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For: Clayton EW, McCullough LB, Biesecker LG, Joffe S, Ross LF, Wolf SM; Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group. Addressing the ethical challenges in genetic testing and sequencing of children. Am J Bioeth 2014;14:3-9. [PMID: 24592828 DOI: 10.1080/15265161.2013.879945] [Cited by in Crossref: 71] [Cited by in F6Publishing: 62] [Article Influence: 8.9] [Reference Citation Analysis]
Number Citing Articles
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3 Cornelis C, Bolt I, Van Summeren M. Contextualizing Genetic Testing and Sequencing Results for Patients and Parents: The Need for Empirical-Ethical Research. The American Journal of Bioethics 2014;14:10-2. [DOI: 10.1080/15265161.2013.879957] [Cited by in Crossref: 2] [Cited by in F6Publishing: 1] [Article Influence: 0.3] [Reference Citation Analysis]
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6 Milko LV, Rini C, Lewis MA, Butterfield RM, Lin FC, Paquin RS, Powell BC, Roche MI, Souris KJ, Bailey DB Jr, Berg JS, Powell CM. Evaluating parents' decisions about next-generation sequencing for their child in the NC NEXUS (North Carolina Newborn Exome Sequencing for Universal Screening) study: a randomized controlled trial protocol. Trials 2018;19:344. [PMID: 29950170 DOI: 10.1186/s13063-018-2686-4] [Cited by in Crossref: 10] [Cited by in F6Publishing: 8] [Article Influence: 2.5] [Reference Citation Analysis]
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9 Christensen KD, Savage SK, Huntington NL, Weitzman ER, Ziniel SI, Bacon PL, Cacioppo CN, Green RC, Holm IA. Preferences for the Return of Individual Results From Research on Pediatric Biobank Samples. J Empir Res Hum Res Ethics 2017;12:97-106. [PMID: 28421887 DOI: 10.1177/1556264617697839] [Cited by in Crossref: 8] [Cited by in F6Publishing: 9] [Article Influence: 1.6] [Reference Citation Analysis]
10 Ross LF, Clayton EW. Ethical Issues in Newborn Sequencing Research: The Case Study of BabySeq. Pediatrics 2019;144:e20191031. [PMID: 31719124 DOI: 10.1542/peds.2019-1031] [Cited by in Crossref: 10] [Cited by in F6Publishing: 8] [Article Influence: 3.3] [Reference Citation Analysis]
11 Lucassen A, Widdershoven G, Metselaar S, Fenwick A, Parker M. Genetic Testing of Children: The Need for a Family Perspective. The American Journal of Bioethics 2014;14:26-8. [DOI: 10.1080/15265161.2013.879950] [Cited by in Crossref: 7] [Cited by in F6Publishing: 3] [Article Influence: 0.9] [Reference Citation Analysis]
12 Burke W, Appelbaum P, Dame L, Marshall P, Press N, Pyeritz R, Sharp R, Juengst E. The translational potential of research on the ethical, legal, and social implications of genomics. Genet Med 2015;17:12-20. [PMID: 24946153 DOI: 10.1038/gim.2014.74] [Cited by in Crossref: 11] [Cited by in F6Publishing: 11] [Article Influence: 1.4] [Reference Citation Analysis]
13 Strong KA, Derse AR, Dimmock DP, Zusevics KL, Jeruzal J, Worthey E, Bick D, Scharer G, La Pean Kirschner A, Spellecy R, Farrell MH, Geurts J, Veith R, May T. In the absence of evidentiary harm, existing societal norms regarding parental authority should prevail. Am J Bioeth 2014;14:24-6. [PMID: 24592835 DOI: 10.1080/15265161.2013.879959] [Cited by in Crossref: 4] [Cited by in F6Publishing: 5] [Article Influence: 0.5] [Reference Citation Analysis]
