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For: Henderson GE, Wolf SM, Kuczynski KJ, Joffe S, Sharp RR, Parsons DW, Knoppers BM, Yu JH, Appelbaum PS. The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations. J Law Med Ethics 2014;42:344-55. [PMID: 25264092 DOI: 10.1111/jlme.12151] [Cited by in Crossref: 48] [Cited by in F6Publishing: 45] [Article Influence: 8.0] [Reference Citation Analysis]
Number Citing Articles
1 Ackerman SL, Koenig BA. Understanding variations in secondary findings reporting practices across U.S. genome sequencing laboratories. AJOB Empirical Bioethics 2017;9:48-57. [DOI: 10.1080/23294515.2017.1405095] [Cited by in Crossref: 16] [Cited by in F6Publishing: 11] [Article Influence: 3.2] [Reference Citation Analysis]
2 Turbitt E, Chrysostomou PP, Peay HL, Heidlebaugh AR, Nelson LM, Biesecker BB. A randomized controlled study of a consent intervention for participating in an NIH genome sequencing study. Eur J Hum Genet 2018;26:622-30. [PMID: 29453419 DOI: 10.1038/s41431-018-0105-7] [Cited by in Crossref: 10] [Cited by in F6Publishing: 7] [Article Influence: 2.5] [Reference Citation Analysis]
3 Pereira S, Oliver Robinson J, McGuire AL. Return of individual genomic research results: what do consent forms tell participants? Eur J Hum Genet 2016;24:1524-9. [PMID: 27329739 DOI: 10.1038/ejhg.2016.76] [Cited by in Crossref: 10] [Cited by in F6Publishing: 8] [Article Influence: 1.7] [Reference Citation Analysis]
4 Henderson GE. The ethics of HIV "cure" research: what can we learn from consent forms? AIDS Res Hum Retroviruses 2015;31:56-63. [PMID: 25406579 DOI: 10.1089/AID.2014.0219] [Cited by in Crossref: 26] [Cited by in F6Publishing: 31] [Article Influence: 3.7] [Reference Citation Analysis]
5 Vears DF, Borry P, Savulescu J, Koplin JJ. Old Challenges or New Issues? Genetic Health Professionals' Experiences Obtaining Informed Consent in Diagnostic Genomic Sequencing. AJOB Empir Bioeth 2021;12:12-23. [PMID: 33017265 DOI: 10.1080/23294515.2020.1823906] [Cited by in Crossref: 3] [Cited by in F6Publishing: 3] [Article Influence: 1.5] [Reference Citation Analysis]
6 Nguyen MT, Goldblatt J, Isasi R, Jagut M, Jonker AH, Kaufmann P, Ouillade L, Molnar-Gabor F, Shabani M, Sid E, Tassé AM, Wong-Rieger D, Knoppers BM; IRDiRC-GA4GH Model Consent Clauses Task Force. Model consent clauses for rare disease research. BMC Med Ethics 2019;20:55. [PMID: 31370847 DOI: 10.1186/s12910-019-0390-x] [Cited by in Crossref: 7] [Cited by in F6Publishing: 7] [Article Influence: 2.3] [Reference Citation Analysis]
7 Hitchcock EC, Study C, Elliott AM. Shortened consent forms for genome-wide sequencing: Parent and provider perspectives. Mol Genet Genomic Med 2020;8:e1254. [PMID: 32383361 DOI: 10.1002/mgg3.1254] [Cited by in Crossref: 3] [Cited by in F6Publishing: 3] [Article Influence: 1.5] [Reference Citation Analysis]
8 van Nimwegen KJM, van Soest RA, Veltman JA, Nelen MR, van der Wilt GJ, Vissers LELM, Grutters JPC. Is the $1000 Genome as Near as We Think? A Cost Analysis of Next-Generation Sequencing. Clinical Chemistry 2016;62:1458-64. [DOI: 10.1373/clinchem.2016.258632] [Cited by in Crossref: 75] [Cited by in F6Publishing: 63] [Article Influence: 12.5] [Reference Citation Analysis]
