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Bulut M, Reyhan AH. A Quality Assessment of YouTube Videos on Chalazia: Implications for Patient Education and Healthcare Professional Involvement. Cureus 2025; 17:e78043. [PMID: 40013173 PMCID: PMC11862864 DOI: 10.7759/cureus.78043] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 01/27/2025] [Indexed: 02/28/2025] Open
Abstract
BACKGROUND YouTube has become a popular source of health information for patients. However, the quality and reliability of videos related to a chalazion, a common eyelid condition, have not yet been thoroughly evaluated. RESEARCH DESIGN AND METHODS One hundred YouTube videos were evaluated using keywords such as "chalazion surgery" and "chalazion removal". Two ophthalmologists assessed the videos using the DISCERN, the Journal of the American Medical Association (JAMA), and Global Quality Scale (GQS) scoring systems and recorded the source of each video. RESULTS Analysis revealed low average DISCERN (33.0), JAMA (2.0), and GQS (2.5) scores, indicating poor quality and reliability. Most videos (64%) were classified as "poor" quality, with only a small percentage rated "good" or "excellent". Higher-quality content exhibited positive correlations with engagement metrics. CONCLUSION YouTube videos concerning a chalazion generally lack quality and credibility and are not sufficient for providing reliable patient information. This study emphasizes the need for healthcare professionals to refer patients to trustworthy sources for the creation of high-quality, unbiased content.
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Affiliation(s)
- Mübeccel Bulut
- Ophthalmology, Necip Fazıl City Hospital, Kahramanmaraş, TUR
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D'Ambrosi R, Bellato E, Bullitta G, Cecere AB, Corona K, De Crescenzo A, Fogliata V, Micheloni GM, Saccomanno MF, Vitullo F, Celli A. TikTok and frozen shoulder: a cross-sectional study of social media content quality. J Orthop Traumatol 2024; 25:57. [PMID: 39581922 PMCID: PMC11586316 DOI: 10.1186/s10195-024-00805-y] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 02/17/2024] [Accepted: 11/07/2024] [Indexed: 11/26/2024] Open
Abstract
PURPOSE This study aimed to assess the validity and informational value of the material provided on TikTok regarding frozen shoulders. The hypothesis was that the video content on this platform would not provide adequate and valid information. METHODS The current study focused on frozen shoulder videos on the TikTok social media platform. The terms "frozen shoulder" and/or "adhesive capsulitis" were used as keywords for an extensive online search of video content on TikTok, and the first 100 videos were included. Out-of-topic, non-English, and duplicated videos were excluded from the analysis. The duration and numbers of likes, shares, and views were recorded for each video. Further, videos were categorized based on the source (physiotherapist/osteopath, medical doctor, or private user), type of information (physical therapy, etiopathogenesis, anatomy, clinical examination, patient experience, or symptoms), video content (rehabilitation, education, or patient experience/testimony), and the presence of music or a voice. The assessment of the video content's quality and reliability was performed by two experienced shoulder surgeons using the DISCERN instrument, the Journal of the American Medical Association (JAMA) benchmark criteria, and the Global Quality Score (GQS). RESULTS A total of 100 videos were included in the analysis, of which 86 (86.0%) were published by physiotherapists/osteopaths. Most of the information and video content focused on physical therapy and rehabilitation (83.0% and 84.0%, respectively). Eighty-four (84.0%) videos included voice comments, while the remaining featured music. The mean number of views was 2,142,215.32 ± 6,148,794.63, while the mean numbers of likes, comments, and shares were 58,438.67 ± 201,863.54, 550.81 ± 1712.22, and 3327.43 ± 7320.81, respectively. The mean video duration was 110.20 ± 116.43 s. The mean DISCERN score, JAMA score, and GQS were 16.17 ± 2.36, 0.61 ± 0.51, and 1.18 ± 0.41, respectively. Videos posted by medical doctors or private users received higher scores than those posted by physiotherapists/osteopaths (p < 0.05). CONCLUSIONS The educational value of videos published on TikTok was poor; videos posted by medical doctors exhibited better quality and educational value than those of physiotherapists or osteopaths. It is the responsibility of orthopedic surgeons to investigate the potential benefits, consequences, and implications of TikTok video content for the health of frozen shoulder patients and to propose necessary adjustments. Given the rapid growth of TikTok, further research is needed. LEVEL OF EVIDENCE Level IV-cross-sectional study.
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Affiliation(s)
- Riccardo D'Ambrosi
- IRCCS Ospedale Galeazzi-Sant'Ambrogio, Milan, Italy.
- Department of Biomedical Science for Health, University of Milan, Milan, Italy.
| | - Enrico Bellato
- Department of Surgical Science, University of Turin, Turin, Italy
- San Luigi Gonzaga Hospital, Orbassano, Turin, Italy
| | | | | | - Katia Corona
- Department of Medicine and Health Sciences "Vincenzo Tiberio", University of Molise, Campobasso, Italy
| | - Angelo De Crescenzo
- Ente Ecclesiastico Ospedale Generale F. Miulli, Acquaviva delle Fonti, Bari, Italy
| | - Valentina Fogliata
- UO Chirurgia della Spalla, Cliniche Humanitas Gavazzeni e Castelli, Bergamo, Italy
| | | | - Maristella Francesca Saccomanno
- Department of Medical and Surgical Specialties, Radiological Sciences, and Public Health, University of Brescia, Brescia, Italy
- Department of Bone and Joint Surgery, Spedali Civili, Brescia, Italy
| | | | - Andrea Celli
- Department of Orthopaedic and Traumatology Surgery, Shoulder and Elbow Unit, Hesperia Hospital Modena, Modena, Italy
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Hauber SD, Robinson K, Fechner R, Pate JW, O'Sullivan K. Credibility, readability and content analysis of treatment recommendations for adolescents with nonspecific back pain published on consumer websites. Eur J Pain 2024; 28:1571-1584. [PMID: 38752319 DOI: 10.1002/ejp.2282] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 11/17/2023] [Revised: 05/01/2024] [Accepted: 05/03/2024] [Indexed: 11/05/2024]
Abstract
BACKGROUND Parents may seek out health information online when their adolescent has nonspecific back pain to better understand treatment options. Such information directed towards consumers has not been previously analysed. METHODS A descriptive cross-sectional content analysis was performed to describe the treatments recommended on consumer websites for nonspecific back pain in adolescents. The credibility and readability of the websites were also assessed. Systematic Google searches were completed in five countries, and relevant content from eligible web pages was analysed. An a priori codebook with 34 treatment-related codes was developed. Nine additional codes were inductively created during analysis. Credibility was assessed using the JAMA benchmark. Readability was assessed via the Flesch Kincaid Grade Level. RESULTS Of 245 web pages, 48 were deemed eligible and analysed. Of 43 treatment codes, 37 were present in at least one web page. The five most frequently identified codes were See the doctor/get a diagnosis (found on 85% of web pages), Ergonomics/posture/biomechanics (52%), Reassurance (48%), Physiotherapy (48%) and Non-prescription pharmaceuticals/supplements (46%). Only 21% of the web pages met all four JAMA benchmark criteria, and 15% cited at least one recent or high-quality source. The median Flesch Kincaid Grade Level score was 9.0 (range 3.5-12.9). CONCLUSIONS Parents of adolescents with nonspecific back pain may find that treatment recommendations published online are numerous and varied, with visits to the doctor encouraged. The credibility scores of these web pages are generally low, while the median reading level may be too high for the general population. SIGNIFICANCE STATEMENT This analysis reveals that public-facing websites with recommendations for treating adolescent nonspecific back pain do not cite the most recent, high-quality research. Although web pages correctly encourage physical activity and exercise over surgery and prescription medications, they do not reflect the psychologically informed or interdisciplinary care emphasized in recently published treatment recommendations. Clinicians must be aware that caregivers of their adolescent patients with nonspecific back pain may be exposed to online messages that encourage them to keep seeking a diagnosis.
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Affiliation(s)
- S D Hauber
- School of Allied Health, University of Limerick, Limerick, Ireland
- Health Research Institute, University of Limerick, Limerick, Ireland
| | - K Robinson
- School of Allied Health, University of Limerick, Limerick, Ireland
- Health Research Institute, University of Limerick, Limerick, Ireland
| | - R Fechner
- Graduate School of Health, University of Technology Sydney, Sydney, New South Wales, Australia
- Queensland Interdisciplinary Paediatric Persistent Pain Service, Children's Health Queensland Hospital and Health Service, South Brisbane, Queensland, Australia
| | - J W Pate
- Graduate School of Health, University of Technology Sydney, Sydney, New South Wales, Australia
| | - K O'Sullivan
- School of Allied Health, University of Limerick, Limerick, Ireland
- Health Research Institute, University of Limerick, Limerick, Ireland
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Canbolat O, Dogan Aktas AB, Sipal G, Nurdan K. Evaluation of the quality and content of YouTube videos as an educational resource in developing patients' inhaler use skills. J Asthma 2024; 61:1006-1014. [PMID: 38359086 DOI: 10.1080/02770903.2024.2319846] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 08/29/2023] [Revised: 01/16/2024] [Accepted: 02/12/2024] [Indexed: 02/17/2024]
Abstract
BACKGROUND YouTube has educational videos on inhalers. However, their content and quality are not adequately known. OBJECTIVES This study investigated the quality and content of educational YouTube videos on inhalers. METHODS This descriptive study analyzed 178 YouTube videos on inhalers between May and July 2022. Two researchers independently evaluated the videos. The Global Quality Score (GQS), Journal of American Medical Association (JAMA) Benchmark Criteria, and Inhaler Application Checklist (IAC) were used to assess the quality and content of the videos. Spearman's correlation, Kruskal-Wallis, Mann-Whitney U, ANOVA, and Post hoc analysis Bonferroni test were used for data analysis. RESULTS The videos had a mean GQS score of 3.70 ± 1.24, and JAMA score of 2.22 ± 0.60. A negative correlation was between the quality score of the videos and views, likes, comments, duration, and likes/views (respectively; r = -0.237 p < 0.005, r = -0.217 p < 0.003, r = -0.220 p < 0.005, r = -0.147, p < 0.005). The videos narrated by nurses and doctors had significantly higher mean JAMA and GQS scores than others (p = 0.001). The videos missed some procedural steps [gargling (29.1%), adding no more than five ml of medication and device cleaning (41.9%), and exhaling through the nose (37.5%)]. Videos uploaded by individual missed significantly more procedural steps than professional organizations (p < 0.05). CONCLUSIONS YouTube videos about inhaler techniques have a moderate level of quality. Videos uploaded by doctors and nurses as content narrators were of higher quality. The videos missed some procedural steps. Individual video uploaders had higher missed procedural steps. Counseling should be provided to patients regarding the reliability of online information.