14 Kuhlen M, Borkhardt A. Cancer susceptibility syndromes in children in the area of broad clinical use of massive parallel sequencing. Eur J Pediatr 2015;174:987-97. [PMID: 25982339 DOI: 10.1007/s00431-015-2565-x] [Cited by in Crossref: 20] [Cited by in F6Publishing: 15] [Article Influence: 2.9] [Reference Citation Analysis]
15 Denburg AE, Giacomini M, Ungar WJ, Abelson J. The Moral Foundations of Child Health and Social Policies: A Critical Interpretive Synthesis. Children (Basel) 2021;8:43. [PMID: 33450842 DOI: 10.3390/children8010043] [Reference Citation Analysis]
16 Nestor JG, Groopman EE, Gharavi AG. Towards precision nephrology: the opportunities and challenges of genomic medicine. J Nephrol 2018;31:47-60. [PMID: 29043570 DOI: 10.1007/s40620-017-0448-0] [Cited by in Crossref: 9] [Cited by in F6Publishing: 6] [Article Influence: 1.8] [Reference Citation Analysis]
17 Char DS. How should whole-genome sequencing be implemented in children? A consideration of the current limitations. Personalized Medicine 2016;13:33-42. [DOI: 10.2217/pme.15.44] [Cited by in Crossref: 1] [Article Influence: 0.2] [Reference Citation Analysis]
18 Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH; CSER Consortium. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. Am J Hum Genet 2016;98:1051-66. [PMID: 27181682 DOI: 10.1016/j.ajhg.2016.04.011] [Cited by in Crossref: 96] [Cited by in F6Publishing: 89] [Article Influence: 16.0] [Reference Citation Analysis]
19 Valdez JM, Walker B, Ogg S, Gattuso J, Alderfer MA, Zelley K, Ford CA, Baker JN, Mandrell BN, Nichols KE. Parent-child communication surrounding genetic testing for Li-Fraumeni syndrome: Living under the cloud of cancer. Pediatr Blood Cancer 2018;65:e27350. [PMID: 30009566 DOI: 10.1002/pbc.27350] [Cited by in Crossref: 8] [Cited by in F6Publishing: 6] [Article Influence: 2.0] [Reference Citation Analysis]
20 Pezeshkpoor B, Oldenburg J, Pavlova A. Experiences in Routine Genetic Analysis of Hereditary Hemorrhagic, Thrombotic, and Platelet Disorders. Hamostaseologie 2022. [PMID: 35226963 DOI: 10.1055/a-1726-4793] [Reference Citation Analysis]
21 Bredenoord AL, de Vries MC, van Delden H. The Right to an Open Future Concerning Genetic Information. The American Journal of Bioethics 2014;14:21-3. [DOI: 10.1080/15265161.2013.879952] [Cited by in Crossref: 15] [Cited by in F6Publishing: 13] [Article Influence: 1.9] [Reference Citation Analysis]
22 Jarvik GP, Amendola LM, Berg JS, Brothers K, Clayton EW, Chung W, Evans BJ, Evans JP, Fullerton SM, Gallego CJ, Garrison NA, Gray SW, Holm IA, Kullo IJ, Lehmann LS, McCarty C, Prows CA, Rehm HL, Sharp RR, Salama J, Sanderson S, Van Driest SL, Williams MS, Wolf SM, Wolf WA, Burke W; eMERGE Act-ROR Committee and CERC Committee., CSER Act-ROR Working Group. Return of genomic results to research participants: the floor, the ceiling, and the choices in between. Am J Hum Genet 2014;94:818-26. [PMID: 24814192 DOI: 10.1016/j.ajhg.2014.04.009] [Cited by in Crossref: 244] [Cited by in F6Publishing: 220] [Article Influence: 30.5] [Reference Citation Analysis]
23 Schultz CL, Alderfer MA, Lindell RB, McClain Z, Zelley K, Nichols KE, Ford CA. The Influence of Adolescence on Parents' Perspectives of Testing and Discussing Inherited Cancer Predisposition. J Genet Couns 2018. [PMID: 29909594 DOI: 10.1007/s10897-018-0267-z] [Cited by in Crossref: 6] [Cited by in F6Publishing: 4] [Article Influence: 1.5] [Reference Citation Analysis]