9 Bernhardt BA, Roche MI, Perry DL, Scollon SR, Tomlinson AN, Skinner D. Experiences with obtaining informed consent for genomic sequencing. Am J Med Genet A 2015;167A:2635-46. [PMID: 26198374 DOI: 10.1002/ajmg.a.37256] [Cited by in Crossref: 66] [Cited by in F6Publishing: 64] [Article Influence: 9.4] [Reference Citation Analysis]
10 Lewis KL, Hooker GW, Connors PD, Hyams TC, Wright MF, Caldwell S, Biesecker LG, Biesecker BB. Participant use and communication of findings from exome sequencing: a mixed-methods study. Genet Med 2016;18:577-83. [PMID: 26540156 DOI: 10.1038/gim.2015.133] [Cited by in Crossref: 45] [Cited by in F6Publishing: 45] [Article Influence: 6.4] [Reference Citation Analysis]
11 Roche MI, Berg JS. Incidental Findings with Genomic Testing: Implications for Genetic Counseling Practice. Curr Genet Med Rep 2015;3:166-76. [PMID: 26566463 DOI: 10.1007/s40142-015-0075-9] [Cited by in Crossref: 57] [Cited by in F6Publishing: 48] [Article Influence: 8.1] [Reference Citation Analysis]
12 Alahmad G, Dierickx K. Return of Research Results in the Saudi Biobank: An Exploratory Survey. Genet Test Mol Biomarkers 2017;21:166-70. [PMID: 28118041 DOI: 10.1089/gtmb.2016.0396] [Cited by in Crossref: 6] [Cited by in F6Publishing: 6] [Article Influence: 1.2] [Reference Citation Analysis]
13 Beskow LM, Hammack CM, Brelsford KM. Thought leader perspectives on benefits and harms in precision medicine research. PLoS One 2018;13:e0207842. [PMID: 30475858 DOI: 10.1371/journal.pone.0207842] [Cited by in Crossref: 9] [Cited by in F6Publishing: 9] [Article Influence: 2.3] [Reference Citation Analysis]
14 Winkler EC, Wiemann S. Findings made in gene panel to whole genome sequencing: data, knowledge, ethics – and consequences? Expert Review of Molecular Diagnostics 2016;16:1259-70. [DOI: 10.1080/14737159.2016.1212662] [Cited by in Crossref: 7] [Cited by in F6Publishing: 8] [Article Influence: 1.2] [Reference Citation Analysis]
15 Bowdin S, Gilbert A, Bedoukian E, Carew C, Adam MP, Belmont J, Bernhardt B, Biesecker L, Bjornsson HT, Blitzer M, D'Alessandro LC, Deardorff MA, Demmer L, Elliott A, Feldman GL, Glass IA, Herman G, Hindorff L, Hisama F, Hudgins L, Innes AM, Jackson L, Jarvik G, Kim R, Korf B, Ledbetter DH, Li M, Liston E, Marshall C, Medne L, Meyn MS, Monfared N, Morton C, Mulvihill JJ, Plon SE, Rehm H, Roberts A, Shuman C, Spinner NB, Stavropoulos DJ, Valverde K, Waggoner DJ, Wilkens A, Cohn RD, Krantz ID. Recommendations for the integration of genomics into clinical practice. Genet Med 2016;18:1075-84. [PMID: 27171546 DOI: 10.1038/gim.2016.17] [Cited by in Crossref: 88] [Cited by in F6Publishing: 77] [Article Influence: 14.7] [Reference Citation Analysis]
16 Kohut K, Limb S, Crawford G. The Changing Role of the Genetic Counsellor in the Genomics Era. Curr Genet Med Rep 2019;7:75-84. [DOI: 10.1007/s40142-019-00163-w] [Cited by in Crossref: 3] [Cited by in F6Publishing: 2] [Article Influence: 1.0] [Reference Citation Analysis]
17 Hammer MJ. Beyond the Helix: Ethical, Legal, and Social Implications in Genomics. Semin Oncol Nurs 2019;35:93-106. [PMID: 30683550 DOI: 10.1016/j.soncn.2018.12.007] [Cited by in Crossref: 2] [Cited by in F6Publishing: 2] [Article Influence: 0.7] [Reference Citation Analysis]