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Affiliation(s)
| | | | - Gulhayat Sipal
- Faculty of Medicine, Cebeci Research and Application Hospital, Ankara University, Ankara, Turkey
| | - Kokturk Nurdan
- Department of Pulmonary and Critical Care, Gazi University School of Medicine, Ankara, Turkey
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Kamalanathan H, Hains L, Bacchi S, Martin WN, Zaka A, Slattery F, Kovoor JG, Gupta AK, Psaltis P, Kovoor P. Listen to your heart: a critical analysis of popular cardiology podcasts. Front Med (Lausanne) 2024; 11:1278449. [PMID: 39104856 PMCID: PMC11299239 DOI: 10.3389/fmed.2024.1278449] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 08/24/2023] [Accepted: 06/27/2024] [Indexed: 08/07/2024] Open
Abstract
Purpose Podcasts are an increasingly popular medium for medical education in the field of cardiology. However, evidence suggests that the quality of the information presented can be variable. The aim of our study was to assess the quality of the most popular cardiology podcasts on existing podcast streaming services, using tools designed to grade online medical education. Results We analyzed the five most recent episodes from 28 different popular cardiology podcasts as of 20th of September, 2022 using the validated rMETRIQ and JAMA scoring tools. The median podcast length was 20 min and most episodes were hosted by professors, subspecialty discussants or consultant physicians (87.14%). Although most episodes had only essential content (85%), only a small proportion of episodes provided detailed references (12.9%), explicitly identified conflicts of interest (30.7%), described a review process (13.6%), or provided a robust discussion of the podcast's content (13.6%). We observed no consistent relationship between episode length, seniority of host or seniority of guest speaker with rMETRIQ or JAMA scores. Conclusions Cardiology podcasts are a valuable remote learning tool for clinicians. However, the reliability, relevance, and transparency of information provided on cardiology podcasts varies widely. Streamlined standards for evaluation are needed to improve podcast quality.
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Affiliation(s)
- Harish Kamalanathan
- Department of Cardiology, Gold Coast University Hospital, Southport, QLD, Australia
| | - Lewis Hains
- Department of Research, School of Medicine, University of Adelaide, Adelaide, SA, Australia
| | - Stephen Bacchi
- College of Medicine and Public Health, Flinders University, Adelaide, SA, Australia
- Department of Research, Royal Adelaide Hospital, Adelaide, SA, Australia
| | - Wrivu N. Martin
- College of Health, Medicine and Wellbeing, The University of Newcastle, Callaghan, NSW, Australia
| | - Ammar Zaka
- Department of Cardiology, Gold Coast University Hospital, Southport, QLD, Australia
| | - Flynn Slattery
- Department of Research, Royal Adelaide Hospital, Adelaide, SA, Australia
| | - Joshua G. Kovoor
- Department of Research, School of Medicine, University of Adelaide, Adelaide, SA, Australia
- Department of Research, Royal Adelaide Hospital, Adelaide, SA, Australia
| | - Aashray K. Gupta
- Department of Cardiology, Gold Coast University Hospital, Southport, QLD, Australia
- Department of Research, School of Medicine, University of Adelaide, Adelaide, SA, Australia
| | - Peter Psaltis
- Department of Research, School of Medicine, University of Adelaide, Adelaide, SA, Australia
- Department of Research, Royal Adelaide Hospital, Adelaide, SA, Australia
| | - Pramesh Kovoor
- Department of Cardiology, Westmead Hospital, Westmead, NSW, Australia
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Murphy EP, Sheridan GA, Page BJ, Greenstein MD, Hoellwarth JS, Fragomen AT, Rozbruch SR. Modern Internet Search Analytics and Osseointegration: What are Patients Asking and Reading Online? Strategies Trauma Limb Reconstr 2023; 18:163-168. [PMID: 38404563 PMCID: PMC10891354 DOI: 10.5005/jp-journals-10080-1603] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 07/12/2023] [Accepted: 12/25/2023] [Indexed: 02/27/2024] Open
Abstract
Background Osseointegration (OI) limb has been performed for over 30 years and is an example of an advance in technology and surgical technique which has led to improvements in patient mobility and quality of life. An increasing number of patients seek information about osseointegration. The aim of this study was to categorise the most frequently asked questions by patients using the Google search engine and the most frequently accessed websites with the highest return on answers. The secondary aims of this study were to assess the quality of the information provided on those websites and to stratify, by category, which websites provide the best quality information. Materials and methods Ten permutations and conjugations of the word 'osseointegration' were entered into Google. The first fifty 'People also ask' and associated websites by Google's machine learning and natural language processing engine were collected for each search term. The Rothwell classification system of questions by topic (Fact, Value, Policy) and websites by category was used (Commercial, Academic, Medical Practice, Single Surgeon Personal, Government, Social Media). Website quality was assessed using the Journal of the American Medical Association (JAMA) benchmark criteria (Likert-style rating 0-4). Pearson's Chi-squared and Student's t-tests were performed for statistical analysis as appropriate (significance, p < 0.05). Results The 10 search terms generated 454 questions and referenced 408 websites. Of the 454 questions generated, the most common question categories were fact (70.8%), value (19.2%), and policy (10%). The most common website type was social media (37.4%). The most common question types were technical details (30.4%), specific activity (20.6%), and cost (14.1%). Only 1.6% of questions related to risks and complications. Generally, website quality was poor with 64.1% having a JAMA score of 0 or 1. Websites that were categorised as 'Government' had the highest overall JAMA scores: 71.4% had a score of 4. Conclusion Based on Google search engine's results, the most commonly asked questions about osteointegration related to technical details, specific activities and cost; only 1.6% related to risks and complications. Interestingly, social media websites represented the highest volume of search result referrals. Overall, the quality of websites was poor with the most factual information coming from governmental websites. How to cite this article Murphy EP, Sheridan GA, Page BJ, et al. Modern Internet Search Analytics and Osseointegration: What Are Patients Asking and Reading Online? Strategies Trauma Limb Reconstr 2023;18(3):163-168.
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Affiliation(s)
| | - Gerard A Sheridan
- University Hospital Galway, Galway, Ireland; Limb Lengthening and Complex Reconstruction Service, Osseointegration Limb Replacement Center, Hospital for Special Surgery, New York, United States of America
| | - Brian J Page
- Limb Lengthening and Complex Reconstruction Service, Osseointegration Limb Replacement Center, Hospital for Special Surgery; Maimonides Medical Center, Brooklyn, New York, United States of America Center, Hospital for Special Surgery, New York, United States of America
| | - Michael D Greenstein
- Limb Lengthening and Complex Reconstruction Service, Osseointegration Limb Replacement Center, Hospital for Special Surgery, New York; University of Michigan Medical School, Ann Arbor, United States of America
| | - Jason S Hoellwarth
- Limb Lengthening and Complex Reconstruction Service, Osseointegration Limb Replacement Center, Hospital for Special Surgery, New York, United States of America
| | - Austin T Fragomen
- Limb Lengthening and Complex Reconstruction Service, Osseointegration Limb Replacement Center, Hospital for Special Surgery, New York, United States of America
| | - S Robert Rozbruch
- Limb Lengthening and Complex Reconstruction Service, Osseointegration Limb Replacement Center, Hospital for Special Surgery, New York, United States of America
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Stevens L, Guo M, Brown ZJ, Ejaz A, Pawlik TM, Cloyd JM. Evaluating the Quality of Online Information Regarding Neoadjuvant Therapy for Pancreatic Cancer. J Gastrointest Cancer 2023; 54:890-896. [PMID: 36327090 DOI: 10.1007/s12029-022-00879-z] [Citation(s) in RCA: 3] [Impact Index Per Article: 1.5] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 10/20/2022] [Indexed: 11/06/2022]
Abstract
PURPOSE Neoadjuvant therapy (NT) is increasingly utilized for patients with localized pancreatic ductal adenocarcinoma (PDAC). Patients with cancer have high information needs and the Internet has materialized as a leading source of information for many patients. Nevertheless, little is known about the availability, accessibility, quality, and readability of online information regarding NT for PDAC. METHODS A search of online patient informational materials (PIMs) pertaining to NT for PDAC was conducted using a combination of common search engines and browsers. Two independent researchers evaluated the readability, quality, and availability of unique PIMs from the top 25 websites from each search using validated measures. RESULTS Among the 130 websites retrieved, 46 (35.4%) unique PIMs focused on treatment of PDAC. Only 30 (23%) mentioned NT as a possible treatment option. Downstaging was the rationale for NT mentioned in the majority (90%) of websites. The mean quality and reliability of the 30 PIMs, assessed using the DISCERN instrument, was 3.3 ± 0.7, suggesting moderate quality/reliability. The mean readability score, assessed using the SMOG Grade tool, was 10.96 ± 1.49, which is equivalent to an 11th grade reading level. CONCLUSION The low availability, poor readability, and moderate quality of online informational materials regarding NT for PDAC highlight the need for new patient-centered resources to educate patients and caregivers on an increasingly utilized treatment strategy for localized PDAC.
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Affiliation(s)
- Lena Stevens
- Department of Surgery, The Ohio State University Wexner Medical Center, 410 W 10th Ave, N-907 Doan Hall, Columbus, OH, 43210, USA
| | - Marissa Guo
- Department of Surgery, The Ohio State University Wexner Medical Center, 410 W 10th Ave, N-907 Doan Hall, Columbus, OH, 43210, USA
| | - Zachary J Brown
- Department of Surgery, The Ohio State University Wexner Medical Center, 410 W 10th Ave, N-907 Doan Hall, Columbus, OH, 43210, USA
| | - Aslam Ejaz
- Department of Surgery, The Ohio State University Wexner Medical Center, 410 W 10th Ave, N-907 Doan Hall, Columbus, OH, 43210, USA
| | - Timothy M Pawlik
- Department of Surgery, The Ohio State University Wexner Medical Center, 410 W 10th Ave, N-907 Doan Hall, Columbus, OH, 43210, USA
| | - Jordan M Cloyd
- Department of Surgery, The Ohio State University Wexner Medical Center, 410 W 10th Ave, N-907 Doan Hall, Columbus, OH, 43210, USA.
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Buschulte K, Höger P, Ganter C, Wijsenbeek M, Kahn N, Kriegsmann K, Wilkens FM, Fisher JH, Ryerson CJ, Herth FJF, Kreuter M. Is the internet a sufficient source of information on sarcoidosis? Front Med (Lausanne) 2023; 10:1217146. [PMID: 37441693 PMCID: PMC10333509 DOI: 10.3389/fmed.2023.1217146] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/04/2023] [Accepted: 06/01/2023] [Indexed: 07/15/2023] Open
Abstract
Introduction Many patients use the internet as a source of health information. Sarcoidosis is a complex disease, and internet resources have not yet been analyzed for reliability and content on sarcoidosis. Aims Our study aimed to investigate the content and the quality of information on sarcoidosis provided by internet resources. Methods Google, Yahoo, and Bing were searched for the term "sarcoidosis," and the first 200 hits were saved in each case. Those websites that met the inclusion criteria (English language, no registration fees, and relevant to sarcoidosis) were then analyzed by two independent investigators for readability, quality (HON, JAMA, and DISCERN), and content (25 predefined key facts) of the provided information. Results The websites were most commonly scientific or governmental (n = 57, 46%), and the median time since the last update was 24 months. Quality was rated with a median JAMA score of 2 (1; 4) and a median overall DISCERN score of 2.4 (1.1; 4.1), both scores represent partially sufficient information. In total, 15% of websites had a HON certificate. Website content measured by the median key fact score was 19 (ranging from 2.5 to 25) with the lowest scores for acute vs. chronic course of the disease, screening for extrapulmonary disease, and diffuse body pain. Poor results were achieved in industry websites and blogs (p = 0.047) with significant differences regarding definition (p = 0.004) and evaluation (p = 0.021). Discussion Sarcoidosis-related content of internet resources is partially sufficient; however, several important aspects are frequently not addressed, and the quality of information is moderate. Future directions should focus on providing reliable and comprehensive information on sarcoidosis; physicians from different disciplines and patients including self-support groups should collaborate on achieving this.