24 Peters JA, Kenen R, Bremer R, Givens S, Savage SA, Mai PL. Easing the Burden: Describing the Role of Social, Emotional and Spiritual Support in Research Families with Li-Fraumeni Syndrome. J Genet Couns 2016;25:529-42. [PMID: 26621765 DOI: 10.1007/s10897-015-9905-x] [Cited by in Crossref: 12] [Cited by in F6Publishing: 11] [Article Influence: 1.7] [Reference Citation Analysis]
25 Christofides E, O’doherty K. Company disclosure and consumer perceptions of the privacy implications of direct-to-consumer genetic testing. New Genetics and Society 2016;35:101-23. [DOI: 10.1080/14636778.2016.1162092] [Cited by in Crossref: 17] [Cited by in F6Publishing: 7] [Article Influence: 2.8] [Reference Citation Analysis]
26 Gourna EG, Armstrong N, Wallace SE. Compare and contrast: a cross-national study across UK, USA and Greek experts regarding return of incidental findings from clinical sequencing. Eur J Hum Genet 2016;24:344-9. [PMID: 26059844 DOI: 10.1038/ejhg.2015.132] [Cited by in Crossref: 10] [Cited by in F6Publishing: 7] [Article Influence: 1.4] [Reference Citation Analysis]
27 Christenhusz GM, Devriendt K, Van Esch H, Dierickx K. Focus group discussions on secondary variants and next-generation sequencing technologies. European Journal of Medical Genetics 2015;58:249-57. [DOI: 10.1016/j.ejmg.2015.01.007] [Cited by in Crossref: 12] [Cited by in F6Publishing: 10] [Article Influence: 1.7] [Reference Citation Analysis]
28 Wu YP, Mays D, Kohlmann W, Tercyak KP. Pediatric Predispositional Genetic Risk Communication: Potential Utility for Prevention and Control of Melanoma Risk as an Exemplar. J Genet Couns 2017;26:887-93. [PMID: 28547663 DOI: 10.1007/s10897-017-0105-8] [Cited by in Crossref: 3] [Cited by in F6Publishing: 5] [Article Influence: 0.6] [Reference Citation Analysis]
29 Brothers KB, Lynch JA, Aufox SA, Connolly JJ, Gelb BD, Holm IA, Sanderson SC, McCormick JB, Williams JL, Wolf WA, Antommaria AH, Clayton EW. Practical guidance on informed consent for pediatric participants in a biorepository. Mayo Clin Proc 2014;89:1471-80. [PMID: 25264176 DOI: 10.1016/j.mayocp.2014.07.006] [Cited by in Crossref: 20] [Cited by in F6Publishing: 16] [Article Influence: 2.5] [Reference Citation Analysis]
30 Wade CH, Elliott KR. Young adults' attitudes toward pediatric whole-genome sequencing. Per Med 2016;13:541-52. [PMID: 29754547 DOI: 10.2217/pme-2016-0066] [Cited by in F6Publishing: 1] [Reference Citation Analysis]
31 Schmidt HH, Barroso F, González-Duarte A, Conceição I, Obici L, Keohane D, Amass L. Management of asymptomatic gene carriers of transthyretin familial amyloid polyneuropathy. Muscle Nerve 2016;54:353-60. [PMID: 27273296 DOI: 10.1002/mus.25210] [Cited by in Crossref: 13] [Cited by in F6Publishing: 13] [Article Influence: 2.6] [Reference Citation Analysis]
32 Mercer D. Guidelines for Audiologists on the Benefits and Limitations of Genetic Testing. Am J Audiol 2015;24:451-61. [DOI: 10.1044/2015_aja-15-0010] [Cited by in Crossref: 3] [Cited by in F6Publishing: 1] [Article Influence: 0.4] [Reference Citation Analysis]
33 Barajas M, Ross LF. Pediatric Professionals' Attitudes about Secondary Findings in Genomic Sequencing of Children. The Journal of Pediatrics 2015;166:1276-1282.e7. [DOI: 10.1016/j.jpeds.2015.01.032] [Cited by in Crossref: 9] [Cited by in F6Publishing: 7] [Article Influence: 1.3] [Reference Citation Analysis]
34 Hayeems RZ, Boycott KM. Genome-wide sequencing technologies: A primer for paediatricians. Paediatr Child Health 2018;23:191-7. [PMID: 29769805 DOI: 10.1093/pch/pxx152] [Cited by in Crossref: 6] [Cited by in F6Publishing: 5] [Article Influence: 1.2] [Reference Citation Analysis]