18 Milo Rasouly H, Marasa M. Pitfalls and Challenges of Consenting to Genetic Research Studies. Kidney Int Rep 2018;3:1245-8. [PMID: 30450447 DOI: 10.1016/j.ekir.2018.08.004] [Reference Citation Analysis]
19 Mody RJ, Prensner JR, Everett J, Parsons DW, Chinnaiyan AM. Precision medicine in pediatric oncology: Lessons learned and next steps. Pediatr Blood Cancer 2017;64. [PMID: 27748023 DOI: 10.1002/pbc.26288] [Cited by in Crossref: 42] [Cited by in F6Publishing: 31] [Article Influence: 7.0] [Reference Citation Analysis]
20 Appelbaum PS, Fyer A, Klitzman RL, Martinez J, Parens E, Zhang Y, Chung WK. Researchers' views on informed consent for return of secondary results in genomic research. Genet Med 2015;17:644-50. [PMID: 25503499 DOI: 10.1038/gim.2014.163] [Cited by in Crossref: 12] [Cited by in F6Publishing: 14] [Article Influence: 1.5] [Reference Citation Analysis]
21 Niemiec E, Borry P, Pinxten W, Howard HC. Content Analysis of Informed Consent for Whole Genome Sequencing Offered by Direct-to-Consumer Genetic Testing Companies. Hum Mutat 2016;37:1248-56. [PMID: 27647801 DOI: 10.1002/humu.23122] [Cited by in Crossref: 7] [Cited by in F6Publishing: 7] [Article Influence: 1.2] [Reference Citation Analysis]
22 Prince AER, Berkman BE. Reconceptualizing harms and benefits in the genomic age. Per Med 2018;15:419-28. [PMID: 30260295 DOI: 10.2217/pme-2018-0022] [Cited by in Crossref: 6] [Cited by in F6Publishing: 5] [Article Influence: 1.5] [Reference Citation Analysis]
23 Wolf SM, Amendola LM, Berg JS, Chung WK, Clayton EW, Green RC, Harris-Wai J, Henderson GE, Jarvik GP, Koenig BA, Lehmann LS, McGuire AL, O'Rourke P, Somkin C, Wilfond BS, Burke W. Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium. Genet Med 2018;20:545-53. [PMID: 28858330 DOI: 10.1038/gim.2017.137] [Cited by in Crossref: 18] [Cited by in F6Publishing: 22] [Article Influence: 3.6] [Reference Citation Analysis]
24 Bianchi L, Liò P. Opportunities for community awareness platforms in personal genomics and bioinformatics education. Brief Bioinform 2017;18:1082-90. [PMID: 27580620 DOI: 10.1093/bib/bbw078] [Cited by in F6Publishing: 1] [Reference Citation Analysis]
25 Alahmad G, Alzahrany H, Almutairi AF. Returning Results of Stored Biological Samples and Biobanks: Perspectives of Saudi Arabian Biomedical Researchers. Biopreserv Biobank 2020;18:395-402. [PMID: 32706976 DOI: 10.1089/bio.2020.0002] [Cited by in Crossref: 2] [Cited by in F6Publishing: 3] [Article Influence: 1.0] [Reference Citation Analysis]
26 Shyr C, Kushniruk A, van Karnebeek CD, Wasserman WW. Dynamic software design for clinical exome and genome analyses: insights from bioinformaticians, clinical geneticists, and genetic counselors. J Am Med Inform Assoc 2016;23:257-68. [PMID: 26117142 DOI: 10.1093/jamia/ocv053] [Cited by in Crossref: 7] [Cited by in F6Publishing: 6] [Article Influence: 1.0] [Reference Citation Analysis]
27 Lu A, Kuhn P, Deichaite I. Time for a change: considering the rights of study participants to ownership of their personal research-grade genomic data. Converg Sci Phys Oncol 2018;4:046001. [DOI: 10.1088/2057-1739/aaf822] [Reference Citation Analysis]