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Affiliation(s)
- Katharina Buschulte
- Center for Interstitial and Rare Lung Diseases, Pneumology and Respiratory Critical Care Medicine, Thoraxklinik, University of Heidelberg, German Center for Lung Research (DZL), Heidelberg, Germany
| | - Philipp Höger
- Center for Interstitial and Rare Lung Diseases, Pneumology and Respiratory Critical Care Medicine, Thoraxklinik, University of Heidelberg, German Center for Lung Research (DZL), Heidelberg, Germany
| | - Claudia Ganter
- Department of Hematology, Oncology and Rheumatology, Innere Medizin V, Heidelberg University Hospital, Heidelberg, Germany
| | - Marlies Wijsenbeek
- Center for Interstitial Lung Diseases and Sarcoidosis, Department of Respiratory Medicine, Erasmus MC-University Medical, Center Rotterdam, Rotterdam, Netherlands
| | - Nicolas Kahn
- Center for Interstitial and Rare Lung Diseases, Pneumology and Respiratory Critical Care Medicine, Thoraxklinik, University of Heidelberg, German Center for Lung Research (DZL), Heidelberg, Germany
| | - Katharina Kriegsmann
- Laborarztpraxis Rhein-Main MVZ GbR, Limbach Gruppe SE, Frankfurt am Main, Germany
| | - Finn M. Wilkens
- Center for Interstitial and Rare Lung Diseases, Pneumology and Respiratory Critical Care Medicine, Thoraxklinik, University of Heidelberg, German Center for Lung Research (DZL), Heidelberg, Germany
| | - Jolene H. Fisher
- Department of Medicine, University of Toronto, Toronto, ON, Canada
| | - Christopher J. Ryerson
- Department of Medicine and Centre for Heart Lung Innovation, University of British Columbia, Vancouver, BC, Canada
| | - Felix J. F. Herth
- Center for Interstitial and Rare Lung Diseases, Pneumology and Respiratory Critical Care Medicine, Thoraxklinik, University of Heidelberg, German Center for Lung Research (DZL), Heidelberg, Germany
| | - Michael Kreuter
- Center for Interstitial and Rare Lung Diseases, Pneumology and Respiratory Critical Care Medicine, Thoraxklinik, University of Heidelberg, German Center for Lung Research (DZL), Heidelberg, Germany
- Center for Pulmonary Medicine, Departments of Pneumology, Mainz University Medical Center and of Pulmonary, Critical Care and Sleep Medicine, Marienhaus Clinic Mainz, Mainz, Germany
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Vasireddi N, Hahamyan HA, Kumar Y, Ng MK, Voos JE, Calcei JG. Social media may cause emergent SARMs abuse by athletes: a content quality analysis of the most popular YouTube videos. PHYSICIAN SPORTSMED 2023; 51:175-182. [PMID: 35912528 DOI: 10.1080/00913847.2022.2108352] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 11/09/2022]
Abstract
OBJECTIVES Selective Androgen Receptor Modulators (SARMs) social media interest is at an all-time high. The aim of this study is to analyze the: (1) quality; (2) educational content; and (3) reliability of the most relevant YouTube videos on SARMs to explain growing SARMs abuse by recreational and professional athletes. METHODS 'SARMs' was queried (28 November 2021) through the YouTube video library. The top 100 videos filtered by relevance were categorized by source, type of content, educational quality by Global Quality Score (GQS), reliability by Journal of American Medicine Association (JAMA) criteria, YouTube tags, attitude toward SARMs use, and whether the video provided specific support on how to use SARMs. For all outcome variables, descriptive statistics and comparison among source types and category types were performed. RESULTS Mean JAMA score was 1.6 ± 0.7 out of 4. Mean GQS score was 2.5 ± 1.1 out of 5. Patient videos were of lower educational quality than athletic trainer videos (GQS: 2.11 ± 0.95 vs. 2.95 ± 1.00, p < 0.01), and videos categorized as user experience were of lower educational quality than videos categorized as general SARMs information (GQS: 1.92 ± 0.90 vs. 2.72 ± 1.07, p < 0.05). User experience and dosing recommendation videos were statistically significantly more positive in attitude than both general SARMs information and SARMS vs. other PEDs. CONCLUSION Quality, content, and reliability of SARMs YouTube videos was low. Social media likely causes SARMs abuse through disseminating biased SARMs misinformation. These results serve to educate public health oversight bodies, healthcare providers, and sports team members to better identify signs of SARMs abuse, and promote discussion to discourage SARMs abuse.
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Affiliation(s)
- Nikhil Vasireddi
- Department of Orthopaedics, Case Western Reserve University School of Medicine, Cleveland, OH, USA
| | - Henrik A Hahamyan
- Division of Cardiovascular Medicine, Vanderbilt University Medical Center, Nashville, TN, USA
| | - Yash Kumar
- Department of Orthopaedics, Case Western Reserve University School of Medicine, Cleveland, OH, USA
| | - Mitchell K Ng
- Department of Orthopaedic Surgery, Maimonides Medical Center, Brooklyn, NY, USA
| | - James E Voos
- Department of Orthopaedics, Case Western Reserve University School of Medicine, Cleveland, OH, USA
- Department of Orthopaedic Surgery, University Hospitals Cleveland Medical Center, Cleveland, OH, USA
- University Hospitals Sports Medicine Institute, Cleveland, OH, USA
| | - Jacob G Calcei
- Department of Orthopaedics, Case Western Reserve University School of Medicine, Cleveland, OH, USA
- Department of Orthopaedic Surgery, University Hospitals Cleveland Medical Center, Cleveland, OH, USA
- University Hospitals Sports Medicine Institute, Cleveland, OH, USA
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Sun X, Zhou W, Feng Y. Mobile healthcare platforms' sustainability: The perspective of health information quality. Front Public Health 2023; 10:1059252. [PMID: 36685000 PMCID: PMC9853185 DOI: 10.3389/fpubh.2022.1059252] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.5] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 10/16/2022] [Accepted: 12/08/2022] [Indexed: 01/09/2023] Open
Abstract
As an emerging form of medical organization, Chinese mobile healthcare (mHealth) platforms are inherently linked to the continuous use of users, which depends on the quality of the health information provided. However, improving the health information quality of mHealth platforms is still a problem that needs to be studied and solved in order to make the platforms sustainable. Based on the reputation mechanism, this study creates a behavioral evolutionary game model for health information providers (physicians) and managers (mHealth platforms), explores the evolution process and evolutionarily stable strategy of the behaviors in various situations, and uses numerical simulation technology to analyze mHealth platforms' constraints and the influencing factors of health information quality. This study presents three key findings. First, considering reputation, health information managers and mHealth platform providers should not unilaterally optimize health information. Instead, mHealth platforms should have active quality control, and physician groups should provide high-quality health information, which is the ideal evolution of the model. Second, the rewards that physicians receive from patients and mHealth platforms for providing quality health information, the reputation benefits, the penalties that physicians suffer for providing low-quality health information, and the increased probability and cost of rent-seeking behavior that physicians may choose can effectively promote the choice of physicians to provide high-quality health information. Third, the reputation gain of mHealth platforms, the probability of mHealth platforms being exposed, and increased losses suffered from exposure can effectively promote the choice of mHealth platforms to control the quality of health information. This study can provide a theoretical basis for mHealth platforms' health information quality control, which is conducive to the healthy and sustainable development of mHealth platforms and the improvement of user satisfaction.
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Affiliation(s)
- Xiaoyang Sun
- School of Finance and Economics, Jiangsu University, Zhenjiang, China
| | - Wenjing Zhou
- School of Finance and Economics, Jiangsu University, Zhenjiang, China
| | - Ying Feng
- School of Management, Jiangsu University, Zhenjiang, China
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11
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Kornea nakli konusunda YouTube videoları ne kadar güvenilir bilgi sağlıyor? ANADOLU KLINIĞI TIP BILIMLERI DERGISI 2022. [DOI: 10.21673/anadoluklin.1176568] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/23/2022] Open
Abstract
Amaç
YouTube üzerinden yayınlanan videolarda kornea nakli hakkında verilen bilgilerin ne denli güvenilir olduğunu değerlendirmek.
Yöntemler
YouTube üzerinden video arama motoruna “kornea nakli” yazıldıktan sonra ekranda beliren ilk 100 video 04.03.2022 tarihinde listelenmiştir. Yükleme tarihi, yayın süresi, toplam izlenme sayısı, günlük izlenme oranı, video kaynağı ve süresi (saniye), beğeni ve yorum sayısı kaydedilen parametrelerdi. İki oftalmolog, videoları JAMA, DISCERN ve Global Quality (GQ) endekslerini kullanarak körü körüne ve bağımsız olarak değerlendirdi ve puanladı.
Bulgular
Videoların kaynağı değerlendirildiğinde, 10 videonun göz hastalıkları uzmanı tarafından yüklendiği, 35 videonun televizyon programından belli bir bölüm içerdiği, 14 videonun herhangi bir sağlık kuruluşu ve 22 videonun ise diğer kaynaklar tarafından yüklendiği tespit edilmiştir. Kaynağı televizyon programı olan videoların süresinin anlamlı olarak (p
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Özduran E, Hanci V. Evaluating the readability, quality and reliability of online information on Behçet’s disease. Reumatismo 2022; 74. [DOI: 10.4081/reumatismo.2022.1495] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 04/13/2022] [Accepted: 07/07/2022] [Indexed: 11/23/2022] Open
Abstract
There are concerns over the reliability and comprehensibility of health-related information on the internet. The goal of our research was to analyze the readability, reliability, and quality of information obtained from websites associated with Behçet’s disease (BD). On September 20, 2021, the term BD was used to perform a search on Google, and 100 eligible websites were identified. The Flesch Reading Ease Score (FRES), Flesch-Kincaid Grade Level (FKGL), and Gunning Fog (GFOG) were used to evaluate the readability of the website. The JAMA score was used to assess the websites’ reliability, the DISCERN score and the Health on the Net Foundation code of conduct (HONcode) were used to assess quality, and Alexa was used to analyze their popularity. Sections of the text were evaluated, and the results revealed that the mean FRES was 35.49±14.42 (difficult) and the mean GFOG was 14.93±3.13 years (very difficult). According to the JAMA scores, 36% of the websites had a high reliability rating and 20% adhered to the HONcode. The readability was found to significantly differ from the reliability of the websites (p<0.05). Moreover, websites with scientific content were found to have higher readability and reliability (p<0.05). The readability of BD-related information on the Internet was found to be considerably higher than that recommended by the National Health Institute’s Grade 6, with moderate reliability and good quality. We believe that online information should have some level of readability and must have reliable content that is appropriate to educate the public, particularly for websites that provide with patient education material.
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Etzel CM, Bokshan SL, Forster TA, Owens BD. A quality assessment of YouTube content on shoulder instability. PHYSICIAN SPORTSMED 2022; 50:289-294. [PMID: 34121601 DOI: 10.1080/00913847.2021.1942286] [Citation(s) in RCA: 16] [Impact Index Per Article: 5.3] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 10/21/2022]
Abstract
OBJECTIVES The Internet is a widely used resource for patients seeking health information, yet little editing or regulations are imposed on posted material. We sought to assess the quality and accuracy of information presented on shoulder instability on the online video platform YouTube. We hypothesize that YouTube videos concerning shoulder instability will be of little quality, accuracy, and reliability. METHODS The first 50 YouTube videos resulting from the keyword query 'shoulder instability' were analyzed. The Journal of American Medical Association (JAMA) benchmark criteria (score range, 0-4) was used to assess video accuracy and reliability, and the Global Quality Score (GQS; score range, 0-5) was used to assess the quality of the video's educational content along with a generated Shoulder-Specific Score (SSS). RESULTS The 50 videos observed collectively had 5,007,486 views, with the mean number of views being 100,149.72 ± 227,218.04. Of all videos observed, 32% were from a medical source and 56% had content relating to pathology information. The mean JAMA score was 2.84 ± 0.74, with the highest scores coming from academic sources. The mean GQS and SSS scores were 2.68 ± 0.84 and 5.30 ± 3.78. The mean GQS score was highest in videos from medical sources (3.3 ± 0.8) and videos about surgical technique/approach (3.2 ± 1.1). Advertisements were negative predictors of the JAMA score (β = -0.324, P = 0.014), and academic (β = 0.322, P = 0.015) and physician sources (β = 0.356, P = 0.008) were positive predictors. CONCLUSION YouTube videos on shoulder instability are of low quality and accuracy and are not reliable. Care providers should be aware of the overall low quality of information available on YouTube regarding shoulder instability.
