic management strategies that address physical and mental health.
AIM To examine the psychiatric impacts of FGIDs in children, focusing on anxiety and depression and their association with other neurodevelopmental disorders of childhood, such as attention-deficit/hyperactivity disorder, emphasizing the role of the gut-brain axis, emotional dysregulation, and psychosocial stress. Key mechanisms explored include neurotransmitter dysregulation, microbiota imbalance, central sensitization, heightening stress reactivity, emotional dysregulation, and symptom perception. The review also evaluates the role of family dynamics and coping strategies in exacerbating FGID symptoms and contributing to psychiatric conditions.
METHODS A narrative review was conducted using 328 studies sourced from PubMed, Scopus, and Google Scholar, covering research published over the past 20 years. Inclusion criteria focused on studies examining FGID diagnosis, gut-brain mechanisms, psychiatric comorbidities, and psychosocial factors in pediatric populations. FGIDs commonly affecting children, including functional constipation, abdominal pain, irritable bowel syndrome, gastroesophageal reflux, and cyclic vomiting syndrome, were analyzed concerning their psychological impacts.
RESULTS The review highlights a strong connection between FGIDs and psychiatric symptoms, mediated by gut-brain axis dysfunction, dysregulated microbiota, and central sensitization. These physiological disruptions increase children’s vulnerability to anxiety and depression, while psychosocial factors - such as chronic stress, early-life trauma, maladaptive family dynamics, and ineffective coping strategies - intensify the cycle of gastrointestinal and emotional distress.
CONCLUSION Effective management of FGIDs requires a biopsychosocial approach integrating medical, psychological, and dietary interventions. Parental education, early intervention, and multidisciplinary care coordination are critical in mitigating long-term psychological impacts and improving both gastrointestinal and mental health outcomes in children with FGIDs.
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Affiliation(s)
- Mohammed Al-Beltagi
- Department of Paediatrics, Faculty of Medicine, Tanta University, Tanta 31511, Alghrabia, Egypt
- Department of Pediatric, University Medical Center, King Abdulla Medical City, Arabian Gulf University, Manama 26671, Bahrain
| | - Nermin K Saeed
- Medical Microbiology Section, Department of Pathology, Salmaniya Medical Complex, Governmental Hospitals, Manama 26671, Bahrain
- Medical Microbiology Section, Department of Pathology, The Royal College of Surgeons in Ireland - Bahrain, Busaiteen 15503, Muharraq, Bahrain
| | - Adel S Bediwy
- Department of Pulmonology, Faculty of Medicine, Tanta University, Tanta 31527, Alghrabia, Egypt
- Department of Pulmonology, University Medical Center, King Abdulla Medical City, Arabian Gulf University, Manama 26671, Bahrain
| | - Reem Elbeltagi
- Department of Medicine, Royal College of Surgeons in Ireland - Bahrain, Busaiteen 15503, Muharraq, Bahrain
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Blake JA, Scott JG, Najman JM, Thomas HJ. The Interpersonal Antecedents of Attachment Security in Early Adulthood. CHILDREN (BASEL, SWITZERLAND) 2025; 12:255. [PMID: 40003357 PMCID: PMC11854251 DOI: 10.3390/children12020255] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Subscribe] [Scholar Register] [Received: 01/29/2025] [Revised: 02/17/2025] [Accepted: 02/18/2025] [Indexed: 02/27/2025]
Abstract
Background/Objectives: The relevance of adult attachment security for physical and emotional wellbeing is increasingly evident. Developing a better understanding of the interpersonal antecedents of secure attachment in childhood and adolescence could enable opportunities for its promotion when attachment styles are more easily modifiable. Methods: Data from 3648 participants in a longitudinal birth cohort study were examined. At 21 years, participants completed the confidence (in self and others) subscale of the Attachment Style Questionnaire, a measure of attachment security. Path analysis was used to longitudinally examine the influence of maternal and child-reported interpersonal variables at birth, 5, and 14 years on attachment security in early adulthood. Results: Two pathways were identified. Firstly, child and family social relations at birth and 5 years predicted attachment security via the number of the child's close friends at 14 years (β = 0.11, p < 0.001). Secondly, attuned caregiving at 14 years predicted attachment security via the recalled experiences of parental care up to 16 years, measured at 21 years (β = 0.28, p < 0.001). Greater adolescent family satisfaction directly predicted increased attachment security in early adulthood (β = 0.10, p < 0.001). Conclusions: Child and family social relationships from birth and throughout childhood and adolescence, along with attuned caregiving, led to increased attachment security in early adulthood. Public health and policy initiatives aimed at strengthening social support systems for caregivers and their children throughout childhood, and increasing the uptake of parenting programmes aimed at strengthening attuned caregiving, may lead to long-term improvements in the attachment security of offspring.
