Framework for assessing quality of care for inflammatory bowel disease in Sweden

Table 2 Quality framework applied to the inflammatory bowel disease care setting at the Department of Internal Medicine in Highland Hospital, Eksjö, Jönköping County, Sweden

	Quality measures from 2008	Crohn’s disease	Ulcerative colitis
Patient data	Diagnosis	194	261
	Gender
	Female:male	44%:56%	42%:58%
	Age (yr)
	Mean (SD)	53 (± 15)	51 (± 15)
	Range	18-90	20-91
	Disease duration
	Years since time of diagnosis
	Mean (SD)	20 (± 13)	14 (± 10))
	Range	0-58	0-53
Laboratory measures	Hemoglobin
	Mean (SD)	140 (± 12)	143 (± 13)
	Normal ≥ 120 g/L	95%	96%
	Anemia 100-119 g/L	4%	4%
	Severe anemia < 100 g/L	< 1%	0
	Missing	16%	17%
Medication	Prescribed medicine
	5-ASA	43%	56%
	Cortisone	16%	4%
	Immunosuppressant	34%	12%
	Anti-TNF-α	8%	2%
	No medication	31%	40%
Surgical	Incidence of surgery
interventions	Type and numbers of surgical interventions:
	Colonectomy		3
	Hemicolectomy	1	1
	Loop ileostomy		1
	Perianal/fistula/stricture incision	3	1
	Revision abdominal scar	1
	Tumor incidence
	Number and type of intestinal tumors associated with IBD according to diagnosis in records as ICD code	0	0
Quality of life	The Short Health Scale, SHS
	Percent scoring 1 to 3 representing that the goal of the care was reached
	symptoms	95%	98%
	functioning	88%	95%
	worry	91%	94%
	wellbeing	97%	96%
Access to care	Waiting time
	Number of days from the referral being sent from the primary care physician until the patient received a scheduled consultation at the outpatient clinic	< 3 wk	< 3 wk
	Waiting time for known patients
	The clinic’s ability to offer an acute visit within two days after contact for known IBD patients	< 2 d	< 2 d
	Contact route (before being admitted to hospital)
	The ERS was searched to find out where the decision was either at the ER or from the outpatient clinic	50%/50%	50%/50%
Hospitalization	Hospitalization
	ERS documented ICD code for IBD and hospitalisation	29	17

Data from the annual check-up 2008. IBD: Inflammatory bowel disease; ICD: International classification of diseases; 5-ASA: 5-aminosalicylic acid; ERS: Electronic record system; SHS: Short health scale.