Inflammatory bowel disease patient profiles are related to specific information needs: A nationwide survey

Table 5 Clinically significant disparities in rating of domains¹

			mean ± CI2 profile vs others	Deltaa
P1: Patients with active disease (MIBDI A/B/C) and a history of hospitalization during the preceding 12 mo
Domains	DC5	Work-disability	7.1 ± 0.3 vs 5.9 ± 0.2	1.2
	DC3	Stress-coping	6.7 ± 0.4 vs 5.9 ± 0.2	0.8
	DC1	managing symptoms, therapy-complications	6.5 ± 0.3 vs 5.8 ± 0.2	0.7
P2: Patients with significantly active disease (MIBDI A/B/C) treated with immunomodulators and biologics
Domains	DD4	Nutrition	7.6 ± 0.3 vs 6.9 ± 0.1	0.7
	DC3	Stress-coping	6.7 ± 0.6 vs 6 ± 0.2	0.7
	DC1	managing symptoms, therapy-complications	6.4 ± 0.4 vs 5.8 ± 0.2	0.6
	DD2	Stress-coping	7.4 ± 0.3 vs 6.8 ± 0.1	0.6
P3: Patients in remission while treated with immunomodulators and/or biologics
Domains	DD3	Complications	5.5 ± 0.8 vs 6.5 ± 0.1	-1
	DD1	managing symptoms, therapy	6.6 ± 0.7 vs 7.2 ± 0.1	-0.6
P4: Patients in remission while treated with mesalamine or receiving no treatment
Domains	DC4	Family, Society & Religion	2.3 ± 0.6 vs 3.4 ± 0.3	-1.1
	DC5	Work-disability	5.3 ± 0.6 vs 6.3 ± 0.2	-1
	DC3	Stress-coping	5.3 ± 0.6 vs 6.2 ± 0.4	-0.9
	DC1	managing symptoms, therapy-complications	5.4 ± 0.5 vs 6 ± 0.2	-0.6
P5: Patients aged 21-65 yr with any disease activity (MIBDI A/B/C/D)
Domains	DC5	Work-disability	6.5 ± 0.2 vs 5.6 ± 0.4	0.9
	DC1	managing symptoms, therapy-complications	6.1 ± 0.2 vs 5.5 ± 0.3	0.6
	DC3	Stress-coping	6.3 ± 0.3 vs 5.7 ± 0.4	0.6
P7: Patients older than age 50 yr, diagnosed during the preceding 12 mo
Domains	DC5	Work-disability	4.1 ± 2 vs 6.2 ± 0.2	-2.1
	DC3	Stress-coping	4.2 ± 1.9 vs 6.1 ± 0.2	-1.9
P8: Patients younger than age 21 yr, diagnosed during the preceding 12 mo
Domains	DC1	managing symptoms, therapy-complications	4.6 ± 1.5 vs 5.9 ± 0.1	-1.3
	DD1	managing symptoms, therapy	6 ± 1.1 vs 7.2 ± 0.1	-1.2
	DD4	Nutrition	5.9 ± 1.3 vs 7 ± 0.1	-1.1
	DD3	Complications	5.6 ± 1.1 vs 6.5 ± 0.1	-0.9
P10: patients hospitalized during the preceding 12 mo
Domains	DC5	Work-disability	6.7 ± 0.3 vs 5.9 ± 0.3	0.8
	DC1	managing symptoms, therapy-complications	6.3 ± 0.3 vs 5.7 ± 0.2	0.6
P11: Patients diagnosed more than 10 yr ago
Domains	DC5	Work-disability	5.5 ± 0.4 vs 6.5 ± 0.2	-1
P12: Patients who had surgery during the preceding 12 mo
Domains	DC5	Work-disability	6.8 ± 0.6 vs 6.1 ± 0.2	0.7
	DC1	managing symptoms, therapy-complications	6.4 ± 0.4 vs 5.8 ± 0.2	0.6
P13: Patients with high disease activity (MIBDI A/B)
Domains	DC4	Family social and religion	3.6 ± 0.4 vs 2.9 ± 0.3	0.7
	DC1	managing symptoms, therapy-complications	6.2 ± 0.2 vs 5.7 ± 0.2	0.5
P14: Patients diagnosed at age > 50 yr
Domains	DC6	Long term complications	6.9 ± 0.4 vs 5.8 ± 0.2	1.1
	DC2	Nutrition	6.9 ± 0.4 vs 5.9 ± 0.2	1
	DC1	managing symptoms, therapy-complications	6.6 ± 0.4 vs 5.8 ± 0.2	0.8
	DD3	Complications	6.9 ± 0.3 vs 6.4 ± 0.2	0.5
	DC5	Work-disability	5.3 ± 0.7 vs 6.2 ± 0.2	-0.9
P15: Patients who were unemployed (or received disability pension) during the preceding 12 mo
Domains	DC4	Family social and religion	4.2 ± 0.9 vs 3.1 ± 0.2	1.1

¹Profile 6 and 9 not included due to lack of clinically significant differences;

²95% confidence intervals;

^aP < 0.05. P: Profile; DD: Domains concerning needs at disease onset; DC: Domains concerning current needs.