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Affiliation(s)
- Julie A. Blake
- Child Health Research Centre, The University of Queensland, South Brisbane, QLD 4101, Australia;
- Child and Youth Mental Health Service, Children’s Health Queensland, South Brisbane, QLD 4101, Australia
| | - James G. Scott
- Child Health Research Centre, The University of Queensland, South Brisbane, QLD 4101, Australia;
- Child and Youth Mental Health Service, Children’s Health Queensland, South Brisbane, QLD 4101, Australia
- Queensland Centre for Mental Health Research, Wacol, QLD 4076, Australia;
| | - Jake M. Najman
- School of Public Health, Faculty of Medicine, The University of Queensland, Herston, QLD 4006, Australia;
| | - Hannah J. Thomas
- Queensland Centre for Mental Health Research, Wacol, QLD 4076, Australia;
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Kalra S, Shah D. Care Beyond Newborn Survival Including Child Health and Early Childhood Development; Mental and Psychological Health. Indian J Pediatr 2023; 90:37-46. [PMID: 37458975 DOI: 10.1007/s12098-023-04701-x] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.5] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 12/27/2022] [Accepted: 04/19/2023] [Indexed: 12/17/2023]
Abstract
Last couple of decades have witnessed a substantial decline in child mortality. Now, the need of the hour is to ensure the quality survival of children beyond infancy. Adverse events in the first few years of life have a long-lasting effect on child's development, behavior and personality; and effective interventions during this time have maximum impact to prevent these consequences. Nurturing Care for Early Childhood Development (NC-ECD) is a concept adapted worldwide by health agencies to improve the level of optimum care to children in the first 1000 days as promotion of Early Childhood Development (ECD) is integral for overall social and financial progress of the country and its population. The five components of NC-ECD include good health, adequate nutrition, responsive caregiving, safety and security, and opportunities for early learning. This five-pillar approach emphasizes upon providing quality care by catering to needs like responsive caregiving, safe and secure environment and better learning opportunities apart from health and nutrition, which are already addressed by various health programs. Taking care of mental health of child as well as caregiver is another important aspect of providing optimum care to these children. To accomplish these goals, there is a need to integrate ECD with existing public health programmes with additional focus on elements of early learning opportunities, safety and security, and responsive caregiving.
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Affiliation(s)
- Swati Kalra
- Department of Pediatrics, BSA Medical College and Hospital, Delhi, India
| | - Dheeraj Shah
- Department of Pediatrics, University College of Medical Sciences and GTB Hospital, Delhi, 110095, India.
- National Institute of Health & Family Welfare, New Delhi, 110067, India.