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Affiliation(s)
| | - Steven L Bokshan
- Department of Orthopaedics, Brown University, Providence, RI, USA
| | - Timothy A Forster
- Health and Human Biology in Biology Department, Brown University, Providence, RI, USA
| | - Brett D Owens
- Department of Orthopaedics, Brown University, Providence, RI, USA
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KINAY TARAN P, BAKKAL M, MAMMADLİ N. Fluoride and the internet: an assessment of online information available to the public. ACTA ODONTOLOGICA TURCICA 2022. [DOI: 10.17214/gaziaot.947860] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/10/2022] Open
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Sajjadi NB, Ottwell R, Shepard S, Bray N, Dyer R, Wilson J, Vassar M, Hartwell M. Assessing the United States' most frequently asked questions about osteopathic medicine, osteopathic education, and osteopathic manipulative treatment. J Osteopath Med 2022; 122:219-227. [PMID: 35179005 DOI: 10.1515/jom-2021-0281] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 12/01/2021] [Accepted: 12/15/2021] [Indexed: 11/15/2022]
Abstract
CONTEXT Osteopathic medicine in the United States continues to produce a substantial number of physicians and medical educators. However, recently popularized misconceptions about osteopathic medical practice, education, and manual therapy suggest an unsettling prevalence of inaccurate beliefs held by the public. The public often searches the internet to find out information about osteopathic medicine, but the content of questions and the transparency of the resulting information is unknown. OBJECTIVES We sought to explore frequently asked questions (FAQs) generated by Google to assess commonly searched questions about the osteopathic profession and to determine the level of information transparency associated with resulting sources. METHODS On June 16, 2021, we searched Google for three terms: "osteopathic medicine," "doctor of osteopathic medicine," and "DO," until a minimum of 100 FAQs and their answer links were extracted from each search. After excluding irrelevant FAQs, we used Rothwell's Classification of Questions to categorize the FAQs. We then used the Journal of the American Medical Association's Benchmark Criteria to assess information transparency for each corresponding answer source provided by Google. The answer sources were screened for the inappropriate use of "osteopathy" in place of "osteopathic medicine" and for "osteopath" in place of "DO," "Doctor of Osteopathic Medicine," or "Osteopathic Physician." We performed statistical tests to ascertain the differences in information transparency between osteopathic and nonosteopathic information sources. RESULTS Our Google search revealed 110 unique FAQs about osteopathic medicine. The majority of FAQs were classified as fact-based (82/110; 74.55%), nearly half of which (45.12%) were related to the medical practicing privileges of DOs. The FAQs were most commonly answered by academic institutions (44/110, 40.0%). Nearly half (49.09%) of the linked answer sources were deemed inadequate by JAMA benchmark criteria. Of the 110 linked answer sources, 19 (17.27%) misused either osteopathy, osteopath, or both to describe osteopathic physicians. Only 30 sources were linked to US-based osteopathic organizations. Osteopathic organizations were statistically less likely to meet high-transparency criteria than nonosteopathic organizations (p=0.002). CONCLUSIONS Our study shows that the US public may be unsure about the physician status of DOs, which may prevent securing the professional identity of osteopathic physicians in the eyes of the public. Osteopathic organizations should tailor awareness campaigns toward addressing the common misconceptions revealed by our study. Osteopathic organizations should use transparency criteria as a rubric when publishing information to enhance transparency.
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Affiliation(s)
- Nicholas B Sajjadi
- Office of Medical Student Research, College of Osteopathic Medicine, Oklahoma State University Center for Health Sciences, Tulsa, OK, USA
| | - Ryan Ottwell
- Office of Medical Student Research, College of Osteopathic Medicine, Oklahoma State University Center for Health Sciences, Tulsa, OK, USA
| | - Samuel Shepard
- Office of Medical Student Research, College of Osteopathic Medicine, Oklahoma State University Center for Health Sciences, Tulsa, OK, USA
| | - Natasha Bray
- Office of Medical Student Research, College of Osteopathic Medicine, Oklahoma State University Center for Health Sciences, Tulsa, OK, USA.,Department of Osteopathic Manipulative Medicine, College of Osteopathic Medicine, Oklahoma State University Center for Health Sciences, Tulsa, OK, USA
| | - Robin Dyer
- Office of Medical Student Research, College of Osteopathic Medicine, Oklahoma State University Center for Health Sciences, Tulsa, OK, USA.,Department of Osteopathic Manipulative Medicine, College of Osteopathic Medicine, Oklahoma State University Center for Health Sciences, Tulsa, OK, USA
| | - Jennifer Wilson
- Office of Medical Student Research, College of Osteopathic Medicine, Oklahoma State University Center for Health Sciences, Tulsa, OK, USA.,Department of Osteopathic Manipulative Medicine, College of Osteopathic Medicine, Oklahoma State University Center for Health Sciences, Tulsa, OK, USA
| | - Matt Vassar
- Office of Medical Student Research, College of Osteopathic Medicine, Oklahoma State University Center for Health Sciences, Tulsa, OK, USA.,Department of Psychiatry and Behavioral Sciences, College of Osteopathic Medicine, Oklahoma State University Center for Health Sciences, Tulsa, OK, USA
| | - Micah Hartwell
- Office of Medical Student Research, College of Osteopathic Medicine, Oklahoma State University Center for Health Sciences, Tulsa, OK, USA.,Department of Psychiatry and Behavioral Sciences, College of Osteopathic Medicine, Oklahoma State University Center for Health Sciences, Tulsa, OK, USA
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Tyrrell R, Kelly M, Kennedy C. Trochanteric bursitis information on the internet; can we trust the information presented? World J Orthop 2020; 11:473-474. [PMID: 33134110 PMCID: PMC7582108 DOI: 10.5312/wjo.v11.i10.473] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 07/03/2020] [Revised: 09/04/2020] [Accepted: 09/28/2020] [Indexed: 02/06/2023] Open
Abstract
Trochanteric bursitis is one of the most common causes of lateral hip pain in adults. The prevalence of unilateral trochanteric bursitis is 15.0% in women and 8.5% in men. Access to internet based information has increased dramatically and health related information is now one of the most popular searches in online activity, despite this the quality of information can vary. The objective of this paper is to examine the quality and readability of internet based information of trochanteric bursitis. Overall, we have found a high variability among not only the quality but also the readability of information published. Websites that appeared first on each search engine for trochanteric bursitis did not necessarily score better, demonstrating the importance of providing patients with high quality resources. Future articles should use more critical appraisal tools in order to provide the reader with more high quality and readable information.
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Affiliation(s)
- Richard Tyrrell
- Department of Trauma and Orthopaedics, University Hospital Limerick, Limerick V94 F858, Ireland
| | - Martin Kelly
- Department of Trauma and Orthopaedics, University Hospital Limerick, Limerick V94 F858, Ireland
| | - Cian Kennedy
- Department of Trauma and Orthopaedics, University Hospital Limerick, Limerick V94 F858, Ireland
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Conlon L, Baig Z, Moser MAJ. What Information Are Patients Receiving from the Internet about the Operative and Nonoperative Management of Acute Appendicitis? Dig Surg 2020; 37:480-487. [PMID: 32971522 DOI: 10.1159/000510383] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 04/21/2020] [Accepted: 07/19/2020] [Indexed: 12/10/2022]
Abstract
INTRODUCTION Recent studies suggest that nonoperative management of appendicitis (NOMA) may be a reasonable option for managing uncomplicated acute appendicitis. We examined the Internet to see if patients are likely to find the information they need to make an informed decision between the 2 options. METHODS A list of 29 search terms was established by a focus group and then entered into Google, resulting in 49 unique webpages, each reviewed by 3 reviewers. Consensus was obtained for bias (surgery, NOMA, or balanced), webpage type, JAMA score, reading grade, and DISCERN score, a measure of quality of written information for patients. RESULTS Thirty of the 49 websites (61%) favored surgery, while 13 (27%) favored NOMA, and 6 sites (12%) provided balanced information. Twelve of 49 sites (24%) did not list NOMA as an option. The majority of patient-directed (11/12 = 92%) and physician-directed (7/9 = 78%) webpages favored surgery, whereas academic webpages presented a more balanced distribution. Academic and physician-directed webpages ranked higher than commercial and news webpages (median ranks 3 and 4 vs. 7.5 and 8). Only 8/49 sites (16%) mentioned that the presence of a fecalith predicts the failure of NOMA. Reading grades were almost all well above the recommended grade 8 level. CONCLUSION Most of the webpages available on the Internet do not provide enough information, nor are they sufficiently understandable to allow most patients to make an informed decision about the current options for the management of acute appendicitis.
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Affiliation(s)
- Luke Conlon
- School of Medicine, The Royal College of Surgeons, Dublin, Ireland
| | - Zarrukh Baig
- Department of Surgery, University of Saskatchewan, Saskatoon, Saskatchewan, Canada
| | - Michael A J Moser
- Department of Surgery, University of Saskatchewan, Saskatoon, Saskatchewan, Canada,
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Sheridan GA, O’Brien C, Masri BA, Duncan CP, Garbuz DS. Revision total hip arthroplasty: An analysis of the quality and readability of information on the internet. World J Orthop 2020; 11:82-89. [PMID: 32190552 PMCID: PMC7063452 DOI: 10.5312/wjo.v11.i2.82] [Citation(s) in RCA: 12] [Impact Index Per Article: 2.4] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 07/12/2019] [Revised: 10/21/2019] [Accepted: 11/30/2019] [Indexed: 02/06/2023] Open
Abstract
The demand for revision total hip arthroplasty (THA) is increasing. Information quality on the internet has been extensively analysed in relation to primary THA but no such analysis has ever been performed for revision THA. Our aim was to assess the quality and readability of this information. Three major internet search engines were searched for information on revision THA. All websites were assessed for quality of information using the DISCERN score, the Journal of the American Medical Association benchmark criteria and a novel scoring system specific to revision THA [Vancouver Revision Arthroplasty Information (VRAI) score]. Website readability was assessed, as was presence of the Health On the Net Foundation (HON) seal. The majority of websites (52%) were academic with a post-graduate reading level. Only 6.5% of websites had the HON seal. Twenty-eight percent of websites had a ‘good’ DISCERN score and only 28% had a ‘good’ score with the novel VRAI scoring system. Health information websites had significantly higher rates of ‘good’ VRAI scores (P = 0.008). Websites with the HON seal had significantly higher DISCERN scores (P = 0.01). All governmental websites were at a reading level suitable for patient review. Information on the internet relating to revision THA is of low quality, much lower than the quality of information on primary THA. We recommend governmental websites for their readability and health information websites for their quality of information specific to revision THA. Websites with the HON seal provide higher quality information and should be recommended to patients as reading material regarding revision THA.
