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For: Thorogood A, Dalpé G, Knoppers BM. Return of individual genomic research results: are laws and policies keeping step? Eur J Hum Genet 2019;27:535-46. [PMID: 30622328 DOI: 10.1038/s41431-018-0311-3] [Cited by in Crossref: 38] [Cited by in F6Publishing: 35] [Article Influence: 12.7] [Reference Citation Analysis]
Number Citing Articles
1 Wagner JK, Meyer MN. Genomic medicine and the "loss of chance" medical malpractice doctrine. HGG Adv 2021;2:100032. [PMID: 34250511 DOI: 10.1016/j.xhgg.2021.100032] [Reference Citation Analysis]
2 Mudd-Martin G, Cirino AL, Barcelona V, Fox K, Hudson M, Sun YV, Taylor JY, Cameron VA; American Heart Association Council on Genomic and Precision Medicine., Council on Cardiovascular and Stroke Nursing; and Council on Clinical Cardiology. Considerations for Cardiovascular Genetic and Genomic Research With Marginalized Racial and Ethnic Groups and Indigenous Peoples: A Scientific Statement From the American Heart Association. Circ Genom Precis Med 2021;:HCG0000000000000084. [PMID: 34304578 DOI: 10.1161/HCG.0000000000000084] [Reference Citation Analysis]
3 Bienfait K, Chhibber A, Marshall JC, Armstrong M, Cox C, Shaw PM, Paulding C. Current challenges and opportunities for pharmacogenomics: perspective of the Industry Pharmacogenomics Working Group (I-PWG). Hum Genet 2021. [PMID: 34081195 DOI: 10.1007/s00439-021-02282-3] [Reference Citation Analysis]
4 Mezinska S, Kaleja J, Mileiko I. Becoming and being a biobank donor: The role of relationships and ethics. PLoS One 2020;15:e0242828. [PMID: 33227030 DOI: 10.1371/journal.pone.0242828] [Reference Citation Analysis]
5 Lewis ACF, Green RC. Polygenic risk scores in the clinic: new perspectives needed on familiar ethical issues. Genome Med 2021;13:14. [PMID: 33509269 DOI: 10.1186/s13073-021-00829-7] [Cited by in Crossref: 8] [Cited by in F6Publishing: 5] [Article Influence: 8.0] [Reference Citation Analysis]
6 Dommershuijsen LJ, Darweesh SKL, Luik AI, Kieboom BCT, Koudstaal PJ, Boon AJW, Ikram MA, Ikram MK, Bunnik EM. Ethical Considerations in Screening for Rapid Eye Movement Sleep Behavior Disorder in the General Population. Mov Disord 2020;35:1939-44. [PMID: 32930445 DOI: 10.1002/mds.28262] [Cited by in Crossref: 5] [Cited by in F6Publishing: 3] [Article Influence: 2.5] [Reference Citation Analysis]
7 Daly MB. Navigating the Intersection between Genomic Research and Clinical Practice. Cancer Prev Res (Phila) 2020;13:219-22. [PMID: 32132115 DOI: 10.1158/1940-6207.CAPR-19-0267] [Cited by in Crossref: 2] [Cited by in F6Publishing: 1] [Article Influence: 2.0] [Reference Citation Analysis]
8 Hoell C, Wynn J, Rasmussen LV, Marsolo K, Aufox SA, Chung WK, Connolly JJ, Freimuth RR, Kochan D, Hakonarson H, Harr M, Holm IA, Kullo IJ, Lammers PE, Leppig KA, Leslie ND, Myers MF, Sharp RR, Smith ME, Prows CA. Participant choices for return of genomic results in the eMERGE Network. Genet Med 2020;22:1821-9. [PMID: 32669677 DOI: 10.1038/s41436-020-0905-3] [Cited by in Crossref: 5] [Cited by in F6Publishing: 7] [Article Influence: 2.5] [Reference Citation Analysis]
9 Bernier A, Taylor IE. Rare disease data stewardship in Canada. FACETS 2020;5:836-63. [DOI: 10.1139/facets-2020-0050] [Cited by in Crossref: 1] [Cited by in F6Publishing: 1] [Article Influence: 0.5] [Reference Citation Analysis]