35 Christenhusz G, Devriendt K, Dierickx K. Empirical ethics: the "missing link" in incidental findings recommendations. Am J Bioeth 2014;14:31-3. [PMID: 24592838 DOI: 10.1080/15265161.2013.879949] [Cited by in Crossref: 1] [Cited by in F6Publishing: 1] [Article Influence: 0.1] [Reference Citation Analysis]
36 Marron JM, Joffe S. Ethical considerations in genomic testing for hematologic disorders. Blood 2017;130:460-5. [PMID: 28600340 DOI: 10.1182/blood-2017-01-734558] [Cited by in Crossref: 13] [Cited by in F6Publishing: 10] [Article Influence: 2.6] [Reference Citation Analysis]
37 Bradbury AR, Patrick-Miller L, Schwartz LA, Egleston BL, Henry-Moss D, Domchek SM, Daly MB, Tuchman L, Moore C, Rauch PK, Shorter R, Karpink K, Sands CB. Psychosocial Adjustment and Perceived Risk Among Adolescent Girls From Families With BRCA1/2 or Breast Cancer History. J Clin Oncol 2016;34:3409-16. [PMID: 27551110 DOI: 10.1200/JCO.2015.66.3450] [Cited by in Crossref: 10] [Cited by in F6Publishing: 6] [Article Influence: 1.7] [Reference Citation Analysis]
38 Waltz M, Cadigan RJ, Prince AER, Skinner D, Henderson GE. Age and perceived risks and benefits of preventive genomic screening. Genet Med 2018;20:1038-44. [PMID: 29215654 DOI: 10.1038/gim.2017.206] [Cited by in Crossref: 5] [Cited by in F6Publishing: 4] [Article Influence: 1.0] [Reference Citation Analysis]
39 Szego MJ, Meyn MS, Anderson JA, Hayeems R, Shuman C, Monfared N, Bowdin S, Shaul RZ. Predictive Genomic Testing of Children for Adult Onset Disorders: A Canadian Perspective. The American Journal of Bioethics 2014;14:19-21. [DOI: 10.1080/15265161.2013.879960] [Cited by in Crossref: 6] [Cited by in F6Publishing: 7] [Article Influence: 0.8] [Reference Citation Analysis]
40 Palk AC, Dalvie S, de Vries J, Martin AR, Stein DJ. Potential use of clinical polygenic risk scores in psychiatry - ethical implications and communicating high polygenic risk. Philos Ethics Humanit Med 2019;14:4. [PMID: 30813945 DOI: 10.1186/s13010-019-0073-8] [Cited by in Crossref: 35] [Cited by in F6Publishing: 25] [Article Influence: 11.7] [Reference Citation Analysis]
41 Janvier A, Farlow B. Arrogance-Based Medicine: Guidelines Regarding Genetic Testing in Children. The American Journal of Bioethics 2014;14:15-6. [DOI: 10.1080/15265161.2013.879951] [Cited by in Crossref: 8] [Cited by in F6Publishing: 5] [Article Influence: 1.0] [Reference Citation Analysis]
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43 Wilfond BS, Fernandez CV, Green RC. Disclosing Secondary Findings from Pediatric Sequencing to Families: Considering the "Benefit to Families". J Law Med Ethics 2015;43:552-8. [PMID: 26479565 DOI: 10.1111/jlme.12298] [Cited by in Crossref: 10] [Cited by in F6Publishing: 22] [Article Influence: 2.0] [Reference Citation Analysis]
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48 McCullough LB, Slashinski MJ, McGuire AL, Street RL Jr, Eng CM, Gibbs RA, Parsons DW, Plon SE. Is Whole-Exome Sequencing an Ethically Disruptive Technology? Perspectives of Pediatric Oncologists and Parents of Pediatric Patients With Solid Tumors. Pediatr Blood Cancer 2016;63:511-5. [PMID: 26505993 DOI: 10.1002/pbc.25815] [Cited by in Crossref: 27] [Cited by in F6Publishing: 24] [Article Influence: 3.9] [Reference Citation Analysis]
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