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Affiliation(s)
- Gerard Anthony Sheridan
- Department of Orthopaedics, University of British Columbia, Vancouver V6T 1Z4, British Columbia, Canada
| | - Carl O’Brien
- Department of Orthopaedics, University of British Columbia, Vancouver V6T 1Z4, British Columbia, Canada
| | - Bassam A Masri
- Department of Orthopaedics, University of British Columbia, Vancouver V6T 1Z4, British Columbia, Canada
| | - Clive P Duncan
- Department of Orthopaedics, University of British Columbia, Vancouver V6T 1Z4, British Columbia, Canada
| | - Donald S Garbuz
- Department of Orthopaedics, University of British Columbia, Vancouver V6T 1Z4, British Columbia, Canada
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Cassa Macedo A, Oliveira Vilela de Faria A, Ghezzi P. Boosting the Immune System, From Science to Myth: Analysis the Infosphere With Google. Front Med (Lausanne) 2019; 6:165. [PMID: 31403046 PMCID: PMC6673706 DOI: 10.3389/fmed.2019.00165] [Citation(s) in RCA: 14] [Impact Index Per Article: 2.3] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 03/27/2019] [Accepted: 07/03/2019] [Indexed: 11/30/2022] Open
Abstract
Background: The concept that one can “boost” immunity is a popular one. Although the only evidence-based approach to this is vaccination, the lay public is exposed to a wide range of information on how to boost immunity. The aim of this study was to analyze such information available on the Internet. Methods and findings: We visited 185 webpages returned from a Google search on “boost immunity” and classified them by typology (blogs, commercial, government, no-profit, news, professional, scientific journals) and by using standard indicators of health information quality (JAMA score, HONCode). We then analyzed their content in terms of disease and “boosters” mentioned. Commercial and news websites represented one third of the results each. Of the 37 approaches to boost immunity recorded, the top ones were diet (77% of webpages), fruit (69%), vitamins (67%), antioxidants (52%), probiotics (51%), minerals (50%), and vitamin C (49%). Interestingly, vaccines ranked 27th, with only 12% of webpages mentioning them. Conclusions: Commercial websites are an important component of the information available to the public on the topic, and thus contribute providing biased information.
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Affiliation(s)
- Arthur Cassa Macedo
- Faculdade de Medicina, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil
| | | | - Pietro Ghezzi
- Brighton & Sussex Medical School, Brighton, United Kingdom
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Meade MJ, Dreyer CW. Evaluation of treatment risks and the quality of information contained within the websites of specialist orthodontists. AUSTRALASIAN ORTHODONTIC JOURNAL 2019. [DOI: 10.21307/aoj-2020-043] [Citation(s) in RCA: 2] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 12/16/2022]
Abstract
Abstract
Objective
To evaluate the treatment risks and the quality of information contained within the websites of specialist orthodontists in Australia.
Methods
The term ‘specialist orthodontic practice’ was entered into three internet search engines. Websites satisfying inclusion and exclusion criteria were evaluated for orthodontic treatment risk information against nine common treatment risks. For website reliability and quality, the DISCERN instrument was used along with the HON (health on the net) seal certification; and for readability, the Flesch Reading Ease (FRE) Test was applied.
Results
Of the 105 websites that met the inclusion and exclusion criteria, 4.8% reported all nine risks. No risks were reported by 17.1%. Relapse (64.8%) was the most common risk recorded on websites, followed by ‘pain/discomfort’ (63.8%). Root resorption was reported by 5.7%. The requirement for life-long retention was indicated by 22.9% of the websites and 57.1% gave advice on sports mouthguard wear. The proposed benefits of orthodontic treatment were outlined by 85.7%. The mean (standard deviation [SD]) overall DISCERN score was 43.78 (SD 6.49; range 17–59). No website displayed the HON Seal certification. The mean FRE Score was 51.71 (SD 10.19; range 30.1–74.7).
Conclusions
Information regarding orthodontic treatment risks contained within specialist orthodontic practice websites appears deficient. Websites were of variable reliability, quality and readability. Further development of specialist orthodontists’ websites is required to ensure the delivery of accessible, reliable and understandable evidence-based information to patients.
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Affiliation(s)
- Maurice J. Meade
- Orthodontic Unit , School of Dentistry , The University of Adelaide , South Australia , Australia
| | - Craig W. Dreyer
- Orthodontic Unit , School of Dentistry , The University of Adelaide , South Australia , Australia
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Widely Accepted Credibility Criteria for Online Health-related Information Are Not Correlated with Content Quality of Stroke Webpages in Two Languages of Central and Eastern European Countries. JOURNAL OF INTERDISCIPLINARY MEDICINE 2018. [DOI: 10.2478/jim-2018-0031] [Citation(s) in RCA: 2] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/21/2022] Open
Abstract
Abstract
Background: Finding accurate health-related information on the Internet may be a real challenge for users lacking the critical skills necessary to assess the validity of online content, even if they browse websites that are compliant with credibility criteria. The aim of the study was to check whether an overall high website credibility or compliance to any of the individual criteria for credibility are correlated/associated with a higher quality of health-related information on a sample of Romanian and Hungarian stroke-related websites.
Methods: The cross-sectional study included a sample of 50 websites presenting stroke for the general population in Romanian and Hungarian language. The websites’ compliance with 12 widely recognized credibility criteria, and the completeness and accuracy of the stroke-related articles found on the respective sites were systematically assessed by two independent evaluators applying a common evaluation procedure.
Results: The mean value of the credibility score was 4.3 points (95% CI: 3.9–4.8), the mean value of the completeness score was 4.8 points (95% CI: 4.2–5.5), and the mean value of the accuracy score was 6.6 points (95% CI: 6.3–6.8). Correlation coefficients between the credibility score and completeness/accuracy score did not reach statistical significance (Spearman rho = 0.038, p = 0.793 and Spearman rho = 0.156, p = 0.278, respectively). With a few exceptions, the t-tests for independent sample comparison have shown no significant differences between websites that complied and those that did not comply with each individual credibility criterion.
Conclusions: The mean credibility score of the Romanian and Hungarian stroke-related websites was poor and it was not correlated with neither completeness nor accuracy of the information displayed on the respective pages. With a few, practically irrelevant exceptions, compliance with individual credibility criteria was not associated with higher content quality on the investigated sample.
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De Martino I, D'Apolito R, McLawhorn AS, Fehring KA, Sculco PK, Gasparini G. Social media for patients: benefits and drawbacks. Curr Rev Musculoskelet Med 2017; 10:141-145. [PMID: 28110391 PMCID: PMC5344865 DOI: 10.1007/s12178-017-9394-7] [Citation(s) in RCA: 82] [Impact Index Per Article: 10.3] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 01/23/2023]
Abstract
PURPOSE OF REVIEW Social media is increasingly utilized by patients to educate themselves on a disease process and to find hospital, physicians, and physician networks most capable of treating their condition. However, little is known about quality of the content of the multiple online platforms patients have to communicate with other potential patients and their potential benefits and drawbacks. RECENT FINDINGS Patients are not passive consumers of health information anymore but are playing an active role in the delivery of health services through an online environment. The control and the regulation of the sources of information are very difficult. The overall quality of the information was poor. Bad or misleading information can be detrimental for patients as well as influence their confidence on physicians and their mutual relationship. Orthopedic surgeons and hospital networks must be aware of these online patient portals as they provide important feedback on the patient opinion and experience that can have a major impact on future patient volume, patient opinion, and perceived quality of care.
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Affiliation(s)
- Ivan De Martino
- Complex Joint Reconstruction Center, Department of Orthopaedic Surgery, Hospital for Special Surgery, 535 East 70th Street, New York, NY, 10021, USA.
| | - Rocco D'Apolito
- Adult Reconstruction and Joint Replacement Division, Department of Orthopaedic Surgery, Hospital for Special Surgery, 535 East 70th Street, New York, NY, 10021, USA
| | - Alexander S McLawhorn
- Adult Reconstruction and Joint Replacement Division, Department of Orthopaedic Surgery, Hospital for Special Surgery, 535 East 70th Street, New York, NY, 10021, USA
| | - Keith A Fehring
- Hip & Knee Center, Ortho Carolina, 2001 Vail Avenue Suite 200A, Charlotte, NC, 28207, USA
| | - Peter K Sculco
- Adult Reconstruction and Joint Replacement Division, Department of Orthopaedic Surgery, Hospital for Special Surgery, 535 East 70th Street, New York, NY, 10021, USA
| | - Giorgio Gasparini
- Orthopedic Surgery Division, Department of Medical and Surgical Sciences, University of Catanzaro Magna Græcia, Viale Europa, Germaneto, 88100, Catanzaro, CZ, Italy
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Xiao Q, Lu S, Wang Y, Sun L, Wu Y. Current Status of Cardiovascular Disease-Related Smartphone Apps Downloadable in China. Telemed J E Health 2016; 23:219-225. [PMID: 27356156 DOI: 10.1089/tmj.2016.0083] [Citation(s) in RCA: 16] [Impact Index Per Article: 1.8] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/13/2022] Open
Abstract
BACKGROUND Smartphone apps present a great opportunity for the management of cardiovascular disease (CVD) as the adoption of apps becomes increasingly popular in China. Yet, little is known about the status of CVD-related Smartphone apps in the country. The aim of this study was to examine the current status of CVD-related smartphone apps available for download in China. MATERIALS AND METHODS Using CVD-related keywords written either in Chinese or English, the top 6 most popular smartphone app online stores in China were searched in September 2015. The information accountability of the selected apps was assessed with the Silberg scale. The key topic areas identified from the European Guidelines on cardiovascular disease prevention served to determine information coverage of the top 5 downloaded apps. RESULTS The average Silberg score of 151 apps was 2.87 (out of 9) with most apps not revealing authors' qualifications and information references. There was also a lack of sponsorship disclosure and information update. Moreover, none of the top 5 downloaded apps covered all key areas of CVD management as recommended by the European Guidelines on cardiovascular disease prevention. There was little evidence of health professionals' involvement in the formation of the CVD-related apps. CONCLUSION This study identified areas for improvement concerning information accountability and the scope of coverage of CVD-related apps downloadable in China. The findings may guide the future advancement of CVD-related apps and benefit CVD management in China.
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Affiliation(s)
- Qian Xiao
- 1 School of Nursing, Capital Medical University , Beijing, China
| | - Sai Lu
- 2 College of Health and Biomedicine, Victoria University , Melbourne, Australia
| | - Yanling Wang
- 1 School of Nursing, Capital Medical University , Beijing, China
| | - Liu Sun
- 1 School of Nursing, Capital Medical University , Beijing, China
| | - Ying Wu
- 1 School of Nursing, Capital Medical University , Beijing, China
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Deutsch MB. Evaluation of Patient-Oriented, Internet-Based Information on Gender-Affirming Hormone Treatments. LGBT Health 2016; 3:200-7. [DOI: 10.1089/lgbt.2015.0116] [Citation(s) in RCA: 14] [Impact Index Per Article: 1.6] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/13/2022] Open
Affiliation(s)
- Madeline B. Deutsch
- Department of Family and Community Medicine, University of California–San Francisco, San Francisco, California
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Grohol JM, Slimowicz J, Granda R. The quality of mental health information commonly searched for on the Internet. CYBERPSYCHOLOGY BEHAVIOR AND SOCIAL NETWORKING 2013; 17:216-21. [PMID: 24237287 DOI: 10.1089/cyber.2013.0258] [Citation(s) in RCA: 49] [Impact Index Per Article: 4.1] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 11/12/2022]
Abstract
Previous research has reviewed the quality of online information related to specific mental disorders. Yet, no comprehensive study has been conducted on the overall quality of mental health information searched for online. This study examined the first 20 search results of two popular search engines-Google and Bing-for 11 common mental health terms. They were analyzed using the DISCERN instrument, an adaptation of the Depression Website Content Checklist (ADWCC), Flesch Reading Ease and Flesch-Kincaid Grade Level readability measures, HONCode badge display, and commercial status, resulting in an analysis of 440 web pages. Quality of Web site results varied based on type of disorder examined, with higher quality Web sites found for schizophrenia, bipolar disorder, and dysthymia, and lower quality ratings for phobia, anxiety, and panic disorder Web sites. Of the total Web sites analyzed, 67.5% had good or better quality content. Nearly one-third of the search results produced Web sites from three entities: WebMD, Wikipedia, and the Mayo Clinic. The mean Flesch Reading Ease score was 41.21, and the mean Flesch-Kincaid Grade Level score was 11.68. The presence of the HONCode badge and noncommercial status was found to have a small correlation with Web site quality, and Web sites displaying the HONCode badge and commercial sites had lower readability scores. Popular search engines appear to offer generally reliable results pointing to mostly good or better quality mental health Web sites. However, additional work is needed to make these sites more readable.