10 Spies G, Mokaya J, Steadman J, Schuitmaker N, Kidd M, Hemmings SMJ, Carr JA, Kuivaniemi H, Seedat S; SHARED ROOTS Group. Attitudes among South African university staff and students towards disclosing secondary genetic findings. J Community Genet 2021;12:171-84. [PMID: 33219499 DOI: 10.1007/s12687-020-00494-0] [Cited by in Crossref: 1] [Cited by in F6Publishing: 1] [Article Influence: 0.5] [Reference Citation Analysis]
11 Mascalzoni D, Biasiotto R, Borsche M, Brüggemann N, De Grandi A, Goegele M, Frygner-Holm S, Klein C, Kösters M, Staunton C, Pramstaller PP, Krawczak M, Hicks AA. Balancing scientific interests and the rights of participants in designing a recall by genotype study. Eur J Hum Genet 2021;29:1146-57. [PMID: 33981014 DOI: 10.1038/s41431-021-00860-7] [Reference Citation Analysis]
12 Mann SP, Treit PV, Geyer PE, Omenn GS, Mann M. Ethical Principles, Constraints and Opportunities in Clinical Proteomics. Mol Cell Proteomics 2021;:100046. [PMID: 33453411 DOI: 10.1016/j.mcpro.2021.100046] [Cited by in Crossref: 3] [Cited by in F6Publishing: 6] [Article Influence: 3.0] [Reference Citation Analysis]
13 Tozzo P, Caenazzo L. The Skeleton in the Closet: Faults and Strengths of Public Versus Private Genetic Biobanks. Biomolecules 2020;10:E1273. [PMID: 32899386 DOI: 10.3390/biom10091273] [Cited by in Crossref: 3] [Article Influence: 1.5] [Reference Citation Analysis]
14 Şık AS, Aydınoğlu AU, Aydın Son Y. Assessing the readiness of Turkish health information systems for integrating genetic/genomic patient data: System architecture and available terminologies, legislative, and protection of personal data. Health Policy 2021;125:203-12. [PMID: 33342546 DOI: 10.1016/j.healthpol.2020.12.004] [Reference Citation Analysis]
15 Hicks JK, Howard R, Reisman P, Adashek JJ, Fields KK, Gray JE, McIver B, McKee K, O'Leary MF, Perkins RM, Robinson E, Tandon A, Teer JK, Markowitz J, Rollison DE. Integrating Somatic and Germline Next-Generation Sequencing Into Routine Clinical Oncology Practice. JCO Precis Oncol 2021;5:PO. [PMID: 34095711 DOI: 10.1200/PO.20.00513] [Cited by in Crossref: 1] [Article Influence: 1.0] [Reference Citation Analysis]
16 Vu M, Degeling K, Martyn M, Lynch E, Chong B, Gaff C, IJzerman MJ. Evaluating the resource implications of different service delivery models for offering additional genomic findings. Genet Med 2021;23:606-13. [PMID: 33214711 DOI: 10.1038/s41436-020-01030-8] [Reference Citation Analysis]
17 Goisauf M, Martin G, Bentzen HB, Budin-Ljøsne I, Ursin L, Durnová A, Leitsalu L, Smith K, Casati S, Lavitrano M, Mascalzoni D, Boeckhout M, Mayrhofer MT. Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research. PLoS One 2019;14:e0221496. [PMID: 31532777 DOI: 10.1371/journal.pone.0221496] [Cited by in Crossref: 6] [Cited by in F6Publishing: 5] [Article Influence: 2.0] [Reference Citation Analysis]
18 Ménard T, Barros A, Ganter C. Clinical Quality Considerations when Using Next-Generation Sequencing (NGS) in Clinical Drug Development. Ther Innov Regul Sci 2021;55:1066-74. [PMID: 34046876 DOI: 10.1007/s43441-021-00308-6] [Cited by in Crossref: 1] [Cited by in F6Publishing: 1] [Article Influence: 1.0] [Reference Citation Analysis]
19 Blout Zawatsky CL, Shah N, Machini K, Perez E, Christensen KD, Zouk H, Steeves M, Koch C, Uveges M, Shea J, Gold N, Krier J, Boutin N, Mahanta L, Rehm HL, Weiss ST, Karlson EW, Smoller JW, Lebo MS, Green RC. Returning actionable genomic results in a research biobank: Analytic validity, clinical implementation, and resource utilization. Am J Hum Genet 2021;108:2224-37. [PMID: 34752750 DOI: 10.1016/j.ajhg.2021.10.005] [Cited by in Crossref: 1] [Article Influence: 1.0] [Reference Citation Analysis]
20 Corsico P. "It's all about delivery": researchers and health professionals' views on the moral challenges of accessing neurobiological information in the context of psychosis. BMC Med Ethics 2021;22:11. [PMID: 33557813 DOI: 10.1186/s12910-020-00551-w] [Reference Citation Analysis]
21 Peltekova I, Buhas D, Stern L, Kirby E, Yusuf A, Elsabbagh M. Enhancing the Impact of Genomics Research in Autism through Integration of Research Results into Routine Care Pathways-A Case Series. J Pers Med 2021;11:755. [PMID: 34442399 DOI: 10.3390/jpm11080755] [Reference Citation Analysis]
22 Anie KA, Olayemi E, Paintsil V, Owusu-Dabo E, Adeyemo TA, Sani MU, Galadanci NA, Nnodu O, Tluway F, Adjei DN, Mensah P, Sarfo-Antwi J, Nwokobia H, Gambo A, Benjamin A, Salim A, Osae-Larbi JA, Ofori-Acquah SF; SickleGenAfrica Network. Sickle Cell Disease Genomics of Africa (SickleGenAfrica) Network: ethical framework and initial qualitative findings from community engagement in Ghana, Nigeria and Tanzania. BMJ Open 2021;11:e048208. [PMID: 34301659 DOI: 10.1136/bmjopen-2020-048208] [Reference Citation Analysis]
23 Luu JM, Sergeant AK, Anand SS, Desai D, Schulze K, Knoppers BM, Zawati MH, Smith EE, Moody AR, Black SE, Larose E, Marcotte F, Kleiderman E, Tardif JC, Lee DS, Friedrich MG; CAHHM Study Investigators. The impact of reporting magnetic resonance imaging incidental findings in the Canadian alliance for healthy hearts and minds cohort. BMC Med Ethics 2021;22:145. [PMID: 34711210 DOI: 10.1186/s12910-021-00706-3] [Reference Citation Analysis]
24 Staunton C, Kösters M, Pramstaller PP, Mascalzoni D. Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants. J Community Genet 2021. [PMID: 34241790 DOI: 10.1007/s12687-021-00536-1] [Reference Citation Analysis]
25 Papaz T, Liston E, Zahavich L, Stavropoulos DJ, Jobling RK, Kim RH, Reuter M, Miron A, Oechslin E, Mondal T, Bergin L, Smythe JF, Altamirano-Diaz L, Lougheed J, Yao R, Akinrinade O, Breckpot J, Mital S. Return of genetic and genomic research findings: experience of a pediatric biorepository. BMC Med Genomics 2019;12:173. [PMID: 31775751 DOI: 10.1186/s12920-019-0618-0] [Cited by in Crossref: 7] [Cited by in F6Publishing: 7] [Article Influence: 2.3] [Reference Citation Analysis]
26 Strianese O, Rizzo F, Ciccarelli M, Galasso G, D'Agostino Y, Salvati A, Del Giudice C, Tesorio P, Rusciano MR. Precision and Personalized Medicine: How Genomic Approach Improves the Management of Cardiovascular and Neurodegenerative Disease. Genes (Basel) 2020;11:E747. [PMID: 32640513 DOI: 10.3390/genes11070747] [Cited by in Crossref: 5] [Cited by in F6Publishing: 4] [Article Influence: 2.5] [Reference Citation Analysis]
27 Blasimme A, Brall C, Vayena E. Reporting Genetic Findings to Individual Research Participants: Guidelines From the Swiss Personalized Health Network. Front Genet 2020;11:585820. [PMID: 33362850 DOI: 10.3389/fgene.2020.585820] [Reference Citation Analysis]
28 Mitchell C, Ploem C, Retèl V, Gevers S, Hennekam R. Experts reflecting on the duty to recontact patients and research participants; why professionals should take the lead in developing guidelines. Eur J Med Genet 2020;63:103642. [PMID: 30904667 DOI: 10.1016/j.ejmg.2019.03.006] [Cited by in Crossref: 4] [Cited by in F6Publishing: 5] [Article Influence: 1.3] [Reference Citation Analysis]
29 Winkler EC, Knoppers BM. Ethical challenges of precision cancer medicine. Semin Cancer Biol 2020:S1044-579X(20)30201-7. [PMID: 33045356 DOI: 10.1016/j.semcancer.2020.09.009] [Reference Citation Analysis]
30 Matsui K, Yamamoto K, Tashiro S, Ibuki T. A systematic approach to the disclosure of genomic findings in clinical practice and research: a proposed framework with colored matrix and decision-making pathways. BMC Med Ethics 2021;22:168. [PMID: 34953504 DOI: 10.1186/s12910-021-00738-9] [Reference Citation Analysis]
31 Singh S, Moodley K. Stakeholder perspectives on the ethico-legal dimensions of biobanking in South Africa. BMC Med Ethics 2021;22:84. [PMID: 34210291 DOI: 10.1186/s12910-021-00645-z] [Reference Citation Analysis]
32 Sabatello M, Zhang Y, Chen Y, Appelbaum PS. In Different Voices: The Views of People with Disabilities about Return of Results from Precision Medicine Research. Public Health Genomics 2020;23:42-53. [PMID: 32294660 DOI: 10.1159/000506599] [Cited by in Crossref: 2] [Cited by in F6Publishing: 5] [Article Influence: 1.0] [Reference Citation Analysis]
33 Lin JC, Hsiao WW, Fan CT. Managing "incidental findings" in biobank research: Recommendations of the Taiwan biobank. Comput Struct Biotechnol J 2019;17:1135-42. [PMID: 31462969 DOI: 10.1016/j.csbj.2019.07.006] [Cited by in Crossref: 5] [Cited by in F6Publishing: 5] [Article Influence: 1.7] [Reference Citation Analysis]
34 Vears DF, Minion JT, Roberts SJ, Cummings J, Machirori M, Blell M, Budin-Ljøsne I, Cowley L, Dyke SOM, Gaff C, Green R, Hall A, Johns AL, Knoppers BM, Mulrine S, Patch C, Winkler E, Murtagh MJ. Return of individual research results from genomic research: A systematic review of stakeholder perspectives. PLoS One 2021;16:e0258646. [PMID: 34748551 DOI: 10.1371/journal.pone.0258646] [Reference Citation Analysis]
35 Weil CJ. Ethical, Legal, and Policy Issues Surrounding Biospecimen Research Conducted or Supported in the USA. Biopreserv Biobank 2022. [PMID: 35138936 DOI: 10.1089/bio.2021.0094] [Reference Citation Analysis]
36 Knoppers T, Cosquer M, Hagan J, Nguyen MT, Knoppers BM. “The Stakes Are Higher”- Patient and Caregiver Perspectives on Cystic Fibrosis Research and Personalized Medicine. Front Med 2022;9:841887. [DOI: 10.3389/fmed.2022.841887] [Reference Citation Analysis]
37 Lewis ACF, Knoppers BM, Green RC. An international policy on returning genomic research results. Genome Med 2021;13:115. [PMID: 34266500 DOI: 10.1186/s13073-021-00928-5] [Cited by in Crossref: 1] [Cited by in F6Publishing: 2] [Article Influence: 1.0] [Reference Citation Analysis]
38 Johnson LM, Mandrell BN, Li C, Lu Z, Gattuso J, Harrison LW, Mori M, Ouma AA, Pritchard M, Sharp KMH, Nichols KE. Managing Pandora's Box: Familial Expectations around the Return of (Future) Germline Results. AJOB Empir Bioeth 2022;:1-14. [PMID: 35471132 DOI: 10.1080/23294515.2022.2063994] [Reference Citation Analysis]
39 Phillips M, Molnár-Gábor F, Korbel JO, Thorogood A, Joly Y, Chalmers D, Townend D, Knoppers BM. Genomics: data sharing needs an international code of conduct. Nature 2020;578:31-3. [PMID: 32025008 DOI: 10.1038/d41586-020-00082-9] [Cited by in Crossref: 13] [Cited by in F6Publishing: 8] [Article Influence: 6.5] [Reference Citation Analysis]
40 Lekstutiene J, Holm S, Gefenas E. Biobanks and Individual Health Related Findings: from an Obstacle to an Incentive. Sci Eng Ethics 2021;27:55. [PMID: 34379215 DOI: 10.1007/s11948-021-00330-9] [Reference Citation Analysis]