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Li KK, Leung CLK, Yeung D, Chiu MYL, Chong AML, Lam BCY, Chung EKH, Lo TW. Development and validation of the caregiver needs and resources assessment. Front Psychol 2023; 14:1063440. [PMID: 37008844 PMCID: PMC10064064 DOI: 10.3389/fpsyg.2023.1063440] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 10/07/2022] [Accepted: 02/13/2023] [Indexed: 03/19/2023] Open
Abstract
IntroductionExisting caregiver assessment tools were long criticized for focusing on the needs and burden while neglecting the importance of the resources. The current study aimed to develop a multidimensional and time-effective assessment tool that measures both needs and resources of non-paid family caregivers of older adults for screening and service-matching purposes.MethodsItems of the Caregiver Needs and Resources Assessment (CNRA) were developed from extensive literature reviews and focus group interviews of family caregivers and social workers in the field. In addition, we collected 317 valid responses from family caregivers of older adults from local non-government organizations in examining the psychometric properties of the CNRA.ResultsThe results revealed a 12-factor structure that fitted nicely into the conceptual frame of needs and resources domains. Need factors were positively associated with mental health symptoms, while resource factors were positively associated with peace in mind, meaning-making, and personal gain measures. The 36-item CNRA revealed good internal reliability and convergent validity.DiscussionThe CNRA has the potential to be used as a compact yet balanced assessment tool for understanding both the needs and resources of caregivers for human service professionals.
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Affiliation(s)
- Kin-Kit Li
- Department of Social and Behavioural Sciences, City University of Hong Kong, Kowloon, Hong Kong SAR, China
- *Correspondence: Kin-Kit Li,
| | - Cyrus L. K. Leung
- The Jockey Club School of Public Health and Primary Care, The Chinese University of Hong Kong, Shatin, Hong Kong SAR, China
- Cyrus L. K. Leung,
| | - Dannii Yeung
- Department of Social and Behavioural Sciences, City University of Hong Kong, Kowloon, Hong Kong SAR, China
| | - Marcus Y. L. Chiu
- School of Health and Wellbeing, University of Bolton, Bolton, United Kingdom
- Centre for Mental Health and Society, Bangor University, Bangor, United Kingdom
| | - Alice M. L. Chong
- Felizberta Lo Padilla Tong School of Social Sciences, Caritas Institute of Higher Education, Tseung Kwan O, New Territories, Hong Kong SAR, China
| | - Beck C. Y. Lam
- Department of Social and Behavioural Sciences, City University of Hong Kong, Kowloon, Hong Kong SAR, China
- Felizberta Lo Padilla Tong School of Social Sciences, Caritas Institute of Higher Education, Tseung Kwan O, New Territories, Hong Kong SAR, China
| | - Edwin K. H. Chung
- Department of Social and Behavioural Sciences, City University of Hong Kong, Kowloon, Hong Kong SAR, China
| | - T. Wing Lo
- Department of Social and Behavioural Sciences, City University of Hong Kong, Kowloon, Hong Kong SAR, China
- Caritas Institute of Higher Education, Tseung Kwan O, New Territories, Hong Kong SAR, China
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Shim K, Shin H. Describing the Ecology of Parenting Based on Preschool Mothers' Social Relationships in Korea: An Ecological Theory Approach. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH 2022; 19:15864. [PMID: 36497939 PMCID: PMC9740958 DOI: 10.3390/ijerph192315864] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 10/05/2022] [Revised: 11/21/2022] [Accepted: 11/24/2022] [Indexed: 06/17/2023]
Abstract
Mothers' social networks are important to their children's health but still remains poorly understood in Korea. The purpose of the study was to explore the elements of social relationships in Korean preschool mothers to describe their parenting ecology. Data were collected from interviews with 32 mothers according to the Social Network Interview questionnaire and from their seven-day diaries describing their daily social relationships. Eleven ecological elements were identified. The social relationships of these mothers involved seven types of people: relatives, mothers of their children's friends, kindergarten and learning center teachers, domestic workers providing parenting support, husbands, friends, and children's friends. The mothers' social relationships were also associated with four location types: kindergartens, private learning centers, health services centers, and private entertainment centers. The strongest element of the ecology of parenting in terms of frequency was relatives, followed by the mothers of their children's friends and kindergarten teachers; for the location, the strongest was kindergartens, followed by private learning centers and health services centers. In conclusion, the strongest elements in parenting ecology should be evaluated during the assessment of children's growth and development, and incorporated in the assessment tools used.
