Supportive care in transplantation: A patient-centered care model to better support kidney transplant candidates and recipients

Table 1 The challenging elements within different phases of a kidney transplant recipient’s journey

Waitlisting to transplantation

Transplant eligibility/candidacy

Living donor candidacy, if available

Support and preparation for various outcomes

Death

Ineligibility

Health deterioration

Being re-activated after being inactivated

Symptom burden

Health maintenance

Vaccination and preventative care

Kidney transplantation

Support and preparation for various outcomes

Graft failure

Death

Rejection

Surgical complications

Medication management

Short and long-term medical complications

Short and long-term infectious complications

Risk of malignancy

Symptom burden

Health maintenance

Vaccination and preventative care

Isolation (no longer on dialysis)

Return to workforce

Graft failure

Support and preparation for various outcomes

Death

Re-listing and re-transplantation

Ineligibility

Psychosocial support (patient, caregiver, living donor)

Transition of care

Immunosuppression plan

Medical complications

Infectious complications

Risk of malignancy

Symptom burden

Health maintenance

Vaccination and preventative care