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McPherson AC, Gofine ML, Stinson J. Seeing is believing? A mixed-methods study exploring the quality and perceived trustworthiness of online information about chronic conditions aimed at children and young people. HEALTH COMMUNICATION 2013; 29:473-482. [PMID: 24099647 DOI: 10.1080/10410236.2013.768325] [Citation(s) in RCA: 13] [Impact Index Per Article: 1.1] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 06/02/2023]
Abstract
The numbers of children and young people with chronic conditions are increasing. While their information needs may vary, providing health care information can have considerable benefits, including better emotional health, less distress during treatments, and greater satisfaction with medical care. The Internet is increasingly being used to communicate health-related information to children about a range of chronic conditions. However, the quality of such websites is underexplored. Thus, the objectives of this study were to evaluate the reliability and quality of online information for children about chronic conditions using a standardized evaluation tool, and to explore children's and young people's perceptions of quality and trustworthiness regarding online health information. The study consisted of two phases. In Phase 1, websites about common pediatric chronic conditions aimed at children and containing treatment or management options were identified and the quality assessment tool DISCERN was completed. Test-retest and interrater reliability were calculated. In Phase 2, two focus groups with laptop computers were conducted with children and young people with a chronic condition to explore their perceptions of trustworthiness of online health information. In Phase 1, 165 websites were identified and 100 met the criteria and were assessed. The mean DISCERN score of all sites was 48.16 out of 75 (SD = 7.97, range 28-71, min 15 to max 75). Quality scores varied widely across the sample. The internal consistency and interrater reliability scores were both lower than previously reported in studies using the DISCERN to assess information for adults. In Phase 2, two focus groups with a total of six participants aged 11-23 years revealed a relative lack of concern about the quality and trustworthiness of online health information. Older participants reported judging the source and authorship of websites, but other participants did not question the source of the information they found online. Although personal websites were perceived to be less reliable than those from well-known medical institutions, they were still valued by many of the participants. Overall, there were relatively few websites about pediatric chronic conditions aimed at children, with variable quality and reliability. However, DISCERN's use with pediatric websites across a broad spectrum of developmental stages is limited. Children and young people demonstrated a need for more guidance around assessing trustworthiness of online information. A more appropriate quality assessment tool is warranted, which could usefully be employed by health care professionals, children, and parents.
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Affiliation(s)
- Amy C McPherson
- a Holland Bloorview Kids Rehabilitation Hospital and Dalla Lana School of Public Health , University of Toronto
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Hübner J, Münstedt K, Senf B, Micke O. Analysis of the contents of German magazines for tumor patients. ACTA ACUST UNITED AC 2013; 20:120-8. [PMID: 23636031 DOI: 10.1159/000350049] [Citation(s) in RCA: 4] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/19/2022]
Abstract
BACKGROUND Cancer patients have high information needs. Besides direct discussion with the physician, media provide important access to information. In the age of the internet, print media are still being used by many patients. In Germany, several magazines for cancer patients are distributed at no cost to cancer institutions for display. The aim of our study was to assess the content of these magazines. METHODS In a first step, a search of the literature concerning patient information needs and evaluation of patient information was done. This search revealed important criteria for evaluation. 2 instruments are recognized internationally as appropriate in evaluating and certifying patient information: HONcode and DISCERN. As we did not find an instrument for the evaluation of patient magazines, we combined the central items from both instruments. With this new instrument, we assessed the 2010 issues of all 5 magazines . RESULTS The Krebsmagazin offers a vast range of different topics in cancer and thus aims at general patient education, irrespective of the level of knowledge. Befund Krebs offers a wider variety of topics in each issue. Understanding the articles requires basic knowledge. The same applies to Leben? Leben! which specifically addresses the topic of breast cancer. All 3 journals provide information in line with evidence-based medicine. K Journal - Mensch & Krebs provides information on conventional as well as alternative treatments, the latter not being evidence-based. Several issues contained both advertisements and articles by providers of alternative therapies. Signal only deals with alternative medicine in cancer care and does not provide scientifically proven data. CONCLUSION As our analysis shows, content and evidence vary greatly in the magazines currently distributed in Germany. Physicians should familiarize themselves with the characteristics of the different journals before recommending them.
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Affiliation(s)
- Jutta Hübner
- University Cancer Center (UCT), Johann Wolfgang Goethe University, Frankfurt/M., Germany.
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Affiliation(s)
- Jerome E. Kotecki
- a Department of Physiology & Health Science , Ball State University , Muncie , IN , 47306 , USA
| | - Brenda E. Chamness
- b Project ASSIST Smokefree Indiana , 5610 Crawfordsville Road, Suite 1602, Indianapolis , IN , 46224 , USA
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Oculoplastic Internet Resources for Plastic Surgeons. Ann Plast Surg 2011. [DOI: 10.1097/sap.0b013e3181f8cb08] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/26/2022]
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Hallingbye T, Serafini M. Assessment of the quality of postherpetic neuralgia treatment information on the Internet. THE JOURNAL OF PAIN 2011; 12:1149-54. [PMID: 21807567 DOI: 10.1016/j.jpain.2011.05.005] [Citation(s) in RCA: 4] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Track Full Text] [Subscribe] [Scholar Register] [Received: 05/12/2011] [Accepted: 05/29/2011] [Indexed: 11/16/2022]
Abstract
UNLABELLED The objective of this study was to assess the quality of websites presenting treatment information for postherpetic neuralgia. The term "postherpetic neuralgia treatment" was searched using the Google and Yahoo search engines. Fifty websites from each were evaluated using the Journal of the American Medical Association (JAMA) benchmarks, the Health on the Net (HON) seal, and the DISCERN instrument. The treatments suggested on each website were compared with 3 recognized first-line treatment options (antidepressants, anticonvulsants, and topical lidocaine). Less than half of the included websites fulfilled all JAMA benchmark requirements. Less than one-third of the websites displayed the HON seal. The DISCERN instrument evaluation revealed that most websites were of moderate quality. Commercial websites tended to be inferior in comparison to noncommercial websites. Most websites recommended at least 2 of the 3 recommended treatments as well as several second- and third-line treatments. One-third to one-half of websites recommended a nonbeneficial treatment. In conclusion, many different postherpetic neuralgia treatments are found on the Internet and patients may be left separating recommended treatments from nonrecommended treatments without help from their healthcare providers. PERSPECTIVE This study examined the quality of websites related to postherpetic neuralgia treatment. The results demonstrated that most websites offering advice on postherpetic neuralgia treatment are of only moderate quality and often offer treatment suggestions that are nonbeneficial. Patients and providers must use caution when taking advice from these sites.
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Affiliation(s)
- Thor Hallingbye
- Department of Anesthesiology, University of Vermont, Burlington, Vermont 05401, USA.
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Irwin JY, Thyvalikakath T, Spallek H, Wali T, Kerr AR, Schleyer T. English and Spanish oral cancer information on the Internet: a pilot surface quality and content evaluation of oral cancer Web sites. J Public Health Dent 2011; 71:106-16. [DOI: 10.1111/j.1752-7325.2010.00207.x] [Citation(s) in RCA: 10] [Impact Index Per Article: 0.7] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/30/2022]
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Smith-McLallen A, Fishbein M, Hornik RC. Psychosocial determinants of cancer-related information seeking among cancer patients. JOURNAL OF HEALTH COMMUNICATION 2011; 16:212-25. [PMID: 21207310 PMCID: PMC3069660 DOI: 10.1080/10810730.2010.522227] [Citation(s) in RCA: 26] [Impact Index Per Article: 1.9] [Reference Citation Analysis] [Abstract] [MESH Headings] [Grants] [Track Full Text] [Download PDF] [Subscribe] [Scholar Register] [Indexed: 05/15/2023]
Abstract
This study explores the utility of using the Integrative Model of Behavioral Prediction as a framework for predicting cancer patients' intentions to seek information about their cancer from sources other than a physician, and to examine the relation between patients' baseline intentions to seek information and their actual seeking behavior at follow-up. Within 1 year of their diagnosis with colon, breast, or prostate cancer, 1,641 patients responded to a mailed questionnaire assessing intentions to seek cancer-related information from a source other than their doctor, as well as their attitudes, perceived normative pressure, and perceived behavioral control with respect to this behavior. In addition, the survey assessed their cancer-related information seeking. One year later, 1,049 of these patients responded to a follow-up survey assessing cancer-related information seeking during the previous year. Attitudes, perceived normative pressure, and perceived behavioral control were predictive of information-seeking intentions, although attitudes emerged as the primary predictor. Intentions to seek information, perceived normative pressure regarding information seeking, baseline information-seeking behavior, and being diagnosed with stage 4 cancer were predictive of actual information-seeking behavior at follow-up. Practical implications are discussed.
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Affiliation(s)
- Aaron Smith-McLallen
- Annenberg School for Communication, University of Pennsylvania, Philadelphia, Pennsylvania 19104-6220, USA
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Ilic D. The role of the internet on patient knowledge management, education, and decision-making. Telemed J E Health 2011; 16:664-9. [PMID: 20575610 DOI: 10.1089/tmj.2010.0003] [Citation(s) in RCA: 36] [Impact Index Per Article: 2.6] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/12/2022] Open
Abstract
E-health encompasses a broad range of health disciplines that use the Internet and associated technologies to deliver information and health services. Traditionally, patients have relied on the healthcare professional to provide relevant medical information to inform decision making on diagnosis and therapy. Patient education in the past has consisted of independently collated health information, disseminated predominantly in written and video formats. Greater accessibility to the Internet has provides a novel method for patients to access health information and play a greater role in decisions ultimately affecting their health. However, patients' ability to access, understand, and integrate this knowledge with their healthcare professional influences the extent to which such technologies are effective. This article provides an overview of the impact of the Internet on patient knowledge management, education, and its subsequent impact upon the medical decision-making process between the patient and clinician.
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Affiliation(s)
- Dragan Ilic
- Monash Institute of Health Services Research, School of Public Health and Preventive Medicine, Monash University, Clayton, Victoria, Australia.