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Affiliation(s)
- Kaka Shim
- Department of Nursing, Sangmyung University, Cheonan-si 31066, Republic of Korea
| | - Hyunsook Shin
- College of Nursing Science, Kyung Hee University, Seoul 02447, Republic of Korea
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Kelly KJ, Doucet S, Luke A, Azar R, Montelpare W. Experiences, Motivations, and Perceived Impact of Participation in a Facebook-Based Support Group for Caregivers of Children and Youth With Complex Care Needs: Qualitative Descriptive Study. JMIR Pediatr Parent 2022; 5:e33172. [PMID: 35793139 PMCID: PMC9301556 DOI: 10.2196/33172] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 08/26/2021] [Revised: 05/03/2022] [Accepted: 06/06/2022] [Indexed: 11/13/2022] Open
Abstract
BACKGROUND Caregivers of children and youth with complex care needs (CCNs) often require considerable support to ensure the well-being of their families. Social media present an opportunity to better support caregivers through computer-mediated communication for social support. Peer-to-peer (P2P) support groups are a way in which caregivers are accessing needed support; however, the experiences of caregivers who use these groups and the perceived impact that participation has on caregivers of children and youth with CCNs are not known. OBJECTIVE This study aimed to explore the experiences of caregivers of children and youth with CCNs who use a Facebook-based P2P support group to communicate, understand their motivations to use the group, and investigate its perceived impact on knowledge of programs and services and sense of community belonging among caregivers. METHODS A qualitative descriptive design was used to explore the experiences and perceived impact of a Facebook-based (Meta Platforms) P2P support group for caregivers of children and youth with CCNs in New Brunswick, Canada. The group was launched on the web in October 2020, during the COVID-19 pandemic, and resulted in 108 caregivers joining the group. A web-based survey was distributed, and semistructured interviews were conducted in February 2021 with a subsample of members. Thematic analysis was used to identify and report patterns related to caregivers' experiences and perceived impacts of participation. RESULTS A subsample of members in the Facebook group completed the web-based survey (39/108, 36.1%) and interviews (14/108, 12.9%). A total of 5 themes emerged from the interviews: safe space, informational support and direction, web-based connection with peers, impact on knowledge of programs and services, and degree of community belonging. Participants reported joining the group to obtain geography-specific information support and connect with peers. Many participants reported an improvement in their knowledge of programs and services and felt connected to the community; however, the short observation period and diversity among the caregiver population were cited as barriers to community belonging. CONCLUSIONS Social media present an important opportunity to facilitate the exchange of support between patients and caregivers in an accessible and curated environment. Findings from this study suggest that involvement in web-based, geography-specific P2P support groups can influence perceived knowledge of services and resources and sense of community belonging among caregivers of children and youth with CCNs. Furthermore, this study provides insight into the experiences and motivations of caregivers of children and youth with CCNs who participate in a private social media environment.