28 Wolf SM, Clayton EW, Lawrenz F. The Past, Present, and Future of Informed Consent in Research and Translational Medicine. J Law Med Ethics 2018;46:7-11. [DOI: 10.1177/1073110518766003] [Cited by in Crossref: 6] [Cited by in F6Publishing: 1] [Article Influence: 6.0] [Reference Citation Analysis]
29 Yoshizawa G, Sasongko TH, Ho CH, Kato K. Social and Communicative Functions of Informed Consent Forms in East Asia and Beyond. Front Genet 2017;8:99. [PMID: 28775738 DOI: 10.3389/fgene.2017.00099] [Cited by in Crossref: 7] [Cited by in F6Publishing: 6] [Article Influence: 1.4] [Reference Citation Analysis]
30 Niemiec E, Vears DF, Borry P, Howard HC. Readability of informed consent forms for whole-exome and whole-genome sequencing. J Community Genet 2018;9:143-51. [PMID: 28856579 DOI: 10.1007/s12687-017-0324-6] [Cited by in Crossref: 11] [Cited by in F6Publishing: 12] [Article Influence: 2.2] [Reference Citation Analysis]
31 Mazzucco W, Pastorino R, Lagerberg T, Colotto M, d'Andrea E, Marotta C, Marzuillo C, Villari P, Federici A, Ricciardi W, Boccia S. Current state of genomic policies in healthcare among EU member states: results of a survey of chief medical officers. Eur J Public Health 2017;27:931-7. [PMID: 27687585 DOI: 10.1093/eurpub/ckw155] [Cited by in Crossref: 7] [Cited by in F6Publishing: 9] [Article Influence: 1.8] [Reference Citation Analysis]
32 Gore RH, Bridges JFP, Cohen JS, Biesecker BB. Challenges to informed consent for exome sequencing: A best-worst scaling experiment. J Genet Couns 2019;28:1189-97. [PMID: 31553105 DOI: 10.1002/jgc4.1171] [Cited by in Crossref: 2] [Cited by in F6Publishing: 2] [Article Influence: 0.7] [Reference Citation Analysis]
33 Williams JR, Yeh VM, Bruce MA, Szetela C, Ukoli F, Wilkins CH, Kripalani S. Precision Medicine: Familiarity, Perceived Health Drivers, and Genetic Testing Considerations Across Health Literacy Levels in a Diverse Sample. J Genet Couns 2018. [PMID: 30105426 DOI: 10.1007/s10897-018-0291-z] [Cited by in Crossref: 6] [Cited by in F6Publishing: 9] [Article Influence: 1.5] [Reference Citation Analysis]
34 Souzeau E, Burdon KP, Mackey DA, Hewitt AW, Savarirayan R, Otlowski M, Craig JE. Ethical Considerations for the Return of Incidental Findings in Ophthalmic Genomic Research. Transl Vis Sci Technol 2016;5:3. [PMID: 26929883 DOI: 10.1167/tvst.5.1.3] [Cited by in Crossref: 7] [Cited by in F6Publishing: 7] [Article Influence: 1.2] [Reference Citation Analysis]
35 Hull LE, Vassy JL. Toward greater understanding of patient decision-making around genome sequencing. Per Med 2018;15:57-66. [PMID: 29714114 DOI: 10.2217/pme-2017-0037] [Cited by in Crossref: 5] [Cited by in F6Publishing: 4] [Article Influence: 1.3] [Reference Citation Analysis]
36 Wolf SM, Burke W, Koenig BA. Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide. J Law Med Ethics 2015;43:486-501. [PMID: 26479558 DOI: 10.1111/jlme.12291] [Cited by in Crossref: 16] [Cited by in F6Publishing: 27] [Article Influence: 3.2] [Reference Citation Analysis]
37 Burke W, Beskow LM, Trinidad SB, Fullerton SM, Brelsford K. Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance. J Law Med Ethics 2018;46:79-86. [PMID: 29962827 DOI: 10.1177/1073110518766023] [Cited by in Crossref: 12] [Cited by in F6Publishing: 10] [Article Influence: 3.0] [Reference Citation Analysis]