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Langille M, Bernard A, Rodgers C, Hughes S, Leddin D, van Zanten SV. Systematic review of the quality of patient information on the internet regarding inflammatory bowel disease treatments. Clin Gastroenterol Hepatol 2010; 8:322-8. [PMID: 20060070 DOI: 10.1016/j.cgh.2009.12.024] [Citation(s) in RCA: 52] [Impact Index Per Article: 3.5] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 08/05/2009] [Revised: 12/20/2009] [Accepted: 12/28/2009] [Indexed: 02/07/2023]
Abstract
BACKGROUND & AIMS Patients use the Internet as a resource for information about their diseases. A systematic review evaluating the quality of information available for inflammatory bowel disease patients on the Internet regarding treatment options was performed. METHODS Google was used to identify 50 websites on 3 occasions. A data quality score (DQS) (potential score, 0-76) was developed to evaluate the content of websites that scores patient information on indications, efficacy, and side effects of treatment. Other outcome measures were a 5-point global quality score, a drug category quality score, the DISCERN instrument, a reading grade level score, and information about integrity. RESULTS The median DQS was 22, range 0-74, median global quality score was 2.0, and median Flesch-Kincaid reading grade level was 12.0, range 6.9-13.7. Eight websites achieved a global quality score of 4 or 5. The DQS was highly associated with the global quality score (r = 0.82) and the DISCERN instrument (r = 0.89). There was poor association between the DQS and the rank order in all 3 Google searches. Information on funding source (59%) and date of last update (74%) were often lacking. CONCLUSIONS There is marked variation in the quality of available patient information on websites about the treatment options for Crohn's disease and ulcerative colitis. Few websites provided high quality information. There is a need for high quality accredited websites that provide patient-oriented information on treatment options, and these sites need to be updated regularly.
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Affiliation(s)
- Morgan Langille
- Division of Otolaryngology/Head and Neck Surgery, University of Alberta, Edmonton, Canada.
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Abstract
This article determines the extent of the online availability and quality of surgical videos for the educational benefit of the surgical community. A comprehensive survey was performed that compared a number of online sites providing surgical videos according to their content, production quality, authority, audience, navigability, and other features. Methods for evaluating video content are discussed as well as possible future directions and emerging trends. Surgical videos are a valuable tool for demonstrating and teaching surgical technique and, despite room for growth in this area, advances in streaming video technology have made providing and accessing these resources easier than ever before.
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Affiliation(s)
- Amanda Dinscore
- Henry Madden Library, California State University, Fresno, California 93740-8014, USA.
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36
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Head and neck cancer information on the internet: Type, accuracy and content. Oral Oncol 2009; 45:675-7. [DOI: 10.1016/j.oraloncology.2008.10.006] [Citation(s) in RCA: 54] [Impact Index Per Article: 3.4] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 09/12/2008] [Revised: 10/15/2008] [Accepted: 10/17/2008] [Indexed: 11/21/2022]
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Latthe PM, Latthe M, Khan KS. Quality of information on female sterilisation on the Internet. J OBSTET GYNAECOL 2009; 20:167-70. [PMID: 15512509 DOI: 10.1080/01443610062968] [Citation(s) in RCA: 5] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 10/17/2022]
Abstract
The Internet has a great potential to provide useful as well as useless or misleading information. To assess the quality of information available on-line on female sterilisation, we performed a search of the Internet using seven search engines. We set out to assess the first 10 sites found by each of the most frequently used search engines. Our search revealed 12 relevant Web sites, none of which complied with all of the criteria for quality. Our assessment focused on credibility and content of each Web site. Credibility was assessed by source which was described in nine Web sites, currency in five sites and review process in none. We assessed the content by hierarchy and accuracy of evidence which was fulfilled by five sites and one site respectively. This makes it difficult for a lay person to assess which Web sites provide accurate and useful information and which do not.
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Affiliation(s)
- P M Latthe
- Birmingham Women's Health Care NHS Trust, UK
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Vance K, Howe W, Dellavalle RP. Social internet sites as a source of public health information. Dermatol Clin 2009; 27:133-6, vi. [PMID: 19254656 DOI: 10.1016/j.det.2008.11.010] [Citation(s) in RCA: 250] [Impact Index Per Article: 15.6] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/26/2022]
Abstract
Social media websites, such as YouTube, Facebook, MySpace, Twitter, and Second Life are rapidly emerging as popular sources of health information especially for teens and young adults. Social media marketing carries the advantages of low cost, rapid transmission through a wide community, and user interaction. Disadvantages include blind authorship, lack of source citation, and presentation of opinion as fact. Dermatologists and other health care providers should recognize the importance of social media websites and their potential usefulness for disseminating health information.
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Affiliation(s)
- Karl Vance
- Department of Dermatology, University of Colorado at Denver and Health Sciences Center, PO Box 6510, Mail Stop F703, Aurora, CO 80045, USA
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Bonnar-Kidd KK, Black DR, Mattson M, Coster D. Online physical activity information: will typical users find quality information? HEALTH COMMUNICATION 2009; 24:165-175. [PMID: 19280460 DOI: 10.1080/10410230802676763] [Citation(s) in RCA: 19] [Impact Index Per Article: 1.2] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 05/27/2023]
Abstract
This study evaluated physical activity Web sites to determine quality, accuracy, and consistency with principles of the extended parallel process model (EPPM). Three keyword searches were conducted using 4 search engines to find a sample of N = 41 Web sites. Three raters evaluated the Web sites using the JAMA benchmarks to assess quality and American College of Sports Medicine and Centers for Disease Control and Prevention recommendations for physical activity to determine accuracy, as well as checking for inclusion of EPPM variables. Data were analyzed using descriptive statistics and analysis of variance with least squares means. Only 22% of the sites were high quality, none were highly accurate, and most were consistent with the EPPM. Quality ratings were weakly associated with accuracy. Educational and .net sites were rated significantly higher in quality and accuracy, and government sites were most consistent with the EPPM. Quality Web sites were more often found by using Yahoo and Google. "Exercise" yielded more accurate results, whereas "physical activity" and "fitness" produced more Web sites consistent with the EPPM. It is encouraging that most sites incorporated EPPM concepts; however, quality and accuracy were poor, leaving physical activity information seekers at risk for disease and injury.
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Affiliation(s)
- Kelly K Bonnar-Kidd
- Department of Community Health, State University of New York-Potsdam, Potsdam, NY 13676, USA.
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Leung L. Internet Embeddedness: Links with Online Health Information Seeking, Expectancy Value/Quality of Health Information Websites, and Internet Usage Patterns. ACTA ACUST UNITED AC 2008; 11:565-9. [DOI: 10.1089/cpb.2007.0189] [Citation(s) in RCA: 34] [Impact Index Per Article: 2.0] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/12/2022]
Affiliation(s)
- Louis Leung
- School of Journalism & Communication, The Chinese University of Hong Kong, Shatin, Hong Kong
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Khazaal Y, Chatton A, Cochand S, Zullino D. Quality of Web-based information on cocaine addiction. PATIENT EDUCATION AND COUNSELING 2008; 72:336-341. [PMID: 18423952 DOI: 10.1016/j.pec.2008.03.002] [Citation(s) in RCA: 30] [Impact Index Per Article: 1.8] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 10/29/2007] [Revised: 02/17/2008] [Accepted: 03/06/2008] [Indexed: 05/26/2023]
Abstract
OBJECTIVE To evaluate the quality of web-based information on cocaine use and addiction and to investigate potential content quality indicators. METHODS Three keywords: cocaine, cocaine addiction and cocaine dependence were entered into two popular World Wide Web search engines. Websites were assessed with a standardized proforma designed to rate sites on the basis of accountability, presentation, interactivity, readability and content quality. "Health on the Net" (HON) quality label, and DISCERN scale scores aiding people without content expertise to assess quality of written health publication were used to verify their efficiency as quality indicators. RESULTS Of the 120 websites identified, 61 were included. Most were commercial sites. The results of the study indicate low scores on each of the measures including content quality. A global score (the sum of accountability, interactivity, content quality and aesthetic criteria) appeared as a good content quality indicator. CONCLUSIONS While cocaine education websites for patients are widespread, their global quality is poor. There is a need for better evidence-based information about cocaine use and addiction on the web. PRACTICE IMPLICATIONS The poor and variable quality of web-based information and its possible impact on physician-patient relationship argue for a serious provider for patient talk about the health information found on Internet. Internet sites could improve their content using the global score as a quality indicator.
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Affiliation(s)
- Yasser Khazaal
- Division of Substance Abuse, Geneva University Hospitals, Geneva, Switzerland.
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Rea S, Lim J, Falder S, Wood F. Use of the Internet by burns patients, their families and friends. Burns 2008; 34:345-9. [PMID: 17870244 DOI: 10.1016/j.burns.2007.05.003] [Citation(s) in RCA: 4] [Impact Index Per Article: 0.2] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 10/25/2006] [Accepted: 05/14/2007] [Indexed: 11/27/2022]
Abstract
INTRODUCTION The Internet has also become an increasingly important source of health-related information. However, with this exponential increase comes the problem that although the volume of information is huge, the quality, accuracy and completeness of the information are questionable, not only in the field of medicine. Previous studies of single medical conditions have suggested that web-based health information has limitations. The aim of this study was to evaluate Internet usage among burned patients and the people accompanying them to the outpatient clinic. METHODS A customised questionnaire was created and distributed to all patients and accompanying persons in the adult and paediatric burns clinics. This investigated computer usage, Internet access, usefulness of Internet search and topics searched. RESULTS Two hundred and ten people completed the questionnaire, a response rate of 83%. Sixty three percent of responders were patients, parents 21.9%, spouses 3.3%, siblings, children and friends the remaining 10.8%. Seventy seven percent of attendees had been injured within the last year, 11% between 1 and 5 years previously, and 12% more than 5 years previously. Seventy four percent had computer and Internet access. Twelve percent had performed a search. Topics searched included skin grafts, scarring and scar management treatments such as pressure garments, silicone gel and massage. DISCUSSION This study has shown that computer and Internet access is high, however a very small number actually used the Internet to access further medical information. Patients with longer standing injuries were more likely to access the Internet. Parents of burned children were more frequent Internet users. As more burn units develop their own web sites with information for patients and healthcare providers, it is important to inform patients, family members and friends that such a resource exists. By offering such a service patients are provided with accurate, reliable and easily accessible information which is appropriate to their needs.
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Affiliation(s)
- S Rea
- Burn Service of Western Australia, Royal Perth Hospital, Perth, Western Australia, Australia.
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Breckons M, Jones R, Morris J, Richardson J. What do evaluation instruments tell us about the quality of complementary medicine information on the internet? J Med Internet Res 2008; 10:e3. [PMID: 18244894 PMCID: PMC2483844 DOI: 10.2196/jmir.961] [Citation(s) in RCA: 58] [Impact Index Per Article: 3.4] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 08/01/2007] [Revised: 12/03/2007] [Accepted: 01/04/2008] [Indexed: 11/18/2022] Open
Abstract
Background Developers of health information websites aimed at consumers need methods to assess whether their website is of “high quality.” Due to the nature of complementary medicine, website information is diverse and may be of poor quality. Various methods have been used to assess the quality of websites, the two main approaches being (1) to compare the content against some gold standard, and (2) to rate various aspects of the site using an assessment tool. Objective We aimed to review available evaluation instruments to assess their performance when used by a researcher to evaluate websites containing information on complementary medicine and breast cancer. In particular, we wanted to see if instruments used the same criteria, agreed on the ranking of websites, were easy to use by a researcher, and if use of a single tool was sufficient to assess website quality. Methods Bibliographic databases, search engines, and citation searches were used to identify evaluation instruments. Instruments were included that enabled users with no subject knowledge to make an objective assessment of a website containing health information. The elements of each instrument were compared to nine main criteria defined by a previous study. Google was used to search for complementary medicine and breast cancer sites. The first six results and a purposive six from different origins (charities, sponsored, commercial) were chosen. Each website was assessed using each tool, and the percentage of criteria successfully met was recorded. The ranking of the websites by each tool was compared. The use of the instruments by others was estimated by citation analysis and Google searching. Results A total of 39 instruments were identified, 12 of which met the inclusion criteria; the instruments contained between 4 and 43 questions. When applied to 12 websites, there was agreement of the rank order of the sites with 10 of the instruments. Instruments varied in the range of criteria they assessed and in their ease of use. Conclusions Comparing the content of websites against a gold standard is time consuming and only feasible for very specific advice. Evaluation instruments offer gateway providers a method to assess websites. The checklist approach has face validity when results are compared to the actual content of “good” and “bad” websites. Although instruments differed in the range of items assessed, there was fair agreement between most available instruments. Some were easier to use than others, but these were not necessarily the instruments most widely used to date. Combining some of the better features of instruments to provide fewer, easy-to-use methods would be beneficial to gateway providers.