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Affiliation(s)
- Katherine Jennifer Kelly
- Health Centred Research Clinic, Department of Applied Human Sciences, University of Prince Edward Island, Charlottetown, PE, Canada
| | - Shelley Doucet
- Centre for Research in Integrated Care, Department of Nursing and Health Sciences, University of New Brunswick Saint John, Saint John, NB, Canada
| | - Alison Luke
- Centre for Research in Integrated Care, Department of Nursing and Health Sciences, University of New Brunswick Saint John, Saint John, NB, Canada
| | - Rima Azar
- Psychobiology of Stress & Health Lab, Department of Psychology, Mount Alison University, Sackville, NB, Canada
| | - William Montelpare
- Health Centred Research Clinic, Department of Applied Human Sciences, University of Prince Edward Island, Charlottetown, PE, Canada
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Galano MM, Grogan-Kaylor A, Clark HM, Stein SF, Graham-Bermann SA. Profiles of Traumatic Stress Symptoms in Children Exposed to Intimate Partner Violence. JOURNAL OF INTERPERSONAL VIOLENCE 2021; 36:NP10863-NP10885. [PMID: 31566059 DOI: 10.1177/0886260519877938] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 06/10/2023]
Abstract
Childhood exposure to intimate partner violence (IPV) is associated with a host of problems, including the development of posttraumatic stress symptoms (PTSS). PTSS include a wide range of unique symptomatology and as a result, clinical presentations of PTSS can vary in both distribution and overall number of symptoms. Work in child and adolescent samples has largely focused on factors predicting the total number of symptoms (i.e., symptom severity), with less work focused on both patterns of symptom number and distribution. Furthermore, few studies have examined how functional impairment varies in relation to PTSS presentation. The goal of the current study is to (a) document patterns of PTSS severity and distribution in children with histories of witnessing IPV, (b) examine the factors that predict different PTSS presentations, and (c) investigate how PTSS presentation is associated with functional impairment. Data for this study were drawn from a sample of 236 children between the ages of 4 and 12 years and their mothers who had experienced recent IPV. Families reported high levels of IPV in the past year, and children reported moderate levels of PTSS. A latent profile analysis of PTSS revealed that three profiles were the best-fitting model for the data. The three profiles were differentiated between low, moderate, and high levels of PTSS, and membership in the profiles varied by children's age and trauma history. The results of this study give important information about the potential development of PTSS as well as clinically useful information about the relationship between children's PTSS and their functioning following exposure to IPV.
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Işik M, Demir M. The relationship between overactive bladder and attachment: A preliminary study. Neurourol Urodyn 2021; 40:1175-1181. [PMID: 33846996 DOI: 10.1002/nau.24675] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 02/10/2021] [Revised: 03/12/2021] [Accepted: 03/27/2021] [Indexed: 12/29/2022]
Abstract
AIM There are strong relationships between overactive bladder (OAB) and psychological factors. The aim of this study was to examine the relationship between OAB and attachment. METHODS Patients who presented with OAB symptoms and were first diagnosed with OAB were included in the study. Patient and control groups were matched in terms of age and gender. A urological and psychiatric examination was performed on each participant. The severity of patients' OAB symptoms was assessed using the Overactive Bladder-V8 Questionnaire (OAB-v8). The characteristics of attachment patterns were evaluated using The Close Relationships Scale Revised. RESULTS The OAB and control groups included 41 and 43 participants, respectively. No significant difference was found between the two groups with regard to alcohol abuse, daily cigarette consumption, marital status, and gender. The prevalence of anxious attachment was significantly higher in the OAB group than in the control group (p < 0.001), whereas no significant difference was found with regard to avoidant attachment (p = 0.18). A significant relationship was found between the OAB-v8 score and anxious attachment in OAB patients (r = 0.50; p < 0.001). CONCLUSIONS Our findings suggest that insecure attachment, especially anxious attachment is associated with OAB and the severity of OAB symptoms. More extensive and longitudinal studies can better show the relationship between attachment and OAB. Future research may focus on the possibility of causality between attachment and OAB.
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Affiliation(s)
- Mesut Işik
- Department of Psychiatry, Faculty of Medicine, Yuzuncu Yil University, Van, Turkey
| | - Murat Demir
- Department of Urology, Faculty of Medicine, Yuzuncu Yil University, Van, Turkey
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Maddocks S, Chetty V. Burden of caring for children living with human immunodeficiency virus in a semi-rural South African community. S Afr Fam Pract (2004) 2020; 62:e1-e5. [PMID: 32633994 PMCID: PMC8377773 DOI: 10.4102/safp.v62i1.5110] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Download PDF] [Journal Information] [Subscribe] [Scholar Register] [Received: 03/13/2020] [Accepted: 03/13/2020] [Indexed: 11/01/2022] Open
Abstract
Background Methods Results Conclusion
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Affiliation(s)
- Stacy Maddocks
- Discipline of Physiotherapy, School of Health Sciences, University of KwaZulu-Natal, Durban.
