Roux-en-Y jejunostomy in gastroparesis: Insight into patient perspectives and outcomes

Table 2 Post Roux-en-Y jejunostomy symptoms, nutrition and satisfaction

Case	Symptoms	Complications	Nutrition	Life impact	Venting gastrostomy	Jejunostomy in situ or removed?	Procedure again?	Follow up duration
1	Minimal nausea/vomiting	Persistent abdominal pain	Reduced EN frequency due to pain	Less social stigma - “it’s great not to be stared at by strangers all the time”	No	Jejunostomy eventually removed due to persistent abdominal pain - has returned to NJT	No	2 years
	Worsening abdominal pain		Minimal oral intake - could tolerate sips of clear fluids	Mindful of heavy lifting due to strain on abdomen
2	Improved nausea and abdominal pain	Nil	Continuous EN feeds	Less social stigma	No	In situ	Yes	1 year
			Weight stable	Currently studying at university
3	Improved nausea and abdominal pain	Leakage	Able to maintain weight	“Life changing”	Yes	In situ	Yes	3 years
				Has been able to travel overseas
		Hypergranulation tissue requiring multiple debridements	Overnight EN	Working full time
			Improved oral intake	Maintaining social life
				Difficult to exercise due to pain
4	Improved nausea and abdominal pain	Leakage	Cyclical EN feeds initially	Energy levels much improved	Yes	Removed - able to maintain adequate oral nutrition	Yes	3 years
				Less social stigma
			Now able to maintain weight with oral intake	Currently studying at university
				Avoids tight fitting clothing due to leakage
5	Improved nausea and abdominal pain	Cuff burst requiring jejunostomy exchange	Difficulty tolerating EN via jejunostomy due to abdominal pain - required a period of TPN whilst analgesia regimen optimised	Less social stigma	Yes	In situ	Yes	3 years
		Hospital admission due to poorly controlled pain		Improved energy levels
6	Nausea improved, occasional vomiting	Initially had issues with leakage however resolved with jejunostomy exchange	Cyclical EN feeds	Great quality of life	No	In situ	Yes	2 years
				Currently working
	Mild abdominal pain		Approximately 20% oral intake	High energy levels
			Weight stable	Improved social life
7	Improved nausea and abdominal pain	Hypergranulation tissue	Continuous EN feeds initially however now able to maintain nutrition via oral intake	Maintain oral nutrition	Yes	Removed - able to maintain adequate oral nutrition	Yes	1.5 years
				Social and work life much improved
				Less leakage compared to previous feeding tubes
8	Improved nausea and abdominal pain	Nil	Cyclical EN initially however symptoms improved to the point where could tolerate oral intake	Regained independence	No	Removed - able to maintain adequate oral nutrition	Yes	2 years
				Socially discrete
				Improved function at work
				Able to maintain nutrition orally

EN: Enteral nutrition; TPN: Total parenteral nutrition; NJT: Nasojejunal tube.