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Affiliation(s)
- Matthew Breckons
- School of Nursing and Community Studies, University of Plymouth, Faculty of Health and Social Work, Plymouth, United Kingdom
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Wald HS, Dube CE, Anthony DC. Untangling the Web--the impact of Internet use on health care and the physician-patient relationship. PATIENT EDUCATION AND COUNSELING 2007; 68:218-24. [PMID: 17920226 DOI: 10.1016/j.pec.2007.05.016] [Citation(s) in RCA: 268] [Impact Index Per Article: 14.9] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 03/09/2007] [Revised: 05/14/2007] [Accepted: 05/16/2007] [Indexed: 05/15/2023]
Abstract
OBJECTIVE The use of Web (i.e. Internet)-derived health information within the health care encounter is rapidly increasing. In this article, an extensive review of the complex effects and sometimes contradictory roles of the Web in regard to health care delivery and the physician-patient relationship is presented. METHODS A review of relevant literature was conducted, with key points integrated into a physician guide for effective interaction with Web-activated patients. RESULTS An emerging consumerist model with "triangulation" of patient-Web-physician can be expected to significantly impact dynamics of the physician-patient relationship. Potential advantages of Web-acquired information include helping patients make informed health care choices (with potential to decrease health care disparities), shared decision-making with a collaborative, teamwork approach, more efficient use of clinical time, augmenting of physician-provided information, online support groups, and/or access to patients' own health information. Alternatively, factors such as misinformation due to highly variable quality of Web information, possible exacerbation of socioeconomic health disparities, and shifting of conventional notions of the physician-patient relationship ("traditional" medical authority) present their own set of challenges for the health care provider. CONCLUSION A tangible guide to the integration of patients' use of the Web within a medical practice is thus offered with recommended communication skills. PRACTICE IMPLICATIONS The "net-friendly" clinician can be effective by engendering a genuine partnership with patients, thus contributing to quality health care.
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Affiliation(s)
- Hedy S Wald
- Department of Family Medicine, The Warren Alpert Medical School of Brown University, Providence, RI 02912, USA.
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Chien WT. Improving health education through information technology: a commentary on Bond (2007). Int J Nurs Stud 2007; 44:1279-82. [PMID: 17645879 DOI: 10.1016/j.ijnurstu.2007.06.002] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 04/04/2007] [Indexed: 10/23/2022]
Affiliation(s)
- Wai-Tong Chien
- The Nethersole School of Nursing, The Chinese University of Hong Kong, 7/F. Esther Lee Building, The Chinese University of Hong Kong, Shatin, N.T., Hong Kong.
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Peterlin BL, Gambini-Suárez E, Levin M. Cluster headache: a review of online resources for patients and clinicians. Curr Pain Headache Rep 2007; 11:148-53. [PMID: 17367595 DOI: 10.1007/s11916-007-0013-y] [Citation(s) in RCA: 2] [Impact Index Per Article: 0.1] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 10/23/2022]
Abstract
Technology has revolutionized the ability of both patients and physicians to find and retrieve medical information. In particular, the Internet has become an increasingly important source of information for patients and physicians in all medical fields, including headache. Although these resources may be readily available, it is not certain that those who would benefit most from these websites are aware of their existence or how to differentiate if the website is reputable. This article briefly reviews how patients and physicians can differentiate which sites provide legitimate and reputable information and then focuses on where to find online information on cluster headache.
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Affiliation(s)
- B Lee Peterlin
- Drexel University College of Medicine, Department of Neurology, 245 North 15th Street, Room 7102, New College Building, Philadelphia, PA 19102, USA.
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Nemoto K, Tachikawa H, Sodeyama N, Endo G, Hashimoto K, Mizukami K, Asada T. Quality of Internet information referring to mental health and mental disorders in Japan. Psychiatry Clin Neurosci 2007; 61:243-8. [PMID: 17472591 DOI: 10.1111/j.1440-1819.2007.01650.x] [Citation(s) in RCA: 20] [Impact Index Per Article: 1.1] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 11/28/2022]
Abstract
Although the Internet has been widely used in Japan, the quality of information on mental health-related issues has not been evaluated so far. The purpose of the present study was to investigate the current status of Japanese websites that deal with mental health, mental disorders, and their associated matters. Using a search engine, Google, 37 websites were identified that exclusively contain information on mental health or mental disorders. The characteristics of the sites were then examined, along with variety of mental disorders mentioned, and quality of contents for each of the 37 websites. More than half of the websites were set up, at least in part, for commercial purposes and only 27% of sites were owned by professionals. Mood disorder, panic disorder, and schizophrenia were the three most commonly referred disorders on websites. Aside from some exceptions, the quality of information was inadequate, especially that regarding treatment. Most of the websites on mental health and mental disorders examined in the present study have scope for improvement. The challenge is to establish a system to evaluate the sites and to motivate each webmaster to improve the sites.
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Affiliation(s)
- Kiyotaka Nemoto
- Division of Psychiatry, Tsukuba University Hospital, Tsukuba, Ibaraki, Japan.
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Richard JL, Schuldiner S, Jourdan N, Daurès JP, Vannerau D, Rodier M, Lavit P. The Internet and the diabetic foot: quality of online information in French language. DIABETES & METABOLISM 2007; 33:197-204. [PMID: 17347012 DOI: 10.1016/j.diabet.2006.12.003] [Citation(s) in RCA: 6] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 09/06/2006] [Accepted: 12/10/2006] [Indexed: 11/18/2022]
Abstract
UNLABELLED The Internet has become a major source of health information for consumers. Nevertheless the quality of medical information varies widely and is generally poor. AIM This study aimed to evaluate the quality of information delivered on French-speaking Internet about the diabetic foot. METHODS Websites were selected using three popular search engines and introducing "foot+diabetes" and "foot+diabetic" as keywords. Two diabetologists independently evaluated the quality of information using a specially created scoring grid (range 0-52) based on acknowledged and published criteria with items relevant to general characteristics of the site and to information content. One hundred and twenty websites were selected but only 27 were included for analysis. RESULTS Agreement between the two raters was close for global score and site content but lower for site characteristics. Averaged global score ranged from 8 to 44. Only five sites were assessed as very advisable with a score higher than 39; in contrast 18 sites were judged as not advisable at all (score lower than 26). CONCLUSION This study, the first to be devoted to information about the diabetic foot on the Internet, clearly shows the variability and the general poor quality of information delivered by the great majority of French-speaking websites. Regulation organisms are urgently needed for checking and labelling public oriented health information in order to make the Internet a performing tool for patient information.
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Affiliation(s)
- J-L Richard
- Service des maladies de la nutrition et diabétologie, centre médical, 30240 Le-Grau-du-Roi, France.
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Bergman J, Konijeti R, Lerman SE. Myelomeningocele Information on the Internet is Accessible and of Variable Quality, and Requires a High Reading Level. J Urol 2007; 177:1138-42. [PMID: 17296433 DOI: 10.1016/j.juro.2006.10.019] [Citation(s) in RCA: 16] [Impact Index Per Article: 0.9] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 08/16/2006] [Indexed: 11/27/2022]
Abstract
PURPOSE We assessed the accessibility, readability and quality of myelomeningocele information on the Internet. MATERIALS AND METHODS We entered the term "spina bifida" into the Google, Yahoo! and Microsoft Network search engines, and stored the first 100 links from each Web site. A total of 164 unique Web sites remained for analysis, of which 159 were classified as relevant. Relevant Web sites were considered to have relevant content if more than 50% of the text was directly relevant to the disease, and to have relevant educational content if more than 50% of the text was aimed at relaying educational information. Readability was assessed using the Flesch-Kincaid Grade Level scale. The quality of the 159 Web sites with relevant content was assessed using American Public Health Association Criteria for Assessing Health Information on the Internet. Six criteria were assessed, namely credibility, content, links, design, interactivity and caveats. Web sites were analyzed by 2 separate medical doctors, with each reviewer blinded to the findings of the other. A weighted kappa statistic was used to calculate interrater reliability. RESULTS Of 159 relevant sites 146 (91.8%) had relevant content and 122 (76.7%) had relevant educational content. The average Flesch-Kincaid reading level was 10.9 (range 6 to 12). Quality was assessed on a 3-point scale, with 1 denoting poor quality, 2 fair and 3 good. Average scores were 1.92 for credibility, 1.88 for content, 2.29 for links, 2.53 for design, 1.99 for interactivity and 2.90 for caveats. The weighted kappa statistic for interrater reliability was 0.83. CONCLUSIONS Myelomeningocele information on the Internet is relatively accessible, requires a high reading level for comprehension and is of variable quality.
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Affiliation(s)
- Jonathan Bergman
- Department of Urology, Division of Pediatric Urology, David Geffen School of Medicine at University of California Los Angeles, Los Angeles, California, USA
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Air M, Roman SA, Yeo H, Maser C, Trapasso T, Kinder B, Sosa JA. Outdated and incomplete: a review of thyroid cancer on the World Wide Web. Thyroid 2007; 17:259-65. [PMID: 17381360 DOI: 10.1089/thy.2006.0300] [Citation(s) in RCA: 18] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 11/13/2022]
Abstract
OBJECTIVE To evaluate the most frequently searched thyroid cancer websites for completeness, accuracy, and consumer friendliness. DESIGN The 50 most popular thyroid cancer websites were evaluated using a novel instrument developed by a Delphi panel of endocrine experts and based on practice guidelines. Each website received independent scores for disease-specific information and a final quality score. Quality was related to website demographics using the Student t test, chi-square, and ANOVA analyses. MAIN OUTCOMES Interrater reliability was excellent (kappa = 0.81). Most websites were not specific to thyroid cancer alone (72%), contained advertisements (72%), lacked references (66%), and were privately sponsored (50%). Only 38% had been updated within 2 years. "Government" and "Non-Profit" websites were the most consumer friendly. Mean quality score of medical content was 38%, with websites receiving the highest score in "Anatomy/Physiology" (55%) and lowest in "Surgery" (29%). Low quality score was attributed to information deficiency rather than inaccuracy. On univariate analysis, no significant associations were found between quality score and country of origin, currency, sponsorship, authorship, administration, advertisements, or references. CONCLUSIONS Thyroid cancer websites are out of date and incomplete, lacking important information sought by patients, particularly surgical information. An accurate, comprehensive, easily available, and patient-oriented thyroid cancer Internet resource is needed for patients.
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Affiliation(s)
- Mamie Air
- Department of Surgery, Yale University School of Medicine, New Haven, Connecticut 06520, USA
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