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Payne H, Brooks SD. Medically Unexplained Symptoms and Attachment Theory: The BodyMind Approach®. Front Psychol 2019; 10:1818. [PMID: 31780974 PMCID: PMC6851196 DOI: 10.3389/fpsyg.2019.01818] [Citation(s) in RCA: 9] [Impact Index Per Article: 1.5] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Subscribe] [Scholar Register] [Received: 10/28/2018] [Accepted: 07/22/2019] [Indexed: 12/20/2022] Open
Abstract
This article discusses how The BodyMind Approach® (TBMA) addresses insecure attachment styles in medically unexplained symptoms (MUS). Insecure attachment styles are associated with adverse childhood experiences (ACEs) and MUS (Adshead and Guthrie, 2015) and affect sufferers’ capacity to self-manage. The article goes on to make a new hypothesis to account for TBMA’s effectiveness (Payne and Brooks, 2017), that is, it addresses insecure attachment styles, which may be present in some MUS sufferers, leading to their capacity to self-manage. Three insecure attachment styles (dismissive, pre-occupied and fearful) associated with MUS are discussed. TBMA is described and explanations provided of how TBMA has been specifically designed to support people’s insecure attachment styles. Three key concepts to support insecure attachment styles involved in the content of TBMA are identified and debated: (a) emotional regulation; (b) safety; and (c) bodymindfulness. There is a rationale for the design of TBMA as opposed to psychological interventions for this population. The programme’s structure, facilitation and content, takes account of the three insecure attachment styles above. Examples of how TBMA works with their specific characteristics are presented. TBMA has been tested and found to be effective during delivery in the United Kingdom National Health Service (NHS). Improved self-management has potential to reduce costs for the NHS and in General Practitioner time and resources.
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Affiliation(s)
- Helen Payne
- School of Education, University of Hertfordshire, Hertfordshire, United Kingdom
| | - Susan D Brooks
- School of Education, University of Hertfordshire, Hertfordshire, United Kingdom
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Fernández Sánchez H, Hernández CBE, Sidani S, Osorio CH, Contreras EC, Mendoza JS. Dance Intervention for Mexican Family Caregivers of Children With Developmental Disability: A Pilot Study. J Transcult Nurs 2019; 31:38-44. [PMID: 30947622 DOI: 10.1177/1043659619838027] [Citation(s) in RCA: 4] [Impact Index Per Article: 0.7] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/16/2022] Open
Abstract
Introduction: There are 7.1 million people living with a disability in Mexico. Of these individuals, 7% are children and adolescents with developmental disabilities. Mexican women caring for children with a developmental disability are at risk of psychological stress, which may be prevented with physical activity such as dance. Therefore, the purpose of this pilot study was to examine (a) the feasibility of implementing the dance intervention, (b) the mothers' satisfaction with the intervention, and (c) the changes in stress level experienced by the mothers on completion of the intervention. Method: A one-group pretest-posttest design was used. The Salsa dance intervention was given in nine 60-minute sessions, twice a week in Veracruz, Mexico. The sample included 14 mothers of children with disabilities. The outcome, stress level, was measured with the validated Questionnaire of Perceived Stress. Feasibility of intervention implementation was maintained by having the interventionist follow the interventionist manual. Satisfaction was assessed by the Satisfaction with Therapy and Therapist Scale. Results: The intervention was feasible as all participants completed the intervention sessions. They reported high satisfaction (100%) with the intervention and interventionist. At posttest, participants showed reduced stress levels (p = .028). Discussion: The dance intervention is promising in reducing women's stress levels and worth further development in order to benefit the Mexican women caring for children with developmental disability and experiencing stress. Nurses can implement the Salsa dance intervention with the Mexican population while improving the clients' retention, outcomes, and overall satisfaction.
