Alrubaiy L, Hutchings HA, Hughes SE, Dobbs T. Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology. World J Hepatol 2022; 14(5): 896-910 [PMID: 35721294 DOI: 10.4254/wjh.v14.i5.896]
Corresponding Author of This Article
Laith Alrubaiy, FRCP, PhD, Consultant Physician-Scientist, Department of Gastroenterology, St Mark's Hospital, Watford Road, London HA1 3UJ, United Kingdom. laithalrubaiy@gmail.com
Research Domain of This Article
Gastroenterology & Hepatology
Article-Type of This Article
Minireviews
Open-Access Policy of This Article
This article is an open-access article which was selected by an in-house editor and fully peer-reviewed by external reviewers. It is distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/
World J Hepatol. May 27, 2022; 14(5): 896-910 Published online May 27, 2022. doi: 10.4254/wjh.v14.i5.896
Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
Laith Alrubaiy, Hayley A Hutchings, Sarah E Hughes, Thomas Dobbs
Laith Alrubaiy, Department of Gastroenterology, St Mark's Hospital, London HA1 3UJ, United Kingdom
Hayley A Hutchings, Institute of Life Sciences 2, Swansea University Medical School, Singleton Park, Swansea SA2 8PP, United Kingdom
Sarah E Hughes, Swansea University Medical School, Swansea University, Swansea SA2 8PP, United Kingdom
Sarah E Hughes, Centre for Patient Reported Outcome Research, Institute of Applied Health Research, University of Birmingham, Birmingham B15 2TT, United Kingdom
Thomas Dobbs, Swansea University, Swansea SA2 8PP, United Kingdom
Author contributions: Alrubaiy L and Hutchings HA contributed to the literature search, review of the articles and the writing of the manuscript; Dobbs T and Hughes S contributed to the writing of the article and evaluating the included articles; all authors have made a significant contribution to the manuscript and have approved the final submitted version.
Conflict-of-interest statement: There is no conflict of interest.
Open-Access: This article is an open-access article that was selected by an in-house editor and fully peer-reviewed by external reviewers. It is distributed in accordance with the Creative Commons Attribution NonCommercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: https://creativecommons.org/Licenses/by-nc/4.0/
Corresponding author: Laith Alrubaiy, FRCP, PhD, Consultant Physician-Scientist, Department of Gastroenterology, St Mark's Hospital, Watford Road, London HA1 3UJ, United Kingdom. laithalrubaiy@gmail.com
Received: February 24, 2021 Peer-review started: February 24, 2021 First decision: June 15, 2021 Revised: June 29, 2021 Accepted: April 8, 2022 Article in press: April 8, 2022 Published online: May 27, 2022 Processing time: 453 Days and 15.3 Hours
Abstract
It is increasingly recognised that collecting patient reported outcome measures (PROMs) data is an important part of healthcare and should be considered alongside traditional clinical assessments. As part of a more holistic view of healthcare provision, there has been an increased drive to implement PROM collection as part of routine clinical care in hepatology. This drive has resulted in an increase in the number of PROMs currently developed to be used in various liver conditions. However, the development and validation of a new PROM is time-consuming and costly. Therefore, before deciding to develop a new PROM, researchers should consider identifying existing PROMs to assess their appropriateness and, if necessary, make adaptations to existing PROMs to ensure their rigour when used with the target population. Little is written in the literature on how to identify and adapt the existing PROMs in hepatology. This article aims to provide a summary of the current literature and guidance regarding identifying and adapting existing PROMs in clinical practice.
Core Tip: In the last few years, there has been a rapid increase in the number of patient-reported outcome measures (PROMs) in hepatology and, therefore, the choice between which of these PROMs to use can be difficult. This paper aims to illustrate ways of identifying existing PROMs and outlines key considerations and good practice with respect to their adaptation in clinical practice or research in hepatology.