38 Ottman R, Freyer C, Mefford HC, Poduri A, Lowenstein DH; Epilepsy Return of Results Workshop Participants. Return of individual results in epilepsy genomic research: A view from the field. Epilepsia 2018;59:1635-42. [PMID: 30098010 DOI: 10.1111/epi.14530] [Cited by in Crossref: 5] [Cited by in F6Publishing: 5] [Article Influence: 1.3] [Reference Citation Analysis]
39 Wolf SM, Ossorio PN, Berry SA, Greely HT, McGuire AL, Penny MA, Terry SF; LawSeq Framework Task Force. Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics. J Law Med Ethics 2020;48:69-86. [PMID: 32342790 DOI: 10.1177/1073110520916996] [Cited by in Crossref: 7] [Cited by in F6Publishing: 5] [Article Influence: 7.0] [Reference Citation Analysis]
40 Appelbaum PS, Stiles DF, Chung W. Cases in Precision Medicine: Should You Participate in a Study Involving Genomic Sequencing of Your Patients? Ann Intern Med 2019;171:568-72. [PMID: 31569215 DOI: 10.7326/M19-1414] [Reference Citation Analysis]
41 Prince AE, Conley JM, Davis AM, Lázaro-Muñoz G, Cadigan RJ. Automatic Placement of Genomic Research Results in Medical Records: Do Researchers Have a Duty? Should Participants Have a Choice? J Law Med Ethics 2015;43:827-42. [PMID: 26711421 DOI: 10.1111/jlme.12323] [Cited by in Crossref: 2] [Cited by in F6Publishing: 8] [Article Influence: 0.4] [Reference Citation Analysis]
42 Trinidad SB, Ludman EJ, Hopkins S, James RD, Hoeft TJ, Kinegak A, Lupie H, Kinegak R, Boyer BB, Burke W. Community dissemination and genetic research: moving beyond results reporting. Am J Med Genet A 2015;167:1542-50. [PMID: 25900516 DOI: 10.1002/ajmg.a.37028] [Cited by in Crossref: 17] [Cited by in F6Publishing: 17] [Article Influence: 2.4] [Reference Citation Analysis]
43 Fernandez CV, O'Rourke PP, Beskow LM. Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families. J Law Med Ethics 2015;43:514-22. [PMID: 26479560 DOI: 10.1111/jlme.12293] [Cited by in Crossref: 4] [Cited by in F6Publishing: 7] [Article Influence: 0.8] [Reference Citation Analysis]
44 Yu JH, Appelbaum PS, Brothers KB, Joffe S, Kauffman TL, Koenig BA, Prince AE, Scollon S, Wolf SM, Bernhardt BA, Wilfond BS; Clinical Sequencing Exploratory Research (CSER) Consortium Informed Consent and Governance Working Group. Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium. Per Med 2019;16:325-33. [PMID: 31313633 DOI: 10.2217/pme-2018-0076] [Cited by in Crossref: 5] [Cited by in F6Publishing: 5] [Article Influence: 1.7] [Reference Citation Analysis]
45 Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH; CSER Consortium. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. Am J Hum Genet 2016;98:1051-66. [PMID: 27181682 DOI: 10.1016/j.ajhg.2016.04.011] [Cited by in Crossref: 96] [Cited by in F6Publishing: 89] [Article Influence: 16.0] [Reference Citation Analysis]
46 Wynn J. Genomic Testing: a Genetic Counselor's Personal Reflection on Three Years of Consenting and Testing. J Genet Couns 2016;25:691-7. [PMID: 26242468 DOI: 10.1007/s10897-015-9868-y] [Cited by in Crossref: 18] [Cited by in F6Publishing: 15] [Article Influence: 2.6] [Reference Citation Analysis]