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Pilot Randomized Trial of a Family Management Efficacy Intervention for Caregivers of African American Adolescents with Disruptive Behaviors. CHILD & YOUTH CARE FORUM 2018. [DOI: 10.1007/s10566-018-9462-1] [Citation(s) in RCA: 3] [Impact Index Per Article: 0.4] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 01/18/2023]
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Negri L, Piazza G, Sartori RDG, Cocchi MG, Delle Fave A. The adult carer quality of life questionnaire (AC-QoL): comparison with measures of burden and well-being, and Italian validation. Disabil Rehabil 2018; 41:1207-1216. [PMID: 29316811 DOI: 10.1080/09638288.2017.1423519] [Citation(s) in RCA: 6] [Impact Index Per Article: 0.9] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 10/18/2022]
Abstract
PURPOSE Family caregivers are essential assets in the rehabilitation process, and their psychophysical health should represent a concern for healthcare services. This study aims to investigate the psychometric properties of the Adult Carer Quality of Life Questionnaire, Italian version, and its convergent-discriminant validity with measures of caring burden, resilience, health, and well-being. MATERIALS AND METHODS Participants were 591 parents (89.2% females; aged 25-69) of children treated as outpatients in 14 centers of "Istituto Medea - La Nostra Famiglia", an Italian rehabilitation institution. They completed: Adult Carer Quality of Life Questionnaire, a 40-item scale assessing care-related challenges, resources, and benefits; Caregiver Burden Inventory; Resilience Scale for Adults; Satisfaction With Life Scale; Health Survey SF-36. The psychometric properties of the Adult Carer Quality of Life Questionnaire were investigated through exploratory and confirmatory factor analyses and reliability evaluation; correlation coefficients assessed convergent and discriminant validity with burden and well-being measures. RESULTS The original eight-factor structure of the Adult Carer Quality of Life Questionnaire showed good adequacy and internal consistency; convergent and discriminant validity with measures of burden, resilience, satisfaction, physical and mental health were satisfactory. CONCLUSIONS The Italian version of the Adult Carer Quality of Life Questionnaire is a reliable and valid instrument to assess caregivers' perceived challenges and resources. As a parsimonious and easily administrable tool, it can be used to evaluate caregivers' quality of life and related interventions. Implications for Rehabilitation Family caregivers are essential assets for the rehabilitation process, and their challenges and resources need to be considered by healthcare services. Information on caregivers' frailties to be reduced and strengths to be empowered allows to design interventions promoting well-being and social integration of people with disabilities and their families. The Adult Carer Quality of Life is a comprehensive measure of burden and well-being dimensions that can be easily administered to caregivers of any age.
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Affiliation(s)
- Luca Negri
- a Dipartimento di Fisiopatologia Medico-Chirurgica e dei Trapianti , Università degli Studi di Milano , Milano , Italia.,b IRCCS Eugenio Medea - La Nostra Famiglia , Bosisio Parini , Italia
| | - Gianna Piazza
- b IRCCS Eugenio Medea - La Nostra Famiglia , Bosisio Parini , Italia
| | - Raffaela D G Sartori
- b IRCCS Eugenio Medea - La Nostra Famiglia , Bosisio Parini , Italia.,c Dipartimento di Scienze Biomediche e Cliniche "Luigi Sacco" , Università degli Studi di Milano , Milano , Italia
| | - Mario G Cocchi
- b IRCCS Eugenio Medea - La Nostra Famiglia , Bosisio Parini , Italia
| | - Antonella Delle Fave
- a Dipartimento di Fisiopatologia Medico-Chirurgica e dei Trapianti , Università degli Studi di Milano , Milano , Italia.,b IRCCS Eugenio Medea - La Nostra Famiglia , Bosisio Parini , Italia
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Dambi JM, Jelsma J, Mlambo T. Caring for a child with Cerebral Palsy: The experience of Zimbabwean mothers. Afr J Disabil 2015; 4:168. [PMID: 28730030 PMCID: PMC5433478 DOI: 10.4102/ajod.v4i1.168] [Citation(s) in RCA: 27] [Impact Index Per Article: 2.7] [Reference Citation Analysis] [Abstract] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 10/28/2014] [Accepted: 06/15/2015] [Indexed: 11/29/2022] Open
Abstract
BACKGROUND The needs of caregivers of children with disability may not be recognized despite evidence to suggest that they experience increased strain because of their care-giving role. This strain may be exacerbated if they live in under-resourced areas. OBJECTIVES We set out to establish the well-being of caregivers of children with Cerebral Palsy (CP) living in high-density areas of Harare, Zimbabwe. In addition, we wished to identify factors that might be predictive of caregivers' well-being. Finally, we examined the psychometric properties of the Caregiver Strain Index (CSI) within the context of the study. METHOD Caregivers of 46 children with CP were assessed twice, at baseline, and after three months, for perceived burden of care and health-related quality of life (HRQoL) using CSI and EQ-5D respectively. The psychometric properties of the CSI were assessed post hoc. RESULTS The caregivers reported considerable caregiver burden with half of the caregivers reporting CSI scores in the 'clinical distress' range. Many of the caregivers experienced some form of pain, depression and expressed that they were overwhelmed by the care-giving role. No variable was found to be associated with clinical distress. The CSI demonstrated good overall internal consistency (Cronbach's Alpha = 0.8), stability over time (Z = 0.87, p = 0.381) and was significantly and negatively correlated with the EQ-5D VAS (Spearman's rho = -0.33, p = 0.027), demonstrating concurrent validity. CONCLUSION Caregivers must be monitored routinely for their level of distress and there is an urgent need to provide them with support. The CSI is likely to be a valid measure of distress in this population.
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Affiliation(s)
| | - Jennifer Jelsma
- Department of Health and Rehabilitation Sciences, University of Cape Town, South Africa
| | - Tecla Mlambo
- Department of Rehabilitation, University of Zimbabwe, Zimbabwe
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Williams NA, Hankey M. Support and negativity in interpersonal relationships impact caregivers' quality of life in pediatric food allergy. Qual Life Res 2014; 24:1369-78. [PMID: 25394894 DOI: 10.1007/s11136-014-0862-x] [Citation(s) in RCA: 17] [Impact Index Per Article: 1.5] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 11/07/2014] [Indexed: 11/25/2022]
Abstract
PURPOSE This study examined interpersonal relationship processes as they relate to health-related quality of life (HRQL) in caregivers of food-allergic children. Research questions explored the relative contributions of social support and social negativity to caregivers' adaptation as well as mechanisms of moderation, mediation, and moderated mediation through which these influences affect the association of time since children's food allergy diagnosis to caregivers' HRQL. METHODS Caregivers (N = 299) of food-allergic children were recruited from parent groups associated with a food allergy nonprofit organization. Participants completed web-based questionnaires assessing demographics and child allergy characteristics, the extent of support and negativity experienced in their social relationships related caregiving, and their HRQL. Multiple regression analyses were used to examine relations among time since diagnosis, interpersonal relationship processes, and caregiver HRQL. RESULTS Social negativity was directly related to diminished caregiver HRQL and was a stronger predictor of caregiver HRQL than social support. The effect of time since diagnosis on caregiver HRQL was indirect through social support, and this mediating effect did not depend on caregivers' experience of social negativity. CONCLUSIONS Interpersonal relationship processes appear influential in the adaptation of caregivers in the context of pediatric food allergy. Psychosocial interventions targeting support and negativity in caregivers' social relationships may help improve their HRQL.
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Affiliation(s)
- Natalie A Williams
- Department of Child, Youth and Family Studies, University of Nebraska-Lincoln, 131 Home Economics Building, Lincoln, NE, 68588-0